BRAND IN FOCUS // ETTA LOVES

 

BRAND IN FOCUS // ETTA LOVES

You may, (or may not), remember that back in 2017 I used to run a Q&A segment,   “NEVER CONCISE CHATS“, where I would chat to the founders of businesses or services, who also happen to be parents. One of those chats was with none-other than Jen Fuller of ETTA LOVES. You can read our original chat, here >>> NEVER KNOWINGLY CONCISE CHATS TO // JEN FULLER | @ETTALOVES

Since Edie was born in August, we’ve used ETTA LOVES products with such great success! So, I just had to write a Brand In Focus post on all the amazing items that we’ve been able to test in real life.

 

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Who is ETTA LOVES?

I love to champion a family-run business and ETTA LOVES is precisely that; founded from the sofa by Jen Fuller whilst feeding her first-born daughter, Etta. Jen quickly realised that a 4 week Etta’s gaze was locked onto a black and white jumper she was wearing – it was the first thing her daughter had concentrated her focus on, that wasn’t a face.

Something clicked and the ETTA LOVES creativity began. All of the ETTA LOVES range is carefully designed with actual science.

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“Babies are born with fully formed eyes however they are not born with the ability to see clearly. This develops with time through practice and the forming of critical eye-to-brain connections.

Because of this, at birth babies are attracted to high contrast, large scale patterns but as the weeks and months go past their vision improves steadily and the world starts to appear in more vivid detail and colour.

At Etta Loves we use the knowledge of what babies can and can’t see at various stages of their visual development to design patterns that support their incredible discovery of the world around them. It’s why our patterns are often described as magical, as babies are calmed and mesmerised as they try to make sense of the fascinating shapes and contrast before them”.

Your baby is, quite literally, spellbound by science with the ETTA LOVES designs. The range started with Muslins as Jen knew how you ALWAYS need one (or two, or three!) on hand at all times.


 

CLICK TO SHOP >> 3-PACK ANIMAL PRINT MUSLINS

We have this 3-pack of Animal print muslin’s – and they’re the ultimate multitasker! Not only are they mega soft (that Bamboo-Cotton is magical in its own right!) but they’re mega functional too. Use them as usual for spills and snotty noses and for when you need those moments of calm. I can’t recommend these muslin’s enough! Even after washing what feels like a million times, the quality is still the same. Edie was completely taken by the prints straight after they were out of the box – they’re the first things she’s learnt to focus her gaze with. The Etta Loves magic knows no bounds here!  We tie the muslins to the side of the play gym/pram/cot/back of the car seat to keep Edie mesmerised (which also gives us a few minutes peace to sit down and drink that hot cup of tea – which is so important!). The science behind the designs is really quite something – they catch the eye of everyone we come into contact with, so the print also works on adults too! Stylish AND scientific, you can’t get better than that!

 

 

 

 

 

 

 

 

 

 

 

 

 

What ETTA LOVES say:

Triple pack of super-soft sensory muslin squares in high contrast black and white patterns. Designed to the millimetre to support babies’ cognitive and visual development between birth and around four months.

The ultimate multi-tasker also delivers sensory calm through our scientific patterns.

Pack includes 1 x zebra, 1 x starfish and 1 x Dalmatian design presented in our stylish box packaging.

Each muslin is 60cm x 60cm.

Made from: 100% viscose from bamboo.

“Muslins are so omnipresent for the first year of life, and beyond, so when you add in how multi-functional they are and the close proximity they come to a baby’s face it made sense to start there and make them do something far more valuable than just mop up baby yuck!”

JEN FULLER, FOUNDER OF ETTA LOVES

Eli is 7 and still uses a muslin for spills or when he’s got a cold – proof that this is product that you’ll be using for a long time after those new-born day’s are over!In times where we need to think and buy in more eco-friendly ways, its a good job that the muslin’s are designed to last – and even better when a muslin is as stylish as the ETTA LOVES designs.

 

click to shop >> NEW ZEBRA KNITTED BLANKET

We absolutely LOVE this knitted blanket in zebra print and wish it was made in adult sizes for us too! I’ve never felt a softer knit, which Edie loves to snuggle into. It has a gorgeous hand-feel, which hasn’t decreased since washing several times – just superb quality. We love how the science behind the design keeps Edie calm as she begins to drift off to sleep. It looks looks mega cool in the pram. It would make a great newborn gift too!

 

 

 

 

 

 

 

 

 

 

 

 

 

What ETTA LOVES say:

Our first knitted blanket delivers super-soft sensory stimulation, for calm snuggles at home or on the move.

Our zebra print is designed to support babies vision from birth to 4 months old.

Soft, snuggly and sensory knitted blanket in high contrast black and white zebra print. Designed to the millimetre to support babies’ cognitive and visual development between birth to four months.

Perfect for in the home or on the go, keeping snuggly and calm at the same time.

100cm x 80cm with black edge (white edge on reverse) in our stylish box packaging.

Made from: 100% cotton.

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CLICK TO SHOP >> ZEBRA COMFORTER

Much like the muslin’s, during a meltdown, we can guarantee this Comforter calms Edie. The print, plus the soft bamboo cotton against her cheek, immediately mesmerises her to sleep. We’ve washed ours plenty of times now and again, it still looks and more importantly, FEELS, brilliant.

 

 

 

 

 

 

 

 

 

 

 

 

 

What ETTA LOVES say:

Super soft, super cute comforter in clever zebra print that your baby will want to keep in their hands and near their eyes. Babies not only love the clever zebra pattern but will also fiddle with the cute floppy zebra ears, providing an additional sensory experience.

Our zebra print is designed to support babies visual and cognitive development from birth to around 4 months old.

40cm x 40cm double lay knotted muslin.

Made from: 100% viscose from bamboo.

CLICK TO SHOP >> ANIMAL PRINT PLAY-MAT

reversible: 0 to 4 months and 5+ months

I was first of all struck by the stylish look of this play mat as it fits in perfectly with our decor – but its actually the science and design consideration of this product that mesmerises me (never-mind Edie!). The fact that the design is illustrated so carefully for brand new baby eyes is a real winner for us – its made Edie cope so much better with tummy time- she loves this dalmation print, her eyes widen and she is immediately transfixed! Really wish we’d had this for Eli 7 years ago as he absolutely deplored tummy time! The mat allows us time to get on with bits around the house or EVEN sit down for a few extra minutes while Edie is captivated by the monochrome print. We also love that from 5 months the mat can be turned over to further the eye development with the colour side – how clever is that?!

The mat itself is really soft, a great size and has lovely padding for the comfort of your babe. It rolls up easily for storage and carting around when travelling. Oh and you can whack it in the washing machine too – which is very important – as all new parents will understand!

 

 

 

 

 

 

 

 

 

 

 

 

What ETTA LOVES say:

Our playmat provides perfect stimulation for tummy time and playtime. Reversible dalmatian (0-4 month print) and leopard print (5+ months) in soft organic cotton with a comfy padded fill.

Designed specifically to support babies’ visual and cognitive development throughout their first year.

The pattern also encourages your baby to use their back, neck and shoulder muscles (helping them prepare for rolling and crawling) as you’ll notice them trying to push up to make more sense of the print before them.

Comes in our gorgeous box packaging with a band to hold the mat together when rolled up – making it perfect for home and away.

Size: Circular – 1m diameter

Made from: Outer – Organic cotton. Inner: Polyester padding

Machine washable to make your life easier too.

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“OUR MAGIC IS BY DESIGN, NOT CHANCE”

“From the colours we use, the scales within each pattern and the placement and space between each shape, everything is designed on our consultant Orthoptist Laura’s recommendation to support your baby’s visual and cognitive development.

As a result, our patterns will look different to your baby from week to week as their vision develops. This is the magic of Etta Loves and what makes us unique in the world”.

JEN FULLER, FOUNDER OF ETTA LOVES

So as you can now tell, we’re big fans of ETTA LOVES in our household. We can’t recommend all of these products enough. They would all make great gifts for loved ones. And remember when you buy from a small business, you’re supporting a family. And that always feel’s nice. Even better when the products are this clever and functional!

What Jen has created is really quite extraordinary – especially for such a young and small brand! What ETTA LOVES has accomplished in the 3 short years that its been going is amazing and I honestly can’t wait for the new products to launch next year. Jen, you and your team of specialists are so very clever and you have helped a lot of families and babies learn and grow. That is really quite epic!

C
✖️✖️✖️

 


 

THE ETTA LOVES TEAM

JEN FULLER – FOUNDER

Founder of Etta Loves and mum to Etta and her little sister Uma. I started this business to give parents the gift of calm and babies pure wonder through our sensory patterns. I want to make everyday moments easier, calmer and super sensory.

LAURA – ORTHOPTIST

Mum to Sophie and Thomas, Laura has 20 years’ experience as an early years orthoptist (or specialist in children’s vision development to you and me). She has provided in-depth knowledge of the first 12 months of a child’s visual development, to ensure that every pattern, colour and scale we produce is led by science to delivery the sensory magic.

SHRUTI – DESIGNER

Jen met Shruti through NCT. Shruti is a phenomenal designer. She’s the super stylish one in the group, whose baby Kiran looked effortlessly cool since day dot. Once Jen and Shruti agree on the theme and style of a new pattern, she uses Laura’s expert input to create the stunning designs.

SAMIA

Samia has a wealth of experience in the children’s wear market, so brings her unique knowledge to the team to help grow and drive the brand forward. She is also critical in helping Jen make product decisions and giving the confidence to reach for the stars

THE ETTA LOVES STORY

Sat on my sofa with a heap of mucky muslins by my side, I realised that 4-week old little Etta was staring at my top. It was the first thing I’d noticed her actively trying to focus on and unsurprisingly it was a simple black and white pattern.

After a month of trying to rotate black and white clothing (which got both difficult and boring) this got me thinking; why aren’t the most seen items by babies designed to stimulate them and capture their attention? And why wouldn’t you use medical knowledge of babies’ visual development to make them the best that they could be at doing this? And while you’re at it they should be stylish.

Etta Loves was created to turn everyday essentials into sensory sensations, by using the science of what babies can and can’t see to create clever and stunning patterns. The result is that babies are mesmerised and supported in their visual and cognitive development, whilst parents benefit from a priceless moment of calm.

 

*Some words taken directly from EttaLoves.com to ensure information delivered is correct.

For clarity, I was kindly #gifted all products that are highlighted in this post above, by ETTA LOVES.

This is not a sponsored, paid post or an ad and I was not obliged to write this blog post or link back to the ETTA LOVES website. I only shout about items that I genuinely believe in, so be safe in the knowledge that I’m in love ETTA LOVES as much as Edie is!

 

Another one of ‘those’ blog posts…

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Yes, I am sorry. But this is another one of ‘those’ blog posts where I apologise for not writing for so long.

Life – as I always say – has taken over! I work more or less full time right now. Which is great for exercising my brain. But my god, do I miss my little boy. Needs must however, and the work is fun, engaging and what I’m passionate about. So it’s not dull in the slightest! I’m very lucky that I can work from my own office space at home, so I know Eli isn’t too far away. And the best thing? I know I can wear my onesie to the office, if I feel so inclined! But yes, it’s been pretty full on…

So much has happened in the past few months. We were discharged from the consultant who looks after Eli’s Torticollis back in May – due to their being no treatment, cure or support. We will self-refer should our situation change. But right now, *touch wood*, things are working as they should be. We also saw our consultant who looks after Eli’s Talipes on the same day. We will go back for a review in around November/December time. But overall, he was over the moon with Eli’s progress, as are we! We certainly have a very fast little runner in Eli. Well, he is an Olympic baby afterall!

Just this week we have started the 5:2 diet – which I hope to document through my blog and my Instagram (click here to follow me, @JudyPink!). Yesterday was my first fast day, (I’ll write a separate blog on this), and I survived!

I’m sure a whole lot of other stuff has happened inbetween (like Mother’s Day, Easter, failing 3 driving tests, Tonsillitis, being asked to be a bridesmaid, meeting Iggle Piggle, turning 28, Father’s Day… oh and seeing One Direction!) So I’m sorry I won’t be catching up on that stuff – probably for the best. BUT I do promise to try and spend a little bit more time on my blog again. I do miss my writing and documenting Eli’s progress and lovely outfits that he has 🙂 (Plus it means that Mr Memoirs can play on his PS4 at the same time! 😉 )

For now, I bid you a pleasant day!
MM.

#ThisIsMyChild Talipes and Torticollis | MR ELI WALKS!

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I have been waiting to write this blog post for SO SO LONG.

Mr Eli was diagnosed with Bilateral Talipes when he was 25 weeks old, in utero. We were told it would be mild when he was born. Granted, it didn’t look anywhere near as bad as we were expecting when he was born – and there was a lot of flexibility in his feet, which was good news.

8 weeks into doing stretching exercises at home, we hit a brick wall (I was also told at Eli’s 8 week check by the top GP in the practice that his feet would “correct themselves”). I finally got a physio appointment for Eli when he was 10 weeks old. Roll onto 13 weeks and we were seeing our Consultant, who said Eli would be following the Ponseti Method of treatment for Talipes – plaster casts followed by wearing Ponseti Boots & Bar. Eli had plaster casts for 6 weeks, up to the top of his thighs. It was quite frankly, horrendous. He was old enough to understand a bedtime routine with his lovely soothing bath. He was old enough to want to roll over. We were without these things for 6 weeks and of course, without any sleep too! In December 2012 Eli began wearing his Ponseti Boots & Bar, 23 hours a day. For the one hour he had the boots off, he had a ‘run around’ and his lovely bath. He wore the boots & bar full time for 6 months, going down to just wearing them at nighttime (12 hours) after our 6 month appointment. At 10 months old Eli started cruising the furniture (and anything else he could get his hands on!). Since then, Eli has had several good reviews with his Consultant. The last appointment we had in November 2013 was amazing – his feet look just like a ‘normal’ child’s’ feet. Our Consultant was so happy, he almost packed the boots & bar in for good – but we have to be sensible, there’s always a chance of relapse and we didn’t want Eli to stop wearing the boots & bar too soon; after all, most Talipes children wear the boots & bar until they reach 5 years old.

At 16 months, Eli took his first few steps between Mr Memoirs and me – aided by the bribe of a dummy (which he only has for bed).

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At 17 months old he’s walking, completely unaided and with a degree of good balance (he’s currently having a bout of Torticollis at the minute, so he’s sloping off to the one side). When his Torticollis sorts itself out in the next few days we’re very confident that Eli will be dashing everywhere. Of course, the Torticollis does coincide with the fact he has reached yet another milestone. (He also has Chickenpox, to boot! That’s another blog post in itself).

We’ve had this lots before, but I know most people would be saying:

“Keep him crawling as long as you can, you don’t want him running about yet – you’ll be shattered!”

“Hope you’re ready for all that running about!” 

“Oh god, now the fun really starts.” (AS IF it’s a negative thing?!).

“You’ll regret saying you want a walker!”

But my goodness me, we’ve wanted nothing more than to be worn out after running around with our little boy. I don’t think people realise sometimes – and I understand that people do speak without thinking too. This still feels very surreal to us. An absolutely amazing achievement for our darling boy – we’re so proud we could BURST.

Without the treatment that Eli has gone through, he would not be walking – full stop. All the tears, endless sleepless nights, stress and strain was all completely worth it.

There is literally nothing more wonderful in life than seeing your child grow and develop. And our brave little soldier is growing and developing just perfectly.

MAGIC.

MM.

 

Welcome to 2014.

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Ok, so, I’m massively late with the old HAPPY NEW YEAR post… in fact, I’ve been really rather absent from my blog over the past few weeks. Work and life in general has certainly taken over. But alas, better late than never – HAPPY NEW YEAR TO YOU ALL!

Today is Monday, it’s coming up to lunchtime and Eli is fast asleep (still…hmmm). So I thought I best check in and say WELCOME TO 2014. I’m sincerely hoping to keep on top of my blog this year, I did quite well last year – but as I say, my posts did tail off with life becoming mad-hectic!

I’m looking very forward to the year ahead – hoping for lots of adventures and memories made with my family and friends.

2014 so far has not been uneventful – and we’re only on Day 6 of the year.

Mr Eli went into hospital on Thursday 2nd January for a MRI brain scan to further investigate his Torticollis (following the horrid attack he had on 7th November 2013) – for which he had to go under anaesthetic for. Truly just the worst experience; and biggest challenge of our parenting lives to date. Just horrendous, and so so distressing for us. However, he did come through the other side ok and came back to his jolly-self relatively quickly. We’re now awaiting the results, this should take 4 weeks. When we’ve got the all clear (which we’re certain we will), I will then write a dedicated post on the processes we faced on the 2nd January and the outcome of course.

Not wanting to leave this first post of 2014 on a sombre note – Mr Eli took 4 steps between OH and I last night. We pretty much screamed the house down. Eli has been confident on his feet since around 11 months old, cruising around the furniture and between gaps at lightening speed. Eli does however, travel at the speed of actual light on all fours – always has. This has, we feel, come at a detriment to the development of his walking. Talipes aside, Eli is STILL well within the ‘normal’ remit of when children do hit the walking unaided milestone. We think he’s just being a little bit casual with it due to the fact he travels so so quickly when crawling instead. Hopefully over the next few weeks Eli will gain that much needed confidence and quite literally, ‘find his feet’.

Wishing you all well in 2014.

MM.

 

 

 

UPDATE | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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Last week wasn’t a very nice week, at all.

Mr Eli has been suffering with his Torticollis more frequently since I wrote my epicly long blog post, Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis. We haven’t had any attacks with the accompanying sickness and drowsiness since Eli’s 1st birthday; it has been just his head tilting to his shoulder. He’s been teething quite badly (well, he’s been teething constantly since he was 8 weeks old…). His Torticollis tends to flare up more when he’s teething – or when he reaches milestones. We were so hoping he’d started to outgrow the attacks.

His neck had been tilting to the left side since 24th October – coincidentally, OH’s birthday. It finally straightened up, to a perfect mid-line by Friday 1st November, 8 days later. Then on Tuesday 5th November Eli’s head started to gradually tilt towards the right. He had been unaffected for just 3 days. By the evening of Wednesday 6th November, poor Eli looked horrendously uncomfortable and was very clingy. We had a physio appointment at the local hospital at 11am on Thursday 7th November. This would be the first time our physio had seen him so badly affected with the Torticollis.

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Eating an apple after breakfast on Wednesday 6th November.

On Thursday 7th November, Eli woke up crying. He never wakes up crying… apart from when he’s been severely affected with his Torticollis, and we’re due an attack.

I struggled to get Eli into his high chair, he was so off balanced and crying in discomfort. He barely ate any breakfast. His head was completely touching his shoulder.

I got us both ready for the hospital appointment; we walked the 25 minute journey and Eli was fast asleep as soon as he went into his pram. He NEVER sleeps in his pram when we’re out and about now. He’s too nosey.

When we got to the hospital he started to wake up with the lights and noises. As he gradually came round, I noticed his eyes weren’t quite right. They looked misaligned. I pulled him out of his pram for a cuddle and closer look. And as I did so, he projectile vomited. EVERYWHERE. He was having the first full blown Torticollis attack in 3 months. His eyes rolled back and he passed out into my arms. There were such lovely people in the waiting room, rallying round with tissues and water for us both! It’s so scary and upsetting when it happens. This is the first time it’s happened outside of our house too.

I then went into the physio room. Our physio was in a state of shock I think – she’s always seen him when he’s been unaffected and his usual jolly self. She admitted she never realised the extent of the attacks and began noting down everything that had happened, so she could write to the big hospital in Chelmsford for a referral to a specialist.

We know that there is no treatment or cure for Torticollis. It is something that Eli must grow out of, and should grow out of by the time he is 3. But I would still like him to be seen by a specialist.

He was sick a further 3 times in the physio room. The physio took a video of how the Torticollis was affecting him during his attacks; so we can use it as reference for any further appointments, where hopefully Eli will not be affected. OH and I watched this back on Thursday night together and it was very, very distressing to watch back.

Eli continued to be sick all of the day on Thursday – something that doesn’t usually happen. Eli had changed through 6 tops, 2 pairs of trousers and I used 12 muslins and 4 tea towels to clean things up. It was too chilly to not have his clothes on. I kept him nil by mouth… aside from syringing water into his mouth as he just couldn’t drink from anything else. He slept on me in-between the sickness. As he snored in my arms, I sobbed. I don’t think there’s anything that quite prepares you for feeling so helpless as a parent – not being able to make Eli better is just the WORST feeling in the entire world. For his last nap that day, I put him into his pram – where he slept for 90s mins.

When Eli woke up, he was chatting away. I pulled him up and out of his pram for a cuddle. He wanted to be down and straight away grabbed his beaker! He was almost back to his usual jolly self again – aside from his head was still tilting to the right, just not as severely; but it was a huge improvement on how it had been when he woke up that morning. It was almost as though the earlier part of the day hadn’t happened.

He ate toast, a banana and some biscuits for his tea that evening, along with 2 beakers of water. He went to bed normally with his bottle of milk.

He was clingy on Friday 8th November and looked very uncomfortable still. His balance was still affected by the Torticollis so he was very clumsy and couldn’t sit upright on the floor or in his highchair, choosing to slant to the affected side.

Fast forward a few days to today. Eli is much better now, sitting comfortably and back to his usual routine. His head is more or less perfectly straight in the mid-line again. After previous attacks, his head has straightened back during the course of the day. So this has been a lengthy process, this time.

Eli has an appointment to review his Talipes at the end of this month – which we’re so looking forward to as his feet are remarkable now. His referral regarding his Torticollis will be at the beginning of December, at the same hospital.

If you or your child has been affected by Torticollis, or indeed Talipes, please do get in touch. I’d really like to hear your experiences with both – Torticollis a rare condition and there is not a lot of information out there.

MM.

GUEST POST: Wriggly Rascals | Best toy’s for babies.

Click here to head to WrigglyRascals.com

The lovely ladies from Wriggly Rascals asked if I’d do another guest post for their wonderful website, and of course I said yes! This time we’re looking at the best toy’s for babies. Christmas is coming up, so take a look at the full blog post, here: Best Toy’s for babies.

And don’t forget to sign up to the Wriggly Rascals website to join the conversation!

MM.

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If you need any parenting reassurance, ask @wrigglyrascals for help. www.wrigglyrascals.com

@wrigglyrascals is a new community to help newmums, join in. www.wrigglyrascals.com
About Wriggly Rascals
Wriggly Rascals was set up by Shona Motherwell, a frustrated mum of twins Mhairi and Archie to get mums together to share pregnancy, baby and toddler advice via quick surveys to get the facts about what other mums do. Our mums pass on loads of great tips to mums who have asked for help. If you would like some advice, get in touch at www.wrigglyrascals.com

Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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I have been looking, with interest, at some of the posts that have been published during the This Is My Child awareness campaign via Mumsnet. We live our life day-to-day as normal. Because THIS is our ‘normal’. Eli is our first born and we know no different. But I suppose, our story is different. I’ve not really highlighted Eli’s Talipes or (recently diagnosed) Benign Paroxysmal Torticollis on my blog before. I have mentioned in a few posts about his Talipes. But nothing in depth. So here it goes!

Everything stems back to when I was pregnant. I had a very tough first few weeks, after a bleed we were told that the pregnancy might not be viable at a 5 week early-pregnancy scan and told to return in 3 weeks time; where we saw the most amazing and incredibly tiny flickering – a heartbeat! PHEW!

We so looked forward to that 12 week scan. The sonographer was lovely, but seemed concerned. Eli was jumping ALL OVER, I thought she was just having difficulty measuring up dates because he wouldn’t keep still. She then turned the machines off and said she was sorry to tell us that our bundle of joy had a “nuchal fold measurement on the cusp of high”. The exact measurement was 3.5 mm. This was indeed the cusp before they offer you further investigation. We needed to know. We were informed that a high NT measurement could mean a multitude of conditions, including Down Syndrome. This was heartbreaking. This baby was so wanted – we needed to know what we were facing. We had ‘counselling’ and I had bloods taken. The nurse then called University College Hospital London and told us they had a referral for the the very next day. We were told we could have a more in-depth scan at the Fetal Medicine Unit; where we would also be offered the option of CVS – which would indeed confirm any anomalies, through a horrendously invasive procedure. After the lengthy scan with several specialists, we were advised that we could either go ahead with CVS there and then, or wait… It had been picked up that there was a lack of nasal bone; another marker for Down Syndrome. Our world shattered. HOW WOULD WE COPE?! We went ahead with the CVS there and then. It was like a whirlwind.

The procedure was horrible. Just horrible. I had soreness and tenderness for a few days after. Not to mention the constant worry and stress of the risk of miscarriage. It was a very very hard time for both of us, waiting for the results. 3 weeks passed and we received a letter confirming that everything was spot on with Eli. He didn’t have any of the common anomalies that CVS tests for.  We were over the moon to say the very least. PHEW!

But this was not the end of our hospital visits. To cut the (very!) long story short – we had a total of 9 scans. Because of the NT measurement, Eli’s heart, organs and growth was routinely monitored. He developed fantastically. At the 25 week scan, it was found our baby had a degree of Bilateral Talipes.  But it was “extremely mild”. PHEW! It was corrective. We were happy. In the grand scheme of things.

Fast forward to almost 42 weeks pregnant, I was just a HUGE pregnant ball; unable to move, pretty much. That little boy was so so squashed up inside my petite 5 ft nothing 1″ frame. I was eventually induced. Which, shock horror was just the WORST thing ever. (Incidentally, I would never recommend an induction. Just bloody wait till the baby wants to arrive!). After 30 hours of labour, Eli was pulled out of me in an emergency situation using Ventouse. He was out, safe, at long last. PHEW.

Or so we thought.

We both immediately looked at his feets. Yes, they turned in, but probably weren’t half as badly affected as we were imagining.

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Again, fast forward to 8 weeks old. We’d not been seen by a specialist. Not even had a referral. At Eli’s 8 week check the GP who was head of the surgery, told me that his feet would ‘correct themselves when he learns to walk’. I wasn’t happy with that. We’d been massaging, manipulating and exercising Eli’s feets since birth, but at about 8-10 weeks had hit that brick wall. They weren’t getting any better. With the encouragement from @BexandMic on Twitter, who’s beautiful son Hugo was also born with Talipes, I kicked off at the Health Visitor. I got a referral to see a Physio about his feet. At the very first appointment our lovely Physio, Jenny, pointed out that Eli’s head was tilted to the left. I couldn’t understand what she was referring to, he just couldn’t hold his head up yet… She explained it looked like he had something called Torticollis. Possibly from being so squashed up during pregnancy, possibly from the trauma of being pulled out so quickly. I was given exercises to do with his neck regularly, after a week, his head was straight! I still to this day can’t believe we didn’t notice it. Looking back at photos, his neck is completely to his shoulder on every single one. There was still tightness after a few sessions with the Physio and more manipulation on our part. We eventually saw our consultant, Mr Tuite at Broomfield Hospital on 31st October. Eli was almost 14 weeks old. Worryingly, most children with Talipes begin their treatment shortly after birth.

We were devastated when Mr Tuite said that Eli would in fact require plaster casts to begin the correction process. Mr Eli was pretty mobile at 14 weeks old! He was used to his bedtime routine and his bath. We knew the casts were for the best though. We had to do it. We were told Eli had really mild Talipes, again, so would require 2 weeks worth of casts…

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6 weeks later Eli was still in casts. It was incredibly tough.

Being the age Eli was, we got a lot of stares. You could just tell people must have thought he’d been dropped and had broken legs. When people asked what had happened, they didn’t understand. They made me feel like the story I was telling was a pack of lies. It was just a horrendous feeling. We did however have luck on our side, in the fact that it was Winter when Eli was in casts. It wasn’t hot, he would have been so much more uncomfortable if it was! He spent a lot of time in long socks and snow suits! In hindsight, I wish I’d been more confident with his casts. Embraced them more. Decorated them, even. The casts did not hinder Eli in any way, he was rolling over in them and they were SO heavy and awkward. He kicked his legs up and down and bashed the casts to bits! He was so brave – he didn’t sleep at night, but hey, he doesn’t now either!

The Torticollis would occur when Eli seemed to meet new milestones. It wasn’t constant. It was irregular. His neck tilted for around a week when he started rolling, sitting up and crawling. But also seemed to coincide with teething too. We continued to repeat the exercises and manipulations.

Mid-December 2012 and Eli went into Ponseti Boots and Bars 23 hours a day. He got an hour “free” where we gave him his bath and he had a kick about afterwards. This was a huge relief. We could get back to normality somewhat. We hadn’t even thought about the visual  impact the Boots and Bar contraption would have on other people. After our journey, we had just accepted what we had to go through.

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In the coming weeks, I had an array of comments and conversations about his B & B’s.

“They’re funky boots” “Thanks! They’re to straighten his feet” “ohh… I thought they were just fashion accessories! I’m so sorry. Didn’t realise your son was ill”. “He’s not ill?”

“Does he have broken legs?”

“Does he have broken hips?”

“Is that a contraption to stop him wriggling away from you?”

“Do they make him taller?” “WHAT?!”

 Etc. Etc. Etc.

We had a lot of nasty glances. A lot of nasty sniggers. I’m REALLY not thick-skinned at all. Like I say, I’d completely accepted that this was his treatment. It did not bother me. This was normal to us now – this was part of our every day lives! Until someone pointed his feet out, or made that eye contact, that’s when I’d think. Then it would upset me. But, I needed to get through that for him. It was in his very best interests. He wouldn’t be able to walk without it! Had we just been too blasé about the entire thing?!

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Eli wore his B & B’s for 23 hours a day, for 6 months. Most children wear them for 23 hours a day for just 3 months, then hours are dropped throughout the day until they eventually just wear them at night time. To our surprise, Eli went straight down to just nights at our next review. This was just insanely cool. It was just magical seeing him so free. His feet look PERFECT! We’re so so pleased. We’re also convinced though, that Eli struggles at night time because of his boots and bar. He’s free all day long, then come bedtime he’s confined. He can’t move with ease. It’s uncomfortable and heavy. He will sleep for 2-4 hours at a time. Then I will need to settle him. There has been nights where I have taken his bar or both his boots and bar off, and he’s slept soundly. I’m sacrificing my sleep so he can walk. Easy decision. I do worry it’s not good for him, the broken sleep. But what can I do?!

At 10 months, he started pulling himself up and cruising around his play pen. I can’t tell you how proud we both were. It was just so special; still is! SUPER PROUD PARENTS!

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Not long after Eli started standing up, there was an afternoon where Eli was particularly miserable. Anyone who knows Eli knows he is a jolly boy. Barely cries. He’s only ever grumpy in the night! He was super grizzly. I put it down to teething. Then he projectile vomited. His neck was tilted. He went floppy in my arms, the colour drained from usual his rosy cheeks, his eyes rolled back and he seemed to pass out. I was beside myself. Naturally. I rang my OH who calmed me down. I’ve never been so frightened, it was seriously scary. This had happened previously, but I wasn’t there. Another bout of sickness and drowsiness and I let Eli sleep. We then recalled another time when he projectile vomited (he was never a sicky baby so could recall these occasions clearly). Within in a few hours, his neck was back to its mid-line straight position. Without any manipulation. We worked out that they all coincided with his neck tilting. Could the Torticollis be causing this?

I took Eli to the doctors – who were, USELESS. He googled Torticollis and told me what Wikipedia says… He said he’d seen just one other case of this and to go back to the Physio if I was concerned. Hell yeah I was concerned. We didn’t know if it was underlining with something else. I went to Portugal for 4 days. Eli had another bout of the sickness and drowsiness with the Torticollis. Again, his neck had straightened up itself by the next morning. It was all definitely linked.

I went to the Physio again after my trip. She was lovely, she explained that the condition was Benign Paroxysmal Torticollis. This variation of Torticollis comes in waves, or ‘attacks’. The attacks can last anywhere from minutes, to hours, to days and is accompanied by vomiting, pallorataxia, agitation, infantile migraine, unsteadiness of gait upon learning to walk, general malaise and nystagmus. All sounded about right. The periods in which the child’s head is tilted and other symptoms appear can last anywhere from a few minutes to a few days, with a frequency of anywhere from two per year to two per month. Looking back at the frequency of the attacks, we’ve found they seem to happen at the beginning of the month – every month, so far. It seems to surround teething, more than milestones now.

So now we know.

But what to do about it. Well, we’ve been told my several doctors and the physio (as well as Google) that Benign Paroxysmal Torticollis is something that Eli will grow out of, probably by school age.

His most recent attack was on 6th August, his 1st birthday. His neck didn’t straighten up quickly this time though, it’s taken a good 10 days this time.

The additional care that Eli requires surrounds his Talipes and his Benign Paroxysmal Torticollis. We don’t know when he’ll be out of his boots and bar, could be at his next appointment (28th August), could be when he’s 3 or 4 or 5. We also worry about relapse; there’s also cases where the feet have been over-corrected so they point outwards. We also do not know when he will have another attack of Benign Paroxysmal Torticollis, or the severity. I have to carry dozens of muslins with me, just incase he projectile vomits. I often worry it’s just going to come out of nowhere. I also worry about when he goes to nursery – are there people who are going to be able to look after him if he has an attack? Luckily, at the minute, I can work from home. But he will need to go into nursery sooner rather than later, for him to be able to socialise with children his age, more than anything else.

We currently do not receive any help, support or funding. I do know of people who have been granted Disability Living Allowance for their children with Talipes.

I’d absolutely LOVE to hear from others who have experiences with Talipes or Benign Paroxysmal Torticollis. The latter being quite rare, so not heard or seen anyone else who has had a child with BPT.

Would we have had it any other way? Ideally, I’d love to have Eli without all the discomfort and challenges he’s faced – of course I would. But my goodness me, he’s a brave boy. He’s SUCH a character. And frankly, it’s made me and my OH better people. We’re stronger. We understand.

Worry, worry worry – isn’t that what all parents do?

MM.

Oh hello, it’s been a while…

Merry Christmas and Happy New Year!

I know, I know. It’s been a canny while. Life has been pretty hectic to say the very least.

SO MUCH has happened since I last properly updated.

– Mr Eli has been in and out of plaster casts for his Talipes treatment. He’s currently in full time B & B (Boots and Bars). I’ll do a proper update on this too.

– We’ve had our first Christmas together, which was AMAZING.

– New Year came and went without a hitch.

– Started feeding Eli proper, actual, proper food! Which he LOVES.

– We’ve been here, there and everywhere visiting friends and family.

– I finally overcome some very difficult decisions and feel a ton has been lifted from my shoulders… albeit, it has been replaced with a wee bit of stress. But I’ll reveal all later! It’s all a bit hush hush right now.

– I’ve FINALLY started driving lessons! It’s only taken me 10 years.

Think that’s all for now. Will catch up again VERY soon!

MM.

Silent Sunday: 25th November 2012.

MM.
Love All Blogs

Do you have an early teether?: Sophie La Girafe.

Mr Eli enjoying his Sophie; he particularly enjoys her head.

Poor Mr Eli has had it rough the past few weeks! Just after his 8 week injections he was extremely grizzly, crying A LOT despite the usual check list all being checked off! It was 4 days after the immunisations and he was really chewing on his little hands… more so than in the “oh I have hands!” way. I switched the big light on in our bedroom and noticed he had rosy cheeks. “OH NO!” I yelled out to my OH who was downstairs. OH raced up the stairs “HE’S TEETHING! ALREADY!”.

We managed to prise Mr Eli’s little jaw open and saw that indeed, on the bottom left, there was a REAL toothy peg. An actual tooth sitting there, ready to cut through the gum. At just 8 weeks old. Poor little mite 🙁

Obviously, at 8 weeks old, Eli was too young to understand the concept of a teether… or chewing for comfort… or even be able to grasp onto a teether for that case. We did try a few that had been purchased for us from friends and family while I was pregnant. Eli didn’t like any of them. And we REALLY did persevere.

We had the Sophie La Girafe large teether on our list ready to purchase when Eli was around 5 months old. Which is when we anticipated he’d NEED one! After looking around I saw that you could buy a small version, that was really soft and has two rings for easy gripping action… or in Eli’s case, more for him to chew and lick! At 10 weeks old Eli had mastered both grasp and chew! I firmly believe I have Sophie to thank for encouraging Eli’s gripping development!

I think the Sophie La Girafe teether is fast becoming Eli’s favourite toy. He literally cannot go anywhere without her! Eli particularly enjoys chewing really hard onto Sophie’s head (harsh, I know), which seems to give him great relief. This teether, however,  is not for the faint hearted as it makes the most almighty squeaking noise as he chomps down! Massive massive cringe (think nails down a chalk board, touching wet terracota, wet cotton wool etc).

I massively recommend this Sophie La Girafe teether to everyone I meet, best £7 I’ve ever spent! It would make a really nice stocking filler this Christmas too!

Buy Sophie La Girafe teether right now from JohnLewis.com

 

MM.