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BABY LOSS AWARENESS WEEK 2018 // BREAK THE SILENCE

BREAK THE SILENCE

Baby loss awareness week

9th – 15th October 2018

 

I write this post as tears begin to flood my eyes. Warm, salty tears rolling down my cheeks, streaking the make-up mask I wear daily to keep me feeling/looking/seeming normal. To plaster a happy face over my sad one. This very time last year I was recovering from the ERPC operation that physically ended my miscarriage.

A whole year on, mentally, it’s still very raw, it’s still very fresh, it still very much hurts. A whole year on, I’m still longing for – unashamedly needing to have my arms full with a newborn son or daughter, a brother or sister for Eli. My heart aches. When you lose a child, at any stage, you are left haunted by wonder. Wonder who they might have been. That’s what makes it so hard to move on…

It’s been such a long time since we started trying for our second child – our journey began back in March 2017. And here I am, sat at my laptop around 580 days (thats 19 months, in new money, not that I’m keeping check) later – still wishing, still hoping, still feeling huge pangs of guilt because I’m covertly jealous of women that I spot with a beautiful bump; or those with a new babe in arms. It’s easily taking up the majority of my thinking throughout my day – not to mention rudely interrupting my sleep too. Tell me I’m not the only one who dreams mosts nights about parenting a brand new bebé?!

Never would I have imagined it would be such a long, drawn out process. I’m not just talking about the physical aspect of miscarriage – because that definitely sucks and takes ages to recover from too – but the mental heartbreak.

As I’m sat typing this, many other women, couples, families are also going through it too. Around the world. As I’ve mentioned many times, 1 in 4 of us will go through it at some point. 1 in 4 of you have been there. You too know the physical pain, the emotional pain.

Miscarriage and baby loss does not discriminate, it can happen to anyone. It is not rare. So, I wanted to write a blog post dedicated to you, as today marks the beginning of Baby Loss Awareness Week 2018; which is held annually, globally, to remember those very tiny lives lost in pregnancy and soon after birth. The week will culminate with the annual Wave of Light on Monday 15th October at 7pm. See further details below.

I’m not sure how else to say it – but thank you for all the kindness shown to us over the past year. For listening and sharing.  365 days on, I’m still overwhelmed by the messages and and I’ll never forget it.

I’m an over-sharer by nature, sometimes to my own detriment, but mostly,  apart from this whole blogging process being cathartic for me, I also wanted to share because thats how we learn. We learn from others’ experiences. What I found, was that Pregnancy & Baby Loss was exceptionally un-talked about. It’s 2018 and this is still seen as taboo and very private – is that a British thing? Or is this the opinion people have worldwide? It’s crazy, don’t you think? Not to talk and share openly? To grieve and take time to do so.

In general, I am ridiculously British about things – I’m pretty naive, I’m pretty prudish. I get bashful at the mention of S-E-X. But THIS, this, I NEED to talk about. I also need you to talk out too. SO! Let’s get together to break the silence of miscarriage & baby loss during this, Baby Loss Awareness Month.

I’d like to propose that my blog serves as a platform for you to be able to share with me… and importantly, with others too. If your experience has proven too difficult to talk about openly, I am more than happy to publish stories anonymously. Whatever works for you – just PLEASE talk. Though I’m certainly not known for being concise,  yours does not have to be lengthy – just a few words from the heart to help yourself and others heal. It will definitely be a comfort and support for those reading – whilst also being therapeutic for yourself. Personally? I have found true solace in these online realms. I can’t be the only one?!

You can contact me via the comments below, FB & IG private direct messages or via email: claire[at]clairebriston.com

C
✖️✖️✖️

BABY LOSS AWARENESS WEEK // EVENTS

Charities such as the below also have ways to get involved this week, in support for Baby Loss Awareness Week. Events that (are known) you can join are listed on the Baby Loss Awareness site, here.

Online events

  • 9 October 8 pm Join a webinar in the comfort of your own home: Baby Loss, Miscarriage and Stillbirth. With Dr Raj Rai – Recurrent Miscarriage Clinic, St Mary’s HospitalSign up here
  • 15 October 7 – 7:30 pm Online Wave of Light Group Meditation Further information here

Parliamentary activity & events (invitation only)

England

  • 8-12 October: Display in Upper Waiting Hall in House of Commons, Westminster, on pregnancy and baby loss and the National Bereavement Care Pathway.
  • 9 October: Debate in House of Commons
  • 11 October: Event sponsored by the All Party Parliamentary Group on Baby Loss in the House of Commons to raise awareness of baby loss with MPs, followed by a remembrance service for MPs, peers and parliamentary staff.

Scotland

  • 3 October: Event in Scottish Parliament

Wales

  • 3 October: Debate in Welsh Assembly
  • 10 October: Candle Event sponsored by Mark Drakeford AM at Main Hall, The Pierhead, Cardiff

 

IMPOSSIBLY BRILLIANT HELP & SUPPORT NETWORKS // THERE FOR YOU 24/7

TOMMY’S

1 in 4 parents will have to go through the heartbreak of losing a child during pregnancy or birth. We need your help to stop these tragic deaths. Please join Team Tommy’s and help us find answers and cures.

Losing a baby at any stage of pregnancy is a devastating experience. It is hard to believe that in this day and age, up to one in four women will lose a baby during pregnancy or birth.

Tommy’s exists to change the unacceptable statistics connected to baby loss.

Thanks to the support of our incredible community, our research has lead to a reduced stillbirth rate of 22% in Greater Manchester between 2010 and 2014 and a 23% reduction in premature births in high risk women attending our London clinic during 2014-15.

Learn more about the impact of our work here: http://bit.ly/2we9Cvk#Babyloss

DONATE >> Make a donation to Tommy’s, The Baby Charity.

THE MISCARRIAGE ASSOCIATION

Stories of good care
During Babyloss Awareness Week this year, the 40 participating charities and groups are calling for improved care following the loss of a baby during pregnancy, or during or shortly after birth.

As part of this campaign, we are asking people to share their experiences of good care they have received, perhaps from a midwife, sonographer, friend or colleague. If you would like to get involved, please email a story of less than 150 words to babyloss@sands.org.uk, copying us in on awareness@miscarriageassociation.org.uk.

You can find more details on the Babyloss Awareness Week website.

Wave of light this Monday
Last year we made a special video slideshow using hundreds of candles that lit up our Facebook page in memory of babies lost far too soon. If you’d like yours included this year, please add a note ‘For the video’ when you upload a picture.

While Baby Loss Awareness Week can be a special time of remembering and speaking about loss, we understand that it can also evoke painful memories. If you need to talk, please feel free to call our helpline on on 01924 200 799 (Monday – Friday9 a.m – 4 p.m) or see our website for other ways we offer support.

DONATE >> Make a donation to The Miscarriage Association

BABY LOSS AWARENESS

Share your experience – this could be by telling a friend about Baby Loss Awareness Week, talking about your experience or wearing a Baby Loss Awareness pin badge. You could also use our specially designed social media images on your website, Facebook, Twitter, Instagram, work intranet or noticeboard.

DONATE >> Make a donation to Babyloss Awareness.

SANDS – STILLBIRTH AND NEONATAL DEATH CHARITY

Sands is the stillbirth and neonatal death charity. We operate throughout the UK, supporting anyone affected by the death of a baby, working to improve the care bereaved parents receive, and promoting research to reduce the loss of babies’ lives.

Sands, the stillbirth and neonatal death charity, was founded in 1978 by a small group of bereaved parents who were devastated by the death of their babies, and by the total lack of acknowledgement and understanding of the significance and impact of their loss.

DONATE >> Make a donation to SANDS.

THE LULLABY TRUST

The Lullaby Trust provides emotional support for bereaved families, promotes expert advice on safer baby sleep and raises awareness of sudden infant death.

Working with the NHS, we run a national health-visitor led service for bereaved parents, Care of Next Infant (CONI) programme, which supports families before and after the birth of their new baby.

We are committed to supporting research to understand why so many babies a year die suddenly and unexpectedly in the UK and to find out more about how to prevent these tragic deaths.

The Lullaby Trust operates nationwide across England, Wales and Northern Ireland. We run an information line for parents and professionals (0808 802 6869) and a dedicated line for bereaved families (0808 802 6868). Both are free to call from landlines and mobiles.

We campaign tirelessly, lobbying government to keep sudden infant death on the public health agenda. Since we formed as The Foundation for the Study of Sudden Infant Deaths (FSID) in 1971 we have been pivotal in reducing sudden infant death syndrome (SIDS) by over 80%.

DONATE >> Make a donation to The Lullaby Trust

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BABY LOSS AWARENESS 2018 // MARKS & SPENCER

BABY LOSS AWARENESS WEEK // 9TH – 15TH OCTOBER 2018

As we’re now into October (HOW? I know how, but seriously, HOW?!), I thought I would address a few things. But mainly this blog post is in support of a few items that Marks & Spencer have created in aid of raising awareness this Baby Loss Awareness Week (and month).

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The 4th October, just before Baby Loss Awareness Week 2018 begins, will be poignant for me as it’s a year to the day that my miscarriage finally came to an end (after beginning in the August of 2017).  Although, it doesn’t ever really ‘end’ really, does it?

A year of all the emotions. A year of wondering and wishing. A year of new and desperate hope.

Every year we will continue to acknowledge the baby that never landed in our arms, by joining in with the Wave of Light, annually, on 15th October.

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The death of a baby is not a rare event. It can happen to anyone.

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*Every year, thousands of people in the UK are affected by the death of a baby or experience pregnancy loss. With the shocking statistic that it will personally affect 1 in 4 of us.

A collaboration between more than 60 charities across the UK, Baby Loss Awareness Week is held from 9th to 15th October to raise awareness about the key issues affecting those who have experienced pregnancy loss or baby death in the UK.

Throughout the week bereaved parents, their families and friends, unite with each other and others across the world to commemorate the lives of babies who died during pregnancy, at or soon after birth and in infancy.

Now in its 16th year, Baby Loss Awareness Week calls for tangible improvements in research, care and policy around bereavement support and highlights bereavement support and services available for anyone affected by the death of a baby at any stage.

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With all this in mind, Marks & Spencer have collaborated and created three items to support raising awareness of such a worthy cause.

Pure Cotton Baby Loss Awareness T-Shirt
M&S // BABY LOSS AWARENESS TEE //
£9.50
Pure Cotton Baby Loss Awareness T-Shirt
M&S // BABY LOSS AWARENESS TEE //
£9.50

 

 

 

 

 

 

 

 

 

 

 

M&S // BABY LOSS AWARENESS CANDLE // £6.00

Amy Mott specially designed the t-shirt, is a buyer at M&S and has been personally affected by baby loss:

“Having been affected by baby loss I wanted to break the silence around the issue and get everyone talking about baby loss during the awareness week. My design on the T-shirt and candle is a meaningful tribute of the everlasting love that is felt for a baby and can be worn in support of this fantastic platform that offers advice and acts as a support network”.

M&S will also be donating £15,000 to help support Baby Loss Awareness Week. For more information, please visit babyloss-awareness.org.

Whether you’ve been affected by the loss of a baby, you know someone who has, or you wish to spread the message and show your support, this Baby Loss Awareness candle and other candles will be uniting the world through social media on 15th October, in the name of the many babies who lit up our lives for just a short moment. Use the hashtag’s #WaveofLight, #BLAW2018 to share your love and support.

Thank you to Marks and Spencer for supporting Baby Loss Awareness Week. These specially designed t-shirts and the candle are now available to purchase online. Thank you for helping us to break the silence around pregnancy and continue the #babyloss conversation.

*words & statistics taken from https: //babyloss-awareness.org


Read more from my journey:

Miscarriage & Me
Miscarriage & Me // An Update
Miscarriage & Me // An Update: 2
Miscarriage & Me // An Update: 3
Baby Loss Awareness Week 2017 // Break the silence
Miscarriage & Me // An Update: 4
JULY 2018:  Miscarriage & Me // An Update: 5
AUGUST 2018: Miscarriage & Me // A letter to myself | Hi-Mama Letters

Support networks:

Baby Loss Awareness 
The Miscarriage Association
Tommy’s, The Baby Charity
Cruse, Bereavement Care
SANDS, Stillbirth & Neonatal Charity

 

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Lifehouse Country Spa Resort – long weekend away…

 

So, Lifehouse Spa!

We had booked this little break away after having all the scans and tests a few weeks ago. We’d decided that we would need a relax after such a rollercoaster couple of weeks…

Being 19 weeks pregnant, we jut wanted to go somewhere where we could relax and chill out for a few days. Get away from it all. A spa was perfect. I literally spent 3 days alternating between the swimming pool and jacuzzi (Hydrotherapy Pool). Unfortunately, all of the treatments were too expensive for our budget… in fact, they were just overpriced in general.

I’m well aware that this review is just going to sound like a right moan! It was our first trip to a Spa though, so we would have expected a bit more in some areas. Albeit, we had a wonderful time and would return tomorrow! But with hindsight of course ;o

Pro’s

– Drinks were relatively cheap.

– Comfortable bed.

– Contemporary room with lovely bathroom and great views of the gardens. Usual coffee and tea making facilities.

– Lovely staff – all very polite and always had a smile.

– Easy place to relax.

– Food was great, restaurant quality.

– Great swimming pool and hydrotherapy pool. Can’t review the Steam, Sauna or Salt Inhalations rooms as I can’t use them being pregnant… but DP absolutely loved all three. So they kept him quiet! 😀

– Loved the Orchids Bar area too… must recommend the bread and olives. Best olives I’ve ever eaten! Amazing! Just £2.00 too!

– Very very nice gardens… it was absolutely blowing a gale outside and raining but this did not deter us! We borrowed some Hunter wellies from reception and had a great walk right around the gardens.

 

Con’s

– We weren’t given a ‘welcome’ note or shown around the complex. So didn’t know what facilities we could and couldn’t use.

– Because of the above, we didn’t know we had a safe in the room, until we were messing on with a rather ambiguous looking drawer underneath the TV!

– Again, because we weren’t given a ‘welcome’ note, we didn’t know that you could order Room Service.

– Couldn’t lock the door to the room.

– No bath in the room – albeit, the shower was incredible. I still could have done with a soak before bed!

– Treatments are expensive and need to be booked well in advance. Many people were left disappointment upon arrival when all appointments were booked up.

– Pregnant ladies cannot use Sauna, Steam room or Salt Inhalation rooms as they raise the body temperature too much.

– Packages that exclude food are very expensive. A lunchtime meal (main and starter) will be around £45 for a couple with one wine and one soft drink. An evening meal is per the set menu, £35 for 3 courses or £28.50 for 2 courses.

– Menu’s left a lot to be desired for someone who is both pregnant and doesn’t eat fish or mushrooms! I ended up having the same evening meal on both nights of our stay because the menu didn’t change… and the Duck dish was the only one that didn’t contain fish or mushrooms! There was also a £3 additional supplement on this.

– There were no decaff teabags! I also wasn’t given an alternative… would have definitely thought there would be decaffeinated everything with it being a health spa!

– No soft drinks menu! Just Wine and Cocktail lists… which isn’t great when you can’t drink! Imagine if you’re an alcoholic visiting for a detox!

– Restaurant was basic-looking; for such an ambitious menu, it was a shame that the restaurant was more like a canteen in a Sainsbury’s with cheap chairs and tables. The chairs of which offered zero support for a pregnant lady.

– There were no bottles of water for free, or even for sale! So it was a case of having to get up every 5 minutes to go to the water fountain in the corner of the ‘Wet Area’. Which is quite annoying when you’re pregnant and just want to lay down, but of course, you need to keep hydrated.

– Although this spa is relatively new, (about a year old), we did notice lots of signs of wear and tear. I actually stood on a piece of broken glass in the Hydrotherapy Pool! Turns out, upon further inspection, lots of the mosaic tiles were cracked and broken, but glued back together. Again, when looking up from the jacuzzi, the ceiling paint was peeling…

It was such a shame there were these little niggles – we really did enjoy ourselves though! Honestly! And we would go back… just hopefully when they have a different menu! 🙂

 

MM.

 

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Mamas and Papas: Maternity Spot Tankini.

We’ve literally just got back from a long weekend away to the LifeHouse Country Spa Resort, in Essex. Had a wonderful few days but the Spa definitely had its up’s and downs. Going to review the weekend below…

First off though, I wanted to show you my new ‘tankini’… something I never ever thought I’d buy!

Mamas and Papas Spot Tankini, £30, www.mamasandpapas.com

I had been searching for a nice bikini that would grow with me, ready for my proposed water birth! But alas, it was February when I started looking… and apparently mothers don’t have holidays, or indeed water births, in colder months! (BOOHOO BRITISH HIGH STREET!)

I looked all over but just kept coming across full one-piece swimsuits or tankini’s… I’ve always been a bikini girl, so didn’t really contemplate a tankini and a one-piece will be well, useless during a water birth! ;o

I went to Mamas and Papas and looked over their range of tankini’s – DP said “Just try one on! See what it’s like!”. So I did and fell in love with this Spot Tankini. It’s the most comfortable piece of swimwear I’ve ever had! It’s supportive in all the right places and will definitely grow as bump grows!

MM.