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Kids’ Footwear | New Balance Trainers / Sneakers / Sneaks.

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A few years ago we lived and worked in East London. We saw a lot of trends, styles, brands, come and go. But it was practically overnight that I spotted guys wearing NEW BALANCE trainers; and I’m not gonna lie, I was like “how are they even making a come back?!”. As a kid, New Balance were always a trainer that I saw as being fit for purpose, like for playing Tennis in or something else sporty!

A few more weeks went by, seeing more and more colours of sneaks popping up; and then I saw a pair of Bordeaux Red (my favourite wine no less) New Balance 574’s in the window of Albam, Spitalfields. I fell in love. I wanted them for myself, even though they were Men’s. I knew right then that my opinion on New Balance had been overturned, forever. And rightly so.

Fast forward 5 years and my almost 4 year old is loving life in his very own pair of All-Black 574’s.

For those who don’t perhaps know, Eli was born with several medical conditions – Talipes, Torticollis and Hypermobility. From before he was even born, Eli endured some pretty intense tests, scans, physio and corrective treatments (Ponseti method). He came out the other side meeting the milestones that all his pals met, at the same age (and some he hit even sooner than anticipated!). While, on the outset Eli looks ‘fixed’, you can’t help but notice just how clumsy he can be, how off-balance he can be and how crazily flexible he can be! He’s super-active and he never did learn to *just* walk – he quite literally got up one day and RAN. Eli also doesn’t sleep well – never has – since being a newborn. We sometimes excuse his lack of sleep with, “he just doesn’t want to miss out”, “he’s being a typical toddler”. But the older he’s getting, the more convinced we are that it could well be his conditions waking him and giving him jip. He’s commented recently on his feet and knee’s being sore. We were told that it’s likely he could grow up with Migraines and will get early onset Arthritis due to the flexibility of his joints. (We have his next check-up with his consultant in June).

When Eli did start running walking we struggled to find suitable footwear that supported him fully, that would aid against relapse and would keep him upright. With this all in mind, I wanted to highlight how good these trainers are for his feet; and his balance (no pun intended). They’re a great fit for him, just narrow enough. They tie quite tightly, with no rubbing at any points. They keep him more sturdy than any other footwear he has, yet they’re really lightweight. They’ve worn exceptionally well and actually still look brand new. Eli has commented that they’re “my comfy adventure shoes”. And I think that says it all! He’s really happy with them – he runs like the wind in them – and looks pretty cool too.

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I ordered Eli’s 574’s from OFFICE and had them delivered within the week to Berlin. They have a massive range of Kids’ New Balance styles, in loads of wicked colours. There are also velcro versions for smaller feet… or for feet that love untying those shoe laces! You can shop the full range online here.

 

MM.

 

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Another one of ‘those’ blog posts…

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Yes, I am sorry. But this is another one of ‘those’ blog posts where I apologise for not writing for so long.

Life – as I always say – has taken over! I work more or less full time right now. Which is great for exercising my brain. But my god, do I miss my little boy. Needs must however, and the work is fun, engaging and what I’m passionate about. So it’s not dull in the slightest! I’m very lucky that I can work from my own office space at home, so I know Eli isn’t too far away. And the best thing? I know I can wear my onesie to the office, if I feel so inclined! But yes, it’s been pretty full on…

So much has happened in the past few months. We were discharged from the consultant who looks after Eli’s Torticollis back in May – due to their being no treatment, cure or support. We will self-refer should our situation change. But right now, *touch wood*, things are working as they should be. We also saw our consultant who looks after Eli’s Talipes on the same day. We will go back for a review in around November/December time. But overall, he was over the moon with Eli’s progress, as are we! We certainly have a very fast little runner in Eli. Well, he is an Olympic baby afterall!

Just this week we have started the 5:2 diet – which I hope to document through my blog and my Instagram (click here to follow me, @JudyPink!). Yesterday was my first fast day, (I’ll write a separate blog on this), and I survived!

I’m sure a whole lot of other stuff has happened inbetween (like Mother’s Day, Easter, failing 3 driving tests, Tonsillitis, being asked to be a bridesmaid, meeting Iggle Piggle, turning 28, Father’s Day… oh and seeing One Direction!) So I’m sorry I won’t be catching up on that stuff – probably for the best. BUT I do promise to try and spend a little bit more time on my blog again. I do miss my writing and documenting Eli’s progress and lovely outfits that he has 🙂 (Plus it means that Mr Memoirs can play on his PS4 at the same time! 😉 )

For now, I bid you a pleasant day!
MM.

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#ThisIsMyChild Talipes and Torticollis | MR ELI WALKS!

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I have been waiting to write this blog post for SO SO LONG.

Mr Eli was diagnosed with Bilateral Talipes when he was 25 weeks old, in utero. We were told it would be mild when he was born. Granted, it didn’t look anywhere near as bad as we were expecting when he was born – and there was a lot of flexibility in his feet, which was good news.

8 weeks into doing stretching exercises at home, we hit a brick wall (I was also told at Eli’s 8 week check by the top GP in the practice that his feet would “correct themselves”). I finally got a physio appointment for Eli when he was 10 weeks old. Roll onto 13 weeks and we were seeing our Consultant, who said Eli would be following the Ponseti Method of treatment for Talipes – plaster casts followed by wearing Ponseti Boots & Bar. Eli had plaster casts for 6 weeks, up to the top of his thighs. It was quite frankly, horrendous. He was old enough to understand a bedtime routine with his lovely soothing bath. He was old enough to want to roll over. We were without these things for 6 weeks and of course, without any sleep too! In December 2012 Eli began wearing his Ponseti Boots & Bar, 23 hours a day. For the one hour he had the boots off, he had a ‘run around’ and his lovely bath. He wore the boots & bar full time for 6 months, going down to just wearing them at nighttime (12 hours) after our 6 month appointment. At 10 months old Eli started cruising the furniture (and anything else he could get his hands on!). Since then, Eli has had several good reviews with his Consultant. The last appointment we had in November 2013 was amazing – his feet look just like a ‘normal’ child’s’ feet. Our Consultant was so happy, he almost packed the boots & bar in for good – but we have to be sensible, there’s always a chance of relapse and we didn’t want Eli to stop wearing the boots & bar too soon; after all, most Talipes children wear the boots & bar until they reach 5 years old.

At 16 months, Eli took his first few steps between Mr Memoirs and me – aided by the bribe of a dummy (which he only has for bed).

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At 17 months old he’s walking, completely unaided and with a degree of good balance (he’s currently having a bout of Torticollis at the minute, so he’s sloping off to the one side). When his Torticollis sorts itself out in the next few days we’re very confident that Eli will be dashing everywhere. Of course, the Torticollis does coincide with the fact he has reached yet another milestone. (He also has Chickenpox, to boot! That’s another blog post in itself).

We’ve had this lots before, but I know most people would be saying:

“Keep him crawling as long as you can, you don’t want him running about yet – you’ll be shattered!”

“Hope you’re ready for all that running about!” 

“Oh god, now the fun really starts.” (AS IF it’s a negative thing?!).

“You’ll regret saying you want a walker!”

But my goodness me, we’ve wanted nothing more than to be worn out after running around with our little boy. I don’t think people realise sometimes – and I understand that people do speak without thinking too. This still feels very surreal to us. An absolutely amazing achievement for our darling boy – we’re so proud we could BURST.

Without the treatment that Eli has gone through, he would not be walking – full stop. All the tears, endless sleepless nights, stress and strain was all completely worth it.

There is literally nothing more wonderful in life than seeing your child grow and develop. And our brave little soldier is growing and developing just perfectly.

MAGIC.

MM.

 

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Welcome to 2014.

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Ok, so, I’m massively late with the old HAPPY NEW YEAR post… in fact, I’ve been really rather absent from my blog over the past few weeks. Work and life in general has certainly taken over. But alas, better late than never – HAPPY NEW YEAR TO YOU ALL!

Today is Monday, it’s coming up to lunchtime and Eli is fast asleep (still…hmmm). So I thought I best check in and say WELCOME TO 2014. I’m sincerely hoping to keep on top of my blog this year, I did quite well last year – but as I say, my posts did tail off with life becoming mad-hectic!

I’m looking very forward to the year ahead – hoping for lots of adventures and memories made with my family and friends.

2014 so far has not been uneventful – and we’re only on Day 6 of the year.

Mr Eli went into hospital on Thursday 2nd January for a MRI brain scan to further investigate his Torticollis (following the horrid attack he had on 7th November 2013) – for which he had to go under anaesthetic for. Truly just the worst experience; and biggest challenge of our parenting lives to date. Just horrendous, and so so distressing for us. However, he did come through the other side ok and came back to his jolly-self relatively quickly. We’re now awaiting the results, this should take 4 weeks. When we’ve got the all clear (which we’re certain we will), I will then write a dedicated post on the processes we faced on the 2nd January and the outcome of course.

Not wanting to leave this first post of 2014 on a sombre note – Mr Eli took 4 steps between OH and I last night. We pretty much screamed the house down. Eli has been confident on his feet since around 11 months old, cruising around the furniture and between gaps at lightening speed. Eli does however, travel at the speed of actual light on all fours – always has. This has, we feel, come at a detriment to the development of his walking. Talipes aside, Eli is STILL well within the ‘normal’ remit of when children do hit the walking unaided milestone. We think he’s just being a little bit casual with it due to the fact he travels so so quickly when crawling instead. Hopefully over the next few weeks Eli will gain that much needed confidence and quite literally, ‘find his feet’.

Wishing you all well in 2014.

MM.

 

 

 

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UPDATE | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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Last week wasn’t a very nice week, at all.

Mr Eli has been suffering with his Torticollis more frequently since I wrote my epicly long blog post, Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis. We haven’t had any attacks with the accompanying sickness and drowsiness since Eli’s 1st birthday; it has been just his head tilting to his shoulder. He’s been teething quite badly (well, he’s been teething constantly since he was 8 weeks old…). His Torticollis tends to flare up more when he’s teething – or when he reaches milestones. We were so hoping he’d started to outgrow the attacks.

His neck had been tilting to the left side since 24th October – coincidentally, OH’s birthday. It finally straightened up, to a perfect mid-line by Friday 1st November, 8 days later. Then on Tuesday 5th November Eli’s head started to gradually tilt towards the right. He had been unaffected for just 3 days. By the evening of Wednesday 6th November, poor Eli looked horrendously uncomfortable and was very clingy. We had a physio appointment at the local hospital at 11am on Thursday 7th November. This would be the first time our physio had seen him so badly affected with the Torticollis.

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Eating an apple after breakfast on Wednesday 6th November.

On Thursday 7th November, Eli woke up crying. He never wakes up crying… apart from when he’s been severely affected with his Torticollis, and we’re due an attack.

I struggled to get Eli into his high chair, he was so off balanced and crying in discomfort. He barely ate any breakfast. His head was completely touching his shoulder.

I got us both ready for the hospital appointment; we walked the 25 minute journey and Eli was fast asleep as soon as he went into his pram. He NEVER sleeps in his pram when we’re out and about now. He’s too nosey.

When we got to the hospital he started to wake up with the lights and noises. As he gradually came round, I noticed his eyes weren’t quite right. They looked misaligned. I pulled him out of his pram for a cuddle and closer look. And as I did so, he projectile vomited. EVERYWHERE. He was having the first full blown Torticollis attack in 3 months. His eyes rolled back and he passed out into my arms. There were such lovely people in the waiting room, rallying round with tissues and water for us both! It’s so scary and upsetting when it happens. This is the first time it’s happened outside of our house too.

I then went into the physio room. Our physio was in a state of shock I think – she’s always seen him when he’s been unaffected and his usual jolly self. She admitted she never realised the extent of the attacks and began noting down everything that had happened, so she could write to the big hospital in Chelmsford for a referral to a specialist.

We know that there is no treatment or cure for Torticollis. It is something that Eli must grow out of, and should grow out of by the time he is 3. But I would still like him to be seen by a specialist.

He was sick a further 3 times in the physio room. The physio took a video of how the Torticollis was affecting him during his attacks; so we can use it as reference for any further appointments, where hopefully Eli will not be affected. OH and I watched this back on Thursday night together and it was very, very distressing to watch back.

Eli continued to be sick all of the day on Thursday – something that doesn’t usually happen. Eli had changed through 6 tops, 2 pairs of trousers and I used 12 muslins and 4 tea towels to clean things up. It was too chilly to not have his clothes on. I kept him nil by mouth… aside from syringing water into his mouth as he just couldn’t drink from anything else. He slept on me in-between the sickness. As he snored in my arms, I sobbed. I don’t think there’s anything that quite prepares you for feeling so helpless as a parent – not being able to make Eli better is just the WORST feeling in the entire world. For his last nap that day, I put him into his pram – where he slept for 90s mins.

When Eli woke up, he was chatting away. I pulled him up and out of his pram for a cuddle. He wanted to be down and straight away grabbed his beaker! He was almost back to his usual jolly self again – aside from his head was still tilting to the right, just not as severely; but it was a huge improvement on how it had been when he woke up that morning. It was almost as though the earlier part of the day hadn’t happened.

He ate toast, a banana and some biscuits for his tea that evening, along with 2 beakers of water. He went to bed normally with his bottle of milk.

He was clingy on Friday 8th November and looked very uncomfortable still. His balance was still affected by the Torticollis so he was very clumsy and couldn’t sit upright on the floor or in his highchair, choosing to slant to the affected side.

Fast forward a few days to today. Eli is much better now, sitting comfortably and back to his usual routine. His head is more or less perfectly straight in the mid-line again. After previous attacks, his head has straightened back during the course of the day. So this has been a lengthy process, this time.

Eli has an appointment to review his Talipes at the end of this month – which we’re so looking forward to as his feet are remarkable now. His referral regarding his Torticollis will be at the beginning of December, at the same hospital.

If you or your child has been affected by Torticollis, or indeed Talipes, please do get in touch. I’d really like to hear your experiences with both – Torticollis a rare condition and there is not a lot of information out there.

MM.

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Mr Eli turns ONE!

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This was us, a little after 9:43pm on Monday 6th August 2012. I cannot believe our beautiful baby boy is now ONE! This year has just flown by. Mr Eli has been so so brave throughout all the challenges he’s faced – he’s the happiest little boy, with the cheekiest grin!

To celebrate his birthday yesterday, the three us of took a trip to Colchester Zoo. It was just brilliant. We had the BEST day! Colchester Zoo is just 45 minutes away from where we live; and after a recent trip to a farm we knew animals BIG animals would go down a treat with the birthday boy! He loved seeing the elephants, zebra’s, rhino’s and of course, all of the different types of tortoises! Can’t lie, OH and I enjoyed it thoroughly too. We made lots of “woah” and “ahh” noises throughout the day.

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Just a perfect way to spend the day reminiscing over Eli’s first year on the planet and how this bundle of joy has grown into such a handsome chap.

Happy very FIRST birthday Mr Eli. You’re our absolute world and we love you more than anything.

xxx