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BABY LOSS AWARENESS WEEK 2018 // BREAK THE SILENCE

BREAK THE SILENCE

Baby loss awareness week

9th – 15th October 2018

 

I write this post as tears begin to flood my eyes. Warm, salty tears rolling down my cheeks, streaking the make-up mask I wear daily to keep me feeling/looking/seeming normal. To plaster a happy face over my sad one. This very time last year I was recovering from the ERPC operation that physically ended my miscarriage.

A whole year on, mentally, it’s still very raw, it’s still very fresh, it still very much hurts. A whole year on, I’m still longing for – unashamedly needing to have my arms full with a newborn son or daughter, a brother or sister for Eli. My heart aches. When you lose a child, at any stage, you are left haunted by wonder. Wonder who they might have been. That’s what makes it so hard to move on…

It’s been such a long time since we started trying for our second child – our journey began back in March 2017. And here I am, sat at my laptop around 580 days (thats 19 months, in new money, not that I’m keeping check) later – still wishing, still hoping, still feeling huge pangs of guilt because I’m covertly jealous of women that I spot with a beautiful bump; or those with a new babe in arms. It’s easily taking up the majority of my thinking throughout my day – not to mention rudely interrupting my sleep too. Tell me I’m not the only one who dreams mosts nights about parenting a brand new bebé?!

Never would I have imagined it would be such a long, drawn out process. I’m not just talking about the physical aspect of miscarriage – because that definitely sucks and takes ages to recover from too – but the mental heartbreak.

As I’m sat typing this, many other women, couples, families are also going through it too. Around the world. As I’ve mentioned many times, 1 in 4 of us will go through it at some point. 1 in 4 of you have been there. You too know the physical pain, the emotional pain.

Miscarriage and baby loss does not discriminate, it can happen to anyone. It is not rare. So, I wanted to write a blog post dedicated to you, as today marks the beginning of Baby Loss Awareness Week 2018; which is held annually, globally, to remember those very tiny lives lost in pregnancy and soon after birth. The week will culminate with the annual Wave of Light on Monday 15th October at 7pm. See further details below.

I’m not sure how else to say it – but thank you for all the kindness shown to us over the past year. For listening and sharing.  365 days on, I’m still overwhelmed by the messages and and I’ll never forget it.

I’m an over-sharer by nature, sometimes to my own detriment, but mostly,  apart from this whole blogging process being cathartic for me, I also wanted to share because thats how we learn. We learn from others’ experiences. What I found, was that Pregnancy & Baby Loss was exceptionally un-talked about. It’s 2018 and this is still seen as taboo and very private – is that a British thing? Or is this the opinion people have worldwide? It’s crazy, don’t you think? Not to talk and share openly? To grieve and take time to do so.

In general, I am ridiculously British about things – I’m pretty naive, I’m pretty prudish. I get bashful at the mention of S-E-X. But THIS, this, I NEED to talk about. I also need you to talk out too. SO! Let’s get together to break the silence of miscarriage & baby loss during this, Baby Loss Awareness Month.

I’d like to propose that my blog serves as a platform for you to be able to share with me… and importantly, with others too. If your experience has proven too difficult to talk about openly, I am more than happy to publish stories anonymously. Whatever works for you – just PLEASE talk. Though I’m certainly not known for being concise,  yours does not have to be lengthy – just a few words from the heart to help yourself and others heal. It will definitely be a comfort and support for those reading – whilst also being therapeutic for yourself. Personally? I have found true solace in these online realms. I can’t be the only one?!

You can contact me via the comments below, FB & IG private direct messages or via email: claire[at]clairebriston.com

C
✖️✖️✖️

BABY LOSS AWARENESS WEEK // EVENTS

Charities such as the below also have ways to get involved this week, in support for Baby Loss Awareness Week. Events that (are known) you can join are listed on the Baby Loss Awareness site, here.

Online events

  • 9 October 8 pm Join a webinar in the comfort of your own home: Baby Loss, Miscarriage and Stillbirth. With Dr Raj Rai – Recurrent Miscarriage Clinic, St Mary’s HospitalSign up here
  • 15 October 7 – 7:30 pm Online Wave of Light Group Meditation Further information here

Parliamentary activity & events (invitation only)

England

  • 8-12 October: Display in Upper Waiting Hall in House of Commons, Westminster, on pregnancy and baby loss and the National Bereavement Care Pathway.
  • 9 October: Debate in House of Commons
  • 11 October: Event sponsored by the All Party Parliamentary Group on Baby Loss in the House of Commons to raise awareness of baby loss with MPs, followed by a remembrance service for MPs, peers and parliamentary staff.

Scotland

  • 3 October: Event in Scottish Parliament

Wales

  • 3 October: Debate in Welsh Assembly
  • 10 October: Candle Event sponsored by Mark Drakeford AM at Main Hall, The Pierhead, Cardiff

 

IMPOSSIBLY BRILLIANT HELP & SUPPORT NETWORKS // THERE FOR YOU 24/7

TOMMY’S

1 in 4 parents will have to go through the heartbreak of losing a child during pregnancy or birth. We need your help to stop these tragic deaths. Please join Team Tommy’s and help us find answers and cures.

Losing a baby at any stage of pregnancy is a devastating experience. It is hard to believe that in this day and age, up to one in four women will lose a baby during pregnancy or birth.

Tommy’s exists to change the unacceptable statistics connected to baby loss.

Thanks to the support of our incredible community, our research has lead to a reduced stillbirth rate of 22% in Greater Manchester between 2010 and 2014 and a 23% reduction in premature births in high risk women attending our London clinic during 2014-15.

Learn more about the impact of our work here: http://bit.ly/2we9Cvk#Babyloss

DONATE >> Make a donation to Tommy’s, The Baby Charity.

THE MISCARRIAGE ASSOCIATION

Stories of good care
During Babyloss Awareness Week this year, the 40 participating charities and groups are calling for improved care following the loss of a baby during pregnancy, or during or shortly after birth.

As part of this campaign, we are asking people to share their experiences of good care they have received, perhaps from a midwife, sonographer, friend or colleague. If you would like to get involved, please email a story of less than 150 words to babyloss@sands.org.uk, copying us in on awareness@miscarriageassociation.org.uk.

You can find more details on the Babyloss Awareness Week website.

Wave of light this Monday
Last year we made a special video slideshow using hundreds of candles that lit up our Facebook page in memory of babies lost far too soon. If you’d like yours included this year, please add a note ‘For the video’ when you upload a picture.

While Baby Loss Awareness Week can be a special time of remembering and speaking about loss, we understand that it can also evoke painful memories. If you need to talk, please feel free to call our helpline on on 01924 200 799 (Monday – Friday9 a.m – 4 p.m) or see our website for other ways we offer support.

DONATE >> Make a donation to The Miscarriage Association

BABY LOSS AWARENESS

Share your experience – this could be by telling a friend about Baby Loss Awareness Week, talking about your experience or wearing a Baby Loss Awareness pin badge. You could also use our specially designed social media images on your website, Facebook, Twitter, Instagram, work intranet or noticeboard.

DONATE >> Make a donation to Babyloss Awareness.

SANDS – STILLBIRTH AND NEONATAL DEATH CHARITY

Sands is the stillbirth and neonatal death charity. We operate throughout the UK, supporting anyone affected by the death of a baby, working to improve the care bereaved parents receive, and promoting research to reduce the loss of babies’ lives.

Sands, the stillbirth and neonatal death charity, was founded in 1978 by a small group of bereaved parents who were devastated by the death of their babies, and by the total lack of acknowledgement and understanding of the significance and impact of their loss.

DONATE >> Make a donation to SANDS.

THE LULLABY TRUST

The Lullaby Trust provides emotional support for bereaved families, promotes expert advice on safer baby sleep and raises awareness of sudden infant death.

Working with the NHS, we run a national health-visitor led service for bereaved parents, Care of Next Infant (CONI) programme, which supports families before and after the birth of their new baby.

We are committed to supporting research to understand why so many babies a year die suddenly and unexpectedly in the UK and to find out more about how to prevent these tragic deaths.

The Lullaby Trust operates nationwide across England, Wales and Northern Ireland. We run an information line for parents and professionals (0808 802 6869) and a dedicated line for bereaved families (0808 802 6868). Both are free to call from landlines and mobiles.

We campaign tirelessly, lobbying government to keep sudden infant death on the public health agenda. Since we formed as The Foundation for the Study of Sudden Infant Deaths (FSID) in 1971 we have been pivotal in reducing sudden infant death syndrome (SIDS) by over 80%.

DONATE >> Make a donation to The Lullaby Trust

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BABY LOSS AWARENESS 2018 // MARKS & SPENCER

BABY LOSS AWARENESS WEEK // 9TH – 15TH OCTOBER 2018

As we’re now into October (HOW? I know how, but seriously, HOW?!), I thought I would address a few things. But mainly this blog post is in support of a few items that Marks & Spencer have created in aid of raising awareness this Baby Loss Awareness Week (and month).

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The 4th October, just before Baby Loss Awareness Week 2018 begins, will be poignant for me as it’s a year to the day that my miscarriage finally came to an end (after beginning in the August of 2017).  Although, it doesn’t ever really ‘end’ really, does it?

A year of all the emotions. A year of wondering and wishing. A year of new and desperate hope.

Every year we will continue to acknowledge the baby that never landed in our arms, by joining in with the Wave of Light, annually, on 15th October.

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The death of a baby is not a rare event. It can happen to anyone.

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*Every year, thousands of people in the UK are affected by the death of a baby or experience pregnancy loss. With the shocking statistic that it will personally affect 1 in 4 of us.

A collaboration between more than 60 charities across the UK, Baby Loss Awareness Week is held from 9th to 15th October to raise awareness about the key issues affecting those who have experienced pregnancy loss or baby death in the UK.

Throughout the week bereaved parents, their families and friends, unite with each other and others across the world to commemorate the lives of babies who died during pregnancy, at or soon after birth and in infancy.

Now in its 16th year, Baby Loss Awareness Week calls for tangible improvements in research, care and policy around bereavement support and highlights bereavement support and services available for anyone affected by the death of a baby at any stage.

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With all this in mind, Marks & Spencer have collaborated and created three items to support raising awareness of such a worthy cause.

Pure Cotton Baby Loss Awareness T-Shirt
M&S // BABY LOSS AWARENESS TEE //
£9.50
Pure Cotton Baby Loss Awareness T-Shirt
M&S // BABY LOSS AWARENESS TEE //
£9.50

 

 

 

 

 

 

 

 

 

 

 

M&S // BABY LOSS AWARENESS CANDLE // £6.00

Amy Mott specially designed the t-shirt, is a buyer at M&S and has been personally affected by baby loss:

“Having been affected by baby loss I wanted to break the silence around the issue and get everyone talking about baby loss during the awareness week. My design on the T-shirt and candle is a meaningful tribute of the everlasting love that is felt for a baby and can be worn in support of this fantastic platform that offers advice and acts as a support network”.

M&S will also be donating £15,000 to help support Baby Loss Awareness Week. For more information, please visit babyloss-awareness.org.

Whether you’ve been affected by the loss of a baby, you know someone who has, or you wish to spread the message and show your support, this Baby Loss Awareness candle and other candles will be uniting the world through social media on 15th October, in the name of the many babies who lit up our lives for just a short moment. Use the hashtag’s #WaveofLight, #BLAW2018 to share your love and support.

Thank you to Marks and Spencer for supporting Baby Loss Awareness Week. These specially designed t-shirts and the candle are now available to purchase online. Thank you for helping us to break the silence around pregnancy and continue the #babyloss conversation.

*words & statistics taken from https: //babyloss-awareness.org


Read more from my journey:

Miscarriage & Me
Miscarriage & Me // An Update
Miscarriage & Me // An Update: 2
Miscarriage & Me // An Update: 3
Baby Loss Awareness Week 2017 // Break the silence
Miscarriage & Me // An Update: 4
JULY 2018:  Miscarriage & Me // An Update: 5
AUGUST 2018: Miscarriage & Me // A letter to myself | Hi-Mama Letters

Support networks:

Baby Loss Awareness 
The Miscarriage Association
Tommy’s, The Baby Charity
Cruse, Bereavement Care
SANDS, Stillbirth & Neonatal Charity

 

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Miscarriage & Me // Update: 4

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It’s been a little while since I mentioned our Miscarriage. 160 days, in fact, since my last post on here about it all. Because you don’t need me to tell you, life just has to move along. Especially when you have an Eli AND a James to look after too (!)

Since the end of the miscarriage, so much has happened. I’ve had the most spontaneous evening with Harry Styles, The Retreat, Bonfire Night, Christmas, New Year (fresh slate),  proposed move to Manchester (happening sometime, SOON!), followed by a stay in Manchester Royal Hospital (James, after a visit to A&E), a birthday surprise for my Papa and Mother’s Day. But here we are, almost half way into March. A month I’ve been desperately trying to not think about. But it’s here now and I have to face up to it. So by bashing this all out on the keyboard, I’m hoping I can get some kind of cathartic release.

So March. What’s the significance?

Well, my due date would have been, TODAY, 15th March.

So I knew that, at some point in March, whether that baby came early, or today, or indeed like their Big Brother, Eli, and arrived super late –  we knew had prepared that to have a brand new baba, in March. Today our arms are empty.

But obviously, this is not the case. This isn’t what’s happening this March, at least.

Today, I’ve had messages of love and support and care and its been so nice. I’ve had the head tilt, which has cheered me up without anyone even realising (a la Richard in Friends, see my reference, here) (SIDE NOTE // does anyone else live their days through quotes from FRIENDS? I can’t think of a day when I didn’t reference it at least!)

How have I been?

 

  • Well, physically, I felt battered and bruised for a few weeks post-operation – really exhausted. I slept through the day a lot. Mentally, I was totally drained. But I had to keep going – especially for Eli. I also overate, no rhyme or reason, but I couldn’t stop eating. Boy am I paying for it now as I try and shift off the pounds! Though, I’ve lost 10lbs in 5 weeks, so I’m getting there slowly.
  • Cycle-wise, my periods returned, a few days out from when I expected and they are still a bit strange. As I mentioned lots before, my periods are exceptionally painful (Endometriosis) and usually with an excessive amount of blood loss. While the pain has been the same (!!) as before, the blood loss is somewhat scant. So I’m wondering whether some endometrial tissue was removed during the ERPC operation? Who knows – but my body is still keeping me on my toes.
  • FYI – just after the New Year I received my ‘invitation’ for my Cervical Screening Test. I went to book it and was told to wait until 3-4 months AFTER the ERPC, to allow for the cells around the cervix to regrow following a miscarriage.  I had my Smear test last week – awaiting the letter back. But as usual, it was smashing, no problems with the procedure at all. It took around 2 mins, tops.
  • Following my operation I had a spate of infections (chest/ear/lung/so many colds). It culminated with a Spirometry Test and our darling Coco heading to a rescue centre to be re-homed. The diagnosis was COPD and I have a lung age of 61. Shockingly, I’ve never smoked and I’m only 31. Since Coco was re-homed however, my symptoms have dwindled and I feel much more healthy again! I’m sorry to say its all probably quite likely that I had a pet allergy 🙁 But I’m pretty impressed with my recovery and taking just one inhaler a day now. (Also, it goes without saying too – Mum’s ARE always right, damn!)
  • I became jealous, I guess, and sad – wouldn’t ‘luck’ just have it that so many friends (and IG strangers!) were announcing their pregnancies and births? Of course it would.  Though, as it is fairly obvious, I do absolutely  love a baba (I wouldn’t be craving my maternal duties again if I didn’t!) and it’s so wonderful to see these new babes coming safely into the world. I am honestly over the moon for everyone I’ve come into contact with who has told me of their happy news! But then I feel the intense guilt for feeling this sadness… part of me can’t help but think, this should also be us. We could be sharing our happy news right now too. Aren’t emotions bloody brilliant, eh?
  • Mentally – I’ve all over the place.
    • I’ve had a weeks and weeks where things have been great! Actually never better! But the closer we’ve come into March, the more vulnerable I’ve felt.
    • This week, I feel low and sad and diminished.
    • Without this being a completely sombre update, right now, I feel like I have this big black cloud hanging out with me – following my every move. I can’t shake it off.
    • I’ve had lots of tension headaches, back & neck (tension) pain and intense dreams – when I’m able to actually sleep, that is.
You can always count on Rupi Kaur to put your feelings together for you.

—–

I confronted my inner thoughts last week, which involved a whole lot of sobbing my heart out – and vocalising exactly I’m how feeling. I’d bottled it up, probably since November. It feels better to share – even if the other person doesn’t say anything at all – just sharing, feels so good. Though, the only person getting the brunt of it all at the minute, is poor James. And of course, he feels all the feels too.  A baby, our new baby, could have been in his arms, too, making him a parent all over again.

I didn’t have a follow up after my ERPC, I didn’t actually even speak to my GP about the trauma we’d been through. (Should I have? Should I have been sent an invitation for a follow up appointment of some kind? What happens in your local authority? ). I feel like maybe the grief is only just hitting me now – perhaps because when the due date has been and gone, then it all becomes real and in turn, gives us some kind of closure. Because that’s the end of the life-cycle, as it were. If that makes any sense at all. This all got me thinking, I have nothing physical to ‘show’ for my loss. So I contacted PALS at Broomfield Hospital, to see if I could access my medical records, notes, multiple scan imagery. See if there is any ounce of explanation following my ERPC (and the subsequent investigation that was to allegedly follow).  I kept my eyes firmly closed for a lot of the scans and procedures – willing it to be over. Anything any specialist pointed out or illustrated on the screen was a blur and didn’t register with me. Apparently I should have been offered copies of my scans – I’m now wondering if this also would have helped mark our loss and support our grieving process. Also, you can also ask (or may be offered) a Certification –  according to The Miscarriage Association,  this is a kind of ‘ death certificate’. For some parents, the sadness of pregnancy loss before 24 weeks is increased by the fact that there is no documentation that acknowledges the loss of their baby.  We recommend that NHS trusts create and offer some form of certification for parents who would like this. Tim Loughton MP has recently tabled a Private Member’s Bill which includes a request for a report on whether the law ought to be changed either to allow the registration of pre-24 week pregnancy losses (so it’s a personal choice) or to require it (so it is a legal requirement). The Miscarriage Association ran a survey on this to collate personal views – more details on this can be found, here.  The PALS team at Broomfield got in touch with a really lovely email – which was followed up by a call today from the Matron of Gynaecology. She’s invited us into the hospital to go through my notes and any questions / concerns, with my consultant (who was also the consultant we had for when I was pregnant with Eli), Miss Joshi. I was taken aback by the phone call and became quite emotional with the Matron. The kindness of strangers will never cease to amaze me.

To our Baby Briston-Hill (PRAWNER #2), you never did arrive in our arms – but you will be forever in my heart. I will live in wonder of who you would have been  – you’ll always be my favourite what if? my little darling.

Our little fam is pretty special – I’ll be squeezing these two extra hard today 🖤

Thank you for reading thus far; and thank you for the bags of support and love we’ve received. It means the world 🖤 Eli is going to be the BEST big brother (EVER) when it happens. And not a single one of us can wait. As the wonderful mind that was Professor Stephen Hawking, so perfectly put it,

“Remember to look up at the stars and not down at your feet. Try to make sense of what you see and wonder about what makes the universe exist. Be curious. And however difficult life may seem, there is always something you can do and succeed at. It matters that you don’t just give up.”

 Professor Stephen Hawking

So this is what we’ll do.

All my love,
C
✖✖✖

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Support networks:
The Miscarriage Association
Tommy’s, The Baby Charity
Cruse, Bereavement Care
SANDS, Stillbirth & Neonatal Charity

Donate:
You can donate directly to The Miscarriage Association, from my FACEBOOK PAGE, HERE.

See also:
READ MORE >> Miscarriage & Me.
READ MORE >> Miscarriage & Me // An Update
READ MORE >> Miscarriage & Me // An Update: 2
READ MORE >> Miscarriage & Me // An Update: 3

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BABYLOSS AWARENESS WEEK // BREAK THE SILENCE

Break the silence

I can’t quite get my head around the fact that I’m STILL going through this Miscarriage. I never would have imagined it would be such a long process, drawn out process. Ok, for some, it is quite a shockingly quick and robust experience – but for others, it is marred with several medical intervention attempts and a hell of a lot of limbo.

As I’m currently going through this heartbreak – many other women, couples, families are also going through it too. Around the world. As I’ve mentioned many times, 1 in 4 of us will go through it at some point. 1 in 4 of you have been there. You know the physical pain, the emotional pain. So, I wanted to write a blog post dedicated to you, as today marks the beginning of Baby Loss Awareness Week 2017; which is held annually, globally, to remember those very tiny lives lost in pregnancy and soon after birth. The week will culminate with a Wave of Light on Sunday (15th October) at 7pm. See further details below.

Firstly, thank you. I’m not sure how else to say it – but thank you for all the kindness.  It’s overwhelmed me and I’ll never forget it.

Secondly, I’ve shared so much of my journey; I’m an over-sharer by nature. But mostly,  apart from this whole process being cathartic for me, I also wanted to share because thats how we learn. We learn from others’ experiences. What I found, was that Pregnancy & Baby Loss was exceptionally untalked about. It’s seen as taboo and very private – is that a British thing, or is that the situation worldwide? In general, I’m ridiculously British about things – I’m pretty naive, I’m pretty prudish. I get bashful at the mention of S-E-X. But THIS, this, I NEED to talk about. I also need you to talk out too. Let’s get together to break the silence of miscarriage & baby loss during this, Baby Loss Awareness Month.

I’d like to propose that my blog serves as a platform for you to be able to share with me. If your experience has proven too difficult to talk about openly, I am more than happy to publish stories anonymously. Whatever works for you – just PLEASE talk. Though I’m not known for being concise, this doesn’t have to be lengthy – just a few words from the heart to help yourself and others heal. It serves as such comfort and support – whilst also being therapeutic for yourself. Personally? I have found true solace in these online realms. I can’t be the only one?!

You can contact me via the comments below, FB & IG private direct messages or via email: claire[at]clairebriston.com

C
✖️✖️✖️

Charities such as the following also have ways to get involved this week, in support for Baby Loss Awareness Week.

Tommy’s

1 in 4 parents will have to go through the heartbreak of losing a child during pregnancy or birth. We need your help to stop these tragic deaths. Please join Team Tommy’s and help us find answers and cures.

Losing a baby at any stage of pregnancy is a devastating experience. It is hard to believe that in this day and age, up to one in four women will lose a baby during pregnancy or birth.

Tommy’s exists to change the unacceptable statistics connected to baby loss.

Thanks to the support of our incredible community, our research has lead to a reduced stillbirth rate of 22% in Greater Manchester between 2010 and 2014 and a 23% reduction in premature births in high risk women attending our London clinic during 2014-15.

Learn more about the impact of our work here: http://bit.ly/2we9Cvk#Babyloss

DONATE >> Make a donation to Tommy’s, The Baby Charity.

The Miscarriage Association

Stories of good care
During Babyloss Awareness Week this year, the 40 participating charities and groups are calling for improved care following the loss of a baby during pregnancy, or during or shortly after birth.

As part of this campaign, we are asking people to share their experiences of good care they have received, perhaps from a midwife, sonographer, friend or colleague. If you would like to get involved, please email a story of less than 150 words to babyloss@sands.org.uk, copying us in on awareness@miscarriageassociation.org.uk.

You can find more details on the Babyloss Awareness Week website.

Wave of light this Sunday
Last year we made a special video slideshow using hundreds of candles that lit up our Facebook page in memory of babies lost far too soon. If you’d like yours included this year, please add a note ‘For the video’ when you upload a picture.

While Baby Loss Awareness Week can be a special time of remembering and speaking about loss, we understand that it can also evoke painful memories. If you need to talk, please feel free to call our helpline on on 01924 200 799 (Monday – Friday9 a.m – 4 p.m) or see our website for other ways we offer support.

DONATE >> Make a donation to The Miscarriage Association

Baby Loss Awareness

Share your experience – this could be by telling a friend about Baby Loss Awareness Week, talking about your experience or wearing a Baby Loss Awareness pin badge. You could also use our specially designed social media images on your website, Facebook, Twitter, Instagram, work intranet or noticeboard.

DONATE >> Make a donation to Babyloss Awareness.