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UPDATE | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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Last week wasn’t a very nice week, at all.

Mr Eli has been suffering with his Torticollis more frequently since I wrote my epicly long blog post, Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis. We haven’t had any attacks with the accompanying sickness and drowsiness since Eli’s 1st birthday; it has been just his head tilting to his shoulder. He’s been teething quite badly (well, he’s been teething constantly since he was 8 weeks old…). His Torticollis tends to flare up more when he’s teething – or when he reaches milestones. We were so hoping he’d started to outgrow the attacks.

His neck had been tilting to the left side since 24th October – coincidentally, OH’s birthday. It finally straightened up, to a perfect mid-line by Friday 1st November, 8 days later. Then on Tuesday 5th November Eli’s head started to gradually tilt towards the right. He had been unaffected for just 3 days. By the evening of Wednesday 6th November, poor Eli looked horrendously uncomfortable and was very clingy. We had a physio appointment at the local hospital at 11am on Thursday 7th November. This would be the first time our physio had seen him so badly affected with the Torticollis.

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Eating an apple after breakfast on Wednesday 6th November.

On Thursday 7th November, Eli woke up crying. He never wakes up crying… apart from when he’s been severely affected with his Torticollis, and we’re due an attack.

I struggled to get Eli into his high chair, he was so off balanced and crying in discomfort. He barely ate any breakfast. His head was completely touching his shoulder.

I got us both ready for the hospital appointment; we walked the 25 minute journey and Eli was fast asleep as soon as he went into his pram. He NEVER sleeps in his pram when we’re out and about now. He’s too nosey.

When we got to the hospital he started to wake up with the lights and noises. As he gradually came round, I noticed his eyes weren’t quite right. They looked misaligned. I pulled him out of his pram for a cuddle and closer look. And as I did so, he projectile vomited. EVERYWHERE. He was having the first full blown Torticollis attack in 3 months. His eyes rolled back and he passed out into my arms. There were such lovely people in the waiting room, rallying round with tissues and water for us both! It’s so scary and upsetting when it happens. This is the first time it’s happened outside of our house too.

I then went into the physio room. Our physio was in a state of shock I think – she’s always seen him when he’s been unaffected and his usual jolly self. She admitted she never realised the extent of the attacks and began noting down everything that had happened, so she could write to the big hospital in Chelmsford for a referral to a specialist.

We know that there is no treatment or cure for Torticollis. It is something that Eli must grow out of, and should grow out of by the time he is 3. But I would still like him to be seen by a specialist.

He was sick a further 3 times in the physio room. The physio took a video of how the Torticollis was affecting him during his attacks; so we can use it as reference for any further appointments, where hopefully Eli will not be affected. OH and I watched this back on Thursday night together and it was very, very distressing to watch back.

Eli continued to be sick all of the day on Thursday – something that doesn’t usually happen. Eli had changed through 6 tops, 2 pairs of trousers and I used 12 muslins and 4 tea towels to clean things up. It was too chilly to not have his clothes on. I kept him nil by mouth… aside from syringing water into his mouth as he just couldn’t drink from anything else. He slept on me in-between the sickness. As he snored in my arms, I sobbed. I don’t think there’s anything that quite prepares you for feeling so helpless as a parent – not being able to make Eli better is just the WORST feeling in the entire world. For his last nap that day, I put him into his pram – where he slept for 90s mins.

When Eli woke up, he was chatting away. I pulled him up and out of his pram for a cuddle. He wanted to be down and straight away grabbed his beaker! He was almost back to his usual jolly self again – aside from his head was still tilting to the right, just not as severely; but it was a huge improvement on how it had been when he woke up that morning. It was almost as though the earlier part of the day hadn’t happened.

He ate toast, a banana and some biscuits for his tea that evening, along with 2 beakers of water. He went to bed normally with his bottle of milk.

He was clingy on Friday 8th November and looked very uncomfortable still. His balance was still affected by the Torticollis so he was very clumsy and couldn’t sit upright on the floor or in his highchair, choosing to slant to the affected side.

Fast forward a few days to today. Eli is much better now, sitting comfortably and back to his usual routine. His head is more or less perfectly straight in the mid-line again. After previous attacks, his head has straightened back during the course of the day. So this has been a lengthy process, this time.

Eli has an appointment to review his Talipes at the end of this month – which we’re so looking forward to as his feet are remarkable now. His referral regarding his Torticollis will be at the beginning of December, at the same hospital.

If you or your child has been affected by Torticollis, or indeed Talipes, please do get in touch. I’d really like to hear your experiences with both – Torticollis a rare condition and there is not a lot of information out there.

MM.

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We’re moving out of our first family home…

Eli packing

 

We’re sad (but oh so happy!) to be moving out of the first home we three have shared as a family. This move marks our 7th house for myself and OH, our second as a family. July has been ridiculously hectic, I don’t even know where to begin! But there will be more posts to follow our house move. We’re moving in the local area, just somewhere with more space for Mr Eli.

We’ve been concentrating on packing, in this sweltering 30c heat. As you can see, Eli puts my packing to shame. He’s really helped me out with closing those boxes up! Clever boy!

So so proud of Eli, he’s such a happy boy. And look how steady he is on his beautiful feets. Thanking you Mr Ponseti 🙂

MM.

PS – click on the image to view the InstaVideo. WordPress is being whack and doesn’t embed the video within the post, so it’s easier to just view it on Instagram itself.

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Hospital Update: Meeting the Consultant and measuring 34 weeks at 28 weeks.

My favourite image of our Baby Boy so far! Taken at 20 weeks, UCLH. 20th March 2012.

Yesterday morning we drove up to Broomfield Hospital for another appointment with our Consultant; to discuss the findings from our last scan –The Bilateral Talipes. But our actual consultant was stuck on the M25 (of course), so we saw someone else and had to go through the whole rigmarole of explaining everything that’s happened in this rollercoaster of a pregnancy!

Fast forward half an hour and I’m on the couch being measured up with a tape measure again. At my Midwife appointment, less than a week ago, my bump was measuring up at 30cm, so 30 weeks – Weekly Update: 28 weeks. So had expected it to be about the same.The two Doctors measured me again… I was measuring 34cm, so one would assume, 34 weeks! UH OH.

I was referred for an emergency scan to check out baby boy’s measurements properly, along with an index of my amniotic fluid. Had to sit around the hospital for 3 hours until the scan. MASSIVE YAWN.

Had the scan and everything was FINE. He’s measuring up at 29 weeks (of which I am 29 weeks tomorrow). He weighs about 2 and a half pounds. He couldn’t be more spot on measurements wise, he’s spot on all the ‘average measurement’ lines on the scan graph. Which is great!

Also, my amniotic fluid is showing up at 6cm at the deepest point, which again, is absolutely normal! So everything is great. I just have a lot of my own water retention and bloating..possibly because I drink far too much water. What can I say? I’m a thirsty girl!

Additionally, the Sonographer also said that we no longer need to go back to have a scan at 32 weeks. She’s more than happy with the progress of everything and doesn’t see why we should have to go back to the hospital to review baby boy’s Talipes. Which is also fine by us! We’re over the moon! But at the same time, I’m also a little bit sad that we won’t be seeing our baby boy for a little while… in fact, the next time we see him will be when he’s ARRIVED! Which to be honest, is also a little bit scary! It’s all very very very REAL now. EXCITED.

So the moral of this story is, don’t believe the measurements! It was never going to be an exact science, measuring your bump – who thought it would be?!

MM.

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Hospital Update: Baby Boy bump has (mild) Bilateral Talipes.

Wednesday 18th April: Re-scan at UCLH, Fetal Medicine Unit.

This morning we visited the Fetal Medicine Unity in UCLH (University College London Hospital) for the re-scan of baby boy bump’s feet – to confirm or exclude Talipes (Club Foot). Since my worrying Midwife appointment the other week, I’ve thought about nothing other than the results we might find at the scan today. Not about his feet though, I was thinking about everything else that it could be linked to. Yesterday the panic set in again and I started googling all sorts, which we all know, is probably the worst thing you can do – ever! Based on the, err, google search findings, I’d really worried myself about how his spine might be developing, as Talipes can be the result of other genetic disorders. This all combined with the Midwife appointment made me really really quite anxious in that waiting from this morning.

Appointment was for 9am, we arrived early, as always, at 8:30am. We went into see the FMU and Speciality Doctor who has performed our most recent scans at UCLH, at about 9:15am. Our Speciality Doctor is beyond thorough, so started off with checking the progress of the brain and heart. Then he went on to check other internal organs for size and function, making the necessary measurements and notes as he went along. (See below for measurements from this scan!) He muttered that “everything is developing beautifully”. Then he turned to the back, looking at the spine and ribcage. He pondered over the spine and I clenched onto OH’s hand. The Doctor didn’t say anything so I asked “Is his spine ok?”. He smiled and said “Of course, he’s beautifully in proportion and developing as he should be. It’s a good thing!”. PHEW. I was happy at that point 🙂

As baby boy bump has proven at every single scan, he’s a wriggler. He moves non-stop. Which is amazing! But not great when the Doctor is trying to desperately get a good view of his feet! It was at this point that he got the 4D scanning images up again – which is just incredible. It’s so amazing to see your baby’s face like that – unbelievable to be honest! But he was really wanting to get a good view of his feet… so it was a quick look at his cute-as-a-button face and then back to business.

The Doctor scanned his feet for about 15 minutes using both the 4D and 2D imaging. He then turned to us and said that he was “convinced there is a degree of Bilateral Talipes. But is extremely mild”. He then went on to discuss corrective methods and said he’d like the Consultant to take a look. The Consultant arrived and said that the Talipes was so mild that “I probably would have missed it to be honest!”.

So with all this in mind, we’re over the moon. Couldn’t be happier. We always knew this baby boy of ours would be a character, and he’s certainly that!

We”ve now been discharged from UCLH and referred back to the care of Broomfield. We will have another scan (YES!) at 32 weeks to see the progression of the Talipes. This will be our 8th scan, although these scans have not been under happy circumstances (mostly), we’re extremely grateful that we’ve been lucky enough to see our baby boy growing at every single stage. As long as the Talipes has progressed as it should (or hopefully, not at all) then we’ll remain within the care of Broomfield. We will not be treated any differently for the birth, so there is no reason for me not to have the Water Birth I’m planning! Once baba is born, we’ll obviously review the extent of the Talipes and take it from there.

Measurements at 25 weeks and 5 days.

Biparietal Diameter (BPD): 67.9 mm

Head Circumference (HC): 243.9 mm

Abdominal Circumference (AC): 213.3 mm

Nuchal Fold Thickness (NT): 5.6 mm

Nasal Bone: 7.4 mm

Femur Length: 45.5 mm

Estimated Fetal Weight (BPD, HC, AC, FL) :842 g / 1 lb 14oz

4D scan of baby boy’s face. He has my nose and chin and OH’s eyes. He’s playing hide and seek here though unfortunately! 

MM.

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Our iCandy Strawberry: Seat unit/Stroller and Carrycot.

**Quick warning, this post is quite photograph heavy**

We had looked at lots and lots and lots of reviews of travel systems, push chairs, strollers, joggers, car seats – everything! We came to the conclusion that we *needed* the iCandy Apple. No, not because we’re massive Apple fans… but because iCandy products are the most innovative, easy-on-the-eye and well received. Also, it’s quite important to us that iCandy is a British brand – we’re massive supporters of all things heritage, so this was also a key selling point for us!

Upon further investigation, we found that the iCandy Strawberry was due to be released – after much anticipation. We watched a ton of videos from trade fairs and Which, along with reviews, and decided that we now *needed* the iCandy Strawberry. We called up John Lewis dozens of times awaiting the delivery of it to the shop floor so we could look at it in real life. FINALLY, it had arrived at the Oxford Street store, so we dashed down after work to have a butchers.

We were not disappointed – but knew there was a waiting list and all products that were being delivered, were going straight to customers who had pre-ordered, months and months and months previous.

We looked at a handful of forums and spoke to iCandy stockists and found that we were likely to have a 3 month wait. So we thought, ‘sod it, let’s get it ordered’. So at just 12 weeks pregnant, we ordered the entire package from John Lewis in Stratford. We just wanted to keep it simple colour-wise, black goes with everything – and is unisex. So we ordered the seat unit (£450) and seat unit flavour pack in Assam (£75) along with carry cot (£95) and carry cot flavour pack in Assam (£75).

We were told that we’d get a phone call when everything was in stock, ready for dispatch. Personally, I thought it would be longer than the 3 month wait… judging by conversations around the amount of pre-orders and the length of time it takes to dispatch to the stockist – for the stockist to then dispatch to the customer directly. Just 3 weeks later we got a phone call saying that all items would be delivered in a further 3 days time! We couldn’t believe it.

But hey, I did say we were organised, didn’t I? 😉

So, obviously, at just 24+1 weeks pregnant, we haven’t given it a proper test drive yet. But check out the pictures. We’re chuffed with it! Will have to follow up on this post when Baby Boy actually arrives! From driving it around the house, I can confirm that it is smooth, easy to manoeuvre and quite light. The iCandy Strawberry comes with ‘memory’, meaning that it can be folded with the seat unit attached still – it will then unfold back into the same position before it was folded.

What’s in the box? iCandy Strawberry Chassis, Stroller seat unit, bumper bar, wheels, rain cover and instructions/warranty.

What’s in the box? iCandy carrycot, bumper bar, rain cover, instructions/warranty.

Carry cot attached, with bumper bar. The carry cot features the Assam flavour pack – hood and cover.

Stroller, rear facing. The stroller features the Assam flavour pack – hood and seat cover.

Stroller, front facing.

Folded, free standing, with stroller still attached.

Folded, laid flat with stroller still attached.

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We’ve also ordered the Maxi Cosi Cabriofix car seat from Amazon, which attaches to the iCandy Strawberry chassis. You need to purchase the Maxi Cosi Cabriofix adapters (£30) however!

The complete iCandy Strawberry Travel System that we purchased above came to a total of £725 from John Lewis. We still need to purchase a the Parasol (£25), which can now be purchased online at JohnLewis.com

MM.

 

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Re-Scan: Echocardiogram and Anomaly Scan at 21+4 Weeks.

Tuesday 20th March: 4D scan! Fetal Heart Echo (Echocardiogram) and 20 Week Anomaly Scan at UCLH.

This Tuesday we went back to the Fetal Medicine Unit for a repeat Echocardiogram, doubled up with our 20 week Anomaly Scan. We are absolutely chuffed to say that every appears normal and all of baby boys organs are working correctly. So we will have no further review organ-wise, which is great news! The specialist was also (more than!) kind enough to surprise us with a few sneaky peaks at a 4D scan of our baby boy! It was absolutely incredible.

The extensive scan did however highlight that in some views there was a suspicion of Talipes (club foot). But in other views both feet appeared normal. The specialist also noted that the range of movements in all joints is normal. So this basically means that we have to go back to the FMU in about 4 weeks time to have a repeat scan to confirm or exclude the suspicion.

If it is found that one of his feet are a little on the wonky side, there are tons of things that can be done – without the need of surgery. So we’re happy.

Just also curious to find out if you had a baby with a suspected club foot and your experiences? What happened after the birth?

Here are some measurements and findings from the Anomaly scan that you might find useful. We were told these measurements were pretty much spot on for gestation, 21+4 weeks.

Biparietal Diameter (BPD): 52.4 mm

Head Circumference (HC): 189.1 mm

Abdominal Circumference (AC): 168.0 mm

Nuchal Fold Thickness (NT): 5.3 mm

Nasal Bone: 7.3 mm

Femur Length: 34.1 mm

Estimated Fetal Weight (BPD, HC, AC, FL): 416g / 15oz

MM.

 

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Beyonce proudly displays growing bump in new video.

It was the news we’d all been waiting for from celebritydom, Beyonce and Jay-Z expecting their first child together. Beyonce had never been shy of the fact she wanted to start a family with her husband; even pointing out prior to her announcement that she wanted to start a family before she was 30, “I always said I would have a baby at 30. But I also said I was going to retire at 30. So I don’t know.I am not retiring, I tell you”.

Here’s a sneak peak of Beyonce in her brand new, 60s inspired music video for her latest single, which is appropriately titled, ‘Countdown’. You’ll also notice that Beyonce proudly displays her growing baby bump throughout the video (previews this weekend).