BREAK THE SILENCE

Baby loss awareness week

9th – 15th October 2018

I write this post as tears begin to flood my eyes. Warm, salty tears rolling down my cheeks, streaking the make-up mask I wear daily to keep me feeling/looking/seeming normal. To plaster a happy face over my sad one. This very time last year I was recovering from the ERPC operation that physically ended my miscarriage.

A whole year on, mentally, it’s still very raw, it’s still very fresh, it still very much hurts. A whole year on, I’m still longing for – unashamedly needing to have my arms full with a newborn son or daughter, a brother or sister for Eli. My heart aches. When you lose a child, at any stage, you are left haunted by wonder. Wonder who they might have been. That’s what makes it so hard to move on…

It’s been such a long time since we started trying for our second child – our journey began back in March 2017. And here I am, sat at my laptop around 580 days (thats 19 months, in new money, not that I’m keeping check) later – still wishing, still hoping, still feeling huge pangs of guilt because I’m covertly jealous of women that I spot with a beautiful bump; or those with a new babe in arms. It’s easily taking up the majority of my thinking throughout my day – not to mention rudely interrupting my sleep too. Tell me I’m not the only one who dreams mosts nights about parenting a brand new bebé?!

Never would I have imagined it would be such a long, drawn out process. I’m not just talking about the physical aspect of miscarriage – because that definitely sucks and takes ages to recover from too – but the mental heartbreak.

As I’m sat typing this, many other women, couples, families are also going through it too. Around the world. As I’ve mentioned many times, 1 in 4 of us will go through it at some point. 1 in 4 of you have been there. You too know the physical pain, the emotional pain.

Miscarriage and baby loss does not discriminate, it can happen to anyone. It is not rare. So, I wanted to write a blog post dedicated to you, as today marks the beginning of Baby Loss Awareness Week 2018; which is held annually, globally, to remember those very tiny lives lost in pregnancy and soon after birth. The week will culminate with the annual Wave of Light on Monday 15th October at 7pm. See further details below.

I’m not sure how else to say it – but thank you for all the kindness shown to us over the past year. For listening and sharing.  365 days on, I’m still overwhelmed by the messages and and I’ll never forget it.

I’m an over-sharer by nature, sometimes to my own detriment, but mostly,  apart from this whole blogging process being cathartic for me, I also wanted to share because thats how we learn. We learn from others’ experiences. What I found, was that Pregnancy & Baby Loss was exceptionally un-talked about. It’s 2018 and this is still seen as taboo and very private – is that a British thing? Or is this the opinion people have worldwide? It’s crazy, don’t you think? Not to talk and share openly? To grieve and take time to do so.

In general, I am ridiculously British about things – I’m pretty naive, I’m pretty prudish. I get bashful at the mention of S-E-X. But THIS, this, I NEED to talk about. I also need you to talk out too. SO! Let’s get together to break the silence of miscarriage & baby loss during this, Baby Loss Awareness Month.

I’d like to propose that my blog serves as a platform for you to be able to share with me… and importantly, with others too. If your experience has proven too difficult to talk about openly, I am more than happy to publish stories anonymously. Whatever works for you – just PLEASE talk. Though I’m certainly not known for being concise,  yours does not have to be lengthy – just a few words from the heart to help yourself and others heal. It will definitely be a comfort and support for those reading – whilst also being therapeutic for yourself. Personally? I have found true solace in these online realms. I can’t be the only one?!

You can contact me via the comments below, FB & IG private direct messages or via email: claire[at]clairebriston.com

C
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BABY LOSS AWARENESS WEEK // EVENTS

Charities such as the below also have ways to get involved this week, in support for Baby Loss Awareness Week. Events that (are known) you can join are listed on the Baby Loss Awareness site, here.

Online events

• 9 October 8 pm Join a webinar in the comfort of your own home: Baby Loss, Miscarriage and Stillbirth. With Dr Raj Rai – Recurrent Miscarriage Clinic, St Mary’s Hospital. Sign up here
• 15 October 7 – 7:30 pm Online Wave of Light Group Meditation Further information here

Parliamentary activity & events (invitation only)

England

• 8-12 October: Display in Upper Waiting Hall in House of Commons, Westminster, on pregnancy and baby loss and the National Bereavement Care Pathway.
• 9 October: Debate in House of Commons
• 11 October: Event sponsored by the All Party Parliamentary Group on Baby Loss in the House of Commons to raise awareness of baby loss with MPs, followed by a remembrance service for MPs, peers and parliamentary staff.

Scotland

• 3 October: Event in Scottish Parliament

Wales

• 3 October: Debate in Welsh Assembly
• 10 October: Candle Event sponsored by Mark Drakeford AM at Main Hall, The Pierhead, Cardiff

IMPOSSIBLY BRILLIANT HELP & SUPPORT NETWORKS // THERE FOR YOU 24/7

TOMMY’S

1 in 4 parents will have to go through the heartbreak of losing a child during pregnancy or birth. We need your help to stop these tragic deaths. Please join Team Tommy’s and help us find answers and cures.

Losing a baby at any stage of pregnancy is a devastating experience. It is hard to believe that in this day and age, up to one in four women will lose a baby during pregnancy or birth.

Tommy’s exists to change the unacceptable statistics connected to baby loss.

DONATE >> Make a donation to Tommy’s, The Baby Charity.

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THE MISCARRIAGE ASSOCIATION

Stories of good care
During Babyloss Awareness Week this year, the 40 participating charities and groups are calling for improved care following the loss of a baby during pregnancy, or during or shortly after birth.

Wave of light this Monday
Last year we made a special video slideshow using hundreds of candles that lit up our Facebook page in memory of babies lost far too soon. If you’d like yours included this year, please add a note ‘For the video’ when you upload a picture.

While Baby Loss Awareness Week can be a special time of remembering and speaking about loss, we understand that it can also evoke painful memories. If you need to talk, please feel free to call our helpline on on 01924 200 799 (Monday – Friday, 9 a.m – 4 p.m) or see our website for other ways we offer support.

DONATE >> Make a donation to The Miscarriage Association

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BABY LOSS AWARENESS

Share your experience – this could be by telling a friend about Baby Loss Awareness Week, talking about your experience or wearing a Baby Loss Awareness pin badge. You could also use our specially designed social media images on your website, Facebook, Twitter, Instagram, work intranet or noticeboard.

DONATE >> Make a donation to Babyloss Awareness.

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SANDS – STILLBIRTH AND NEONATAL DEATH CHARITY

Sands is the stillbirth and neonatal death charity. We operate throughout the UK, supporting anyone affected by the death of a baby, working to improve the care bereaved parents receive, and promoting research to reduce the loss of babies’ lives.

Sands, the stillbirth and neonatal death charity, was founded in 1978 by a small group of bereaved parents who were devastated by the death of their babies, and by the total lack of acknowledgement and understanding of the significance and impact of their loss.

DONATE >> Make a donation to SANDS.

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THE LULLABY TRUST

The Lullaby Trust provides emotional support for bereaved families, promotes expert advice on safer baby sleep and raises awareness of sudden infant death.

Working with the NHS, we run a national health-visitor led service for bereaved parents, Care of Next Infant (CONI) programme, which supports families before and after the birth of their new baby.

We are committed to supporting research to understand why so many babies a year die suddenly and unexpectedly in the UK and to find out more about how to prevent these tragic deaths.

The Lullaby Trust operates nationwide across England, Wales and Northern Ireland. We run an information line for parents and professionals (0808 802 6869) and a dedicated line for bereaved families (0808 802 6868). Both are free to call from landlines and mobiles.

We campaign tirelessly, lobbying government to keep sudden infant death on the public health agenda. Since we formed as The Foundation for the Study of Sudden Infant Deaths (FSID) in 1971 we have been pivotal in reducing sudden infant death syndrome (SIDS) by over 80%.

DONATE >> Make a donation to The Lullaby Trust