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#ThisIsMyChild Talipes and Torticollis | MR ELI WALKS!

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I have been waiting to write this blog post for SO SO LONG.

Mr Eli was diagnosed with Bilateral Talipes when he was 25 weeks old, in utero. We were told it would be mild when he was born. Granted, it didn’t look anywhere near as bad as we were expecting when he was born – and there was a lot of flexibility in his feet, which was good news.

8 weeks into doing stretching exercises at home, we hit a brick wall (I was also told at Eli’s 8 week check by the top GP in the practice that his feet would “correct themselves”). I finally got a physio appointment for Eli when he was 10 weeks old. Roll onto 13 weeks and we were seeing our Consultant, who said Eli would be following the Ponseti Method of treatment for Talipes – plaster casts followed by wearing Ponseti Boots & Bar. Eli had plaster casts for 6 weeks, up to the top of his thighs. It was quite frankly, horrendous. He was old enough to understand a bedtime routine with his lovely soothing bath. He was old enough to want to roll over. We were without these things for 6 weeks and of course, without any sleep too! In December 2012 Eli began wearing his Ponseti Boots & Bar, 23 hours a day. For the one hour he had the boots off, he had a ‘run around’ and his lovely bath. He wore the boots & bar full time for 6 months, going down to just wearing them at nighttime (12 hours) after our 6 month appointment. At 10 months old Eli started cruising the furniture (and anything else he could get his hands on!). Since then, Eli has had several good reviews with his Consultant. The last appointment we had in November 2013 was amazing – his feet look just like a ‘normal’ child’s’ feet. Our Consultant was so happy, he almost packed the boots & bar in for good – but we have to be sensible, there’s always a chance of relapse and we didn’t want Eli to stop wearing the boots & bar too soon; after all, most Talipes children wear the boots & bar until they reach 5 years old.

At 16 months, Eli took his first few steps between Mr Memoirs and me – aided by the bribe of a dummy (which he only has for bed).

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At 17 months old he’s walking, completely unaided and with a degree of good balance (he’s currently having a bout of Torticollis at the minute, so he’s sloping off to the one side). When his Torticollis sorts itself out in the next few days we’re very confident that Eli will be dashing everywhere. Of course, the Torticollis does coincide with the fact he has reached yet another milestone. (He also has Chickenpox, to boot! That’s another blog post in itself).

We’ve had this lots before, but I know most people would be saying:

“Keep him crawling as long as you can, you don’t want him running about yet – you’ll be shattered!”

“Hope you’re ready for all that running about!” 

“Oh god, now the fun really starts.” (AS IF it’s a negative thing?!).

“You’ll regret saying you want a walker!”

But my goodness me, we’ve wanted nothing more than to be worn out after running around with our little boy. I don’t think people realise sometimes – and I understand that people do speak without thinking too. This still feels very surreal to us. An absolutely amazing achievement for our darling boy – we’re so proud we could BURST.

Without the treatment that Eli has gone through, he would not be walking – full stop. All the tears, endless sleepless nights, stress and strain was all completely worth it.

There is literally nothing more wonderful in life than seeing your child grow and develop. And our brave little soldier is growing and developing just perfectly.

MAGIC.

MM.

 

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Happy (post) Halloween!

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As previously mentioned, at Halloween Mr Eli is ALWAYS going to be a Mr Skellington (complete with Converse!). Here he is in his second year of skellyton-ness! This year his outfit is actually pyjama’s from Gap KIDS: Glow in the dark skeleton sleep set. It’s sold out at the minute, but always comes back in stock.

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We love this little Skeleton Boy SO MUCH! 

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Flying Mr Skellington!

After Mr Skellington Eli had his bath, Daddy asked if Eli could indeed go to bed in his skeleton outfit pyjamas. Who are we to decline a skeleton of his threads? So Mr Skellington did indeed go to bed suited and booted! He was a little confused at his outfit when he woke up I think…

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Please do share what your little ones dressed as this Halloween!

 

MM.

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Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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I have been looking, with interest, at some of the posts that have been published during the This Is My Child awareness campaign via Mumsnet. We live our life day-to-day as normal. Because THIS is our ‘normal’. Eli is our first born and we know no different. But I suppose, our story is different. I’ve not really highlighted Eli’s Talipes or (recently diagnosed) Benign Paroxysmal Torticollis on my blog before. I have mentioned in a few posts about his Talipes. But nothing in depth. So here it goes!

Everything stems back to when I was pregnant. I had a very tough first few weeks, after a bleed we were told that the pregnancy might not be viable at a 5 week early-pregnancy scan and told to return in 3 weeks time; where we saw the most amazing and incredibly tiny flickering – a heartbeat! PHEW!

We so looked forward to that 12 week scan. The sonographer was lovely, but seemed concerned. Eli was jumping ALL OVER, I thought she was just having difficulty measuring up dates because he wouldn’t keep still. She then turned the machines off and said she was sorry to tell us that our bundle of joy had a “nuchal fold measurement on the cusp of high”. The exact measurement was 3.5 mm. This was indeed the cusp before they offer you further investigation. We needed to know. We were informed that a high NT measurement could mean a multitude of conditions, including Down Syndrome. This was heartbreaking. This baby was so wanted – we needed to know what we were facing. We had ‘counselling’ and I had bloods taken. The nurse then called University College Hospital London and told us they had a referral for the the very next day. We were told we could have a more in-depth scan at the Fetal Medicine Unit; where we would also be offered the option of CVS – which would indeed confirm any anomalies, through a horrendously invasive procedure. After the lengthy scan with several specialists, we were advised that we could either go ahead with CVS there and then, or wait… It had been picked up that there was a lack of nasal bone; another marker for Down Syndrome. Our world shattered. HOW WOULD WE COPE?! We went ahead with the CVS there and then. It was like a whirlwind.

The procedure was horrible. Just horrible. I had soreness and tenderness for a few days after. Not to mention the constant worry and stress of the risk of miscarriage. It was a very very hard time for both of us, waiting for the results. 3 weeks passed and we received a letter confirming that everything was spot on with Eli. He didn’t have any of the common anomalies that CVS tests for.  We were over the moon to say the very least. PHEW!

But this was not the end of our hospital visits. To cut the (very!) long story short – we had a total of 9 scans. Because of the NT measurement, Eli’s heart, organs and growth was routinely monitored. He developed fantastically. At the 25 week scan, it was found our baby had a degree of Bilateral Talipes.  But it was “extremely mild”. PHEW! It was corrective. We were happy. In the grand scheme of things.

Fast forward to almost 42 weeks pregnant, I was just a HUGE pregnant ball; unable to move, pretty much. That little boy was so so squashed up inside my petite 5 ft nothing 1″ frame. I was eventually induced. Which, shock horror was just the WORST thing ever. (Incidentally, I would never recommend an induction. Just bloody wait till the baby wants to arrive!). After 30 hours of labour, Eli was pulled out of me in an emergency situation using Ventouse. He was out, safe, at long last. PHEW.

Or so we thought.

We both immediately looked at his feets. Yes, they turned in, but probably weren’t half as badly affected as we were imagining.

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Again, fast forward to 8 weeks old. We’d not been seen by a specialist. Not even had a referral. At Eli’s 8 week check the GP who was head of the surgery, told me that his feet would ‘correct themselves when he learns to walk’. I wasn’t happy with that. We’d been massaging, manipulating and exercising Eli’s feets since birth, but at about 8-10 weeks had hit that brick wall. They weren’t getting any better. With the encouragement from @BexandMic on Twitter, who’s beautiful son Hugo was also born with Talipes, I kicked off at the Health Visitor. I got a referral to see a Physio about his feet. At the very first appointment our lovely Physio, Jenny, pointed out that Eli’s head was tilted to the left. I couldn’t understand what she was referring to, he just couldn’t hold his head up yet… She explained it looked like he had something called Torticollis. Possibly from being so squashed up during pregnancy, possibly from the trauma of being pulled out so quickly. I was given exercises to do with his neck regularly, after a week, his head was straight! I still to this day can’t believe we didn’t notice it. Looking back at photos, his neck is completely to his shoulder on every single one. There was still tightness after a few sessions with the Physio and more manipulation on our part. We eventually saw our consultant, Mr Tuite at Broomfield Hospital on 31st October. Eli was almost 14 weeks old. Worryingly, most children with Talipes begin their treatment shortly after birth.

We were devastated when Mr Tuite said that Eli would in fact require plaster casts to begin the correction process. Mr Eli was pretty mobile at 14 weeks old! He was used to his bedtime routine and his bath. We knew the casts were for the best though. We had to do it. We were told Eli had really mild Talipes, again, so would require 2 weeks worth of casts…

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6 weeks later Eli was still in casts. It was incredibly tough.

Being the age Eli was, we got a lot of stares. You could just tell people must have thought he’d been dropped and had broken legs. When people asked what had happened, they didn’t understand. They made me feel like the story I was telling was a pack of lies. It was just a horrendous feeling. We did however have luck on our side, in the fact that it was Winter when Eli was in casts. It wasn’t hot, he would have been so much more uncomfortable if it was! He spent a lot of time in long socks and snow suits! In hindsight, I wish I’d been more confident with his casts. Embraced them more. Decorated them, even. The casts did not hinder Eli in any way, he was rolling over in them and they were SO heavy and awkward. He kicked his legs up and down and bashed the casts to bits! He was so brave – he didn’t sleep at night, but hey, he doesn’t now either!

The Torticollis would occur when Eli seemed to meet new milestones. It wasn’t constant. It was irregular. His neck tilted for around a week when he started rolling, sitting up and crawling. But also seemed to coincide with teething too. We continued to repeat the exercises and manipulations.

Mid-December 2012 and Eli went into Ponseti Boots and Bars 23 hours a day. He got an hour “free” where we gave him his bath and he had a kick about afterwards. This was a huge relief. We could get back to normality somewhat. We hadn’t even thought about the visual  impact the Boots and Bar contraption would have on other people. After our journey, we had just accepted what we had to go through.

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In the coming weeks, I had an array of comments and conversations about his B & B’s.

“They’re funky boots” “Thanks! They’re to straighten his feet” “ohh… I thought they were just fashion accessories! I’m so sorry. Didn’t realise your son was ill”. “He’s not ill?”

“Does he have broken legs?”

“Does he have broken hips?”

“Is that a contraption to stop him wriggling away from you?”

“Do they make him taller?” “WHAT?!”

 Etc. Etc. Etc.

We had a lot of nasty glances. A lot of nasty sniggers. I’m REALLY not thick-skinned at all. Like I say, I’d completely accepted that this was his treatment. It did not bother me. This was normal to us now – this was part of our every day lives! Until someone pointed his feet out, or made that eye contact, that’s when I’d think. Then it would upset me. But, I needed to get through that for him. It was in his very best interests. He wouldn’t be able to walk without it! Had we just been too blasé about the entire thing?!

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Eli wore his B & B’s for 23 hours a day, for 6 months. Most children wear them for 23 hours a day for just 3 months, then hours are dropped throughout the day until they eventually just wear them at night time. To our surprise, Eli went straight down to just nights at our next review. This was just insanely cool. It was just magical seeing him so free. His feet look PERFECT! We’re so so pleased. We’re also convinced though, that Eli struggles at night time because of his boots and bar. He’s free all day long, then come bedtime he’s confined. He can’t move with ease. It’s uncomfortable and heavy. He will sleep for 2-4 hours at a time. Then I will need to settle him. There has been nights where I have taken his bar or both his boots and bar off, and he’s slept soundly. I’m sacrificing my sleep so he can walk. Easy decision. I do worry it’s not good for him, the broken sleep. But what can I do?!

At 10 months, he started pulling himself up and cruising around his play pen. I can’t tell you how proud we both were. It was just so special; still is! SUPER PROUD PARENTS!

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Not long after Eli started standing up, there was an afternoon where Eli was particularly miserable. Anyone who knows Eli knows he is a jolly boy. Barely cries. He’s only ever grumpy in the night! He was super grizzly. I put it down to teething. Then he projectile vomited. His neck was tilted. He went floppy in my arms, the colour drained from usual his rosy cheeks, his eyes rolled back and he seemed to pass out. I was beside myself. Naturally. I rang my OH who calmed me down. I’ve never been so frightened, it was seriously scary. This had happened previously, but I wasn’t there. Another bout of sickness and drowsiness and I let Eli sleep. We then recalled another time when he projectile vomited (he was never a sicky baby so could recall these occasions clearly). Within in a few hours, his neck was back to its mid-line straight position. Without any manipulation. We worked out that they all coincided with his neck tilting. Could the Torticollis be causing this?

I took Eli to the doctors – who were, USELESS. He googled Torticollis and told me what Wikipedia says… He said he’d seen just one other case of this and to go back to the Physio if I was concerned. Hell yeah I was concerned. We didn’t know if it was underlining with something else. I went to Portugal for 4 days. Eli had another bout of the sickness and drowsiness with the Torticollis. Again, his neck had straightened up itself by the next morning. It was all definitely linked.

I went to the Physio again after my trip. She was lovely, she explained that the condition was Benign Paroxysmal Torticollis. This variation of Torticollis comes in waves, or ‘attacks’. The attacks can last anywhere from minutes, to hours, to days and is accompanied by vomiting, pallorataxia, agitation, infantile migraine, unsteadiness of gait upon learning to walk, general malaise and nystagmus. All sounded about right. The periods in which the child’s head is tilted and other symptoms appear can last anywhere from a few minutes to a few days, with a frequency of anywhere from two per year to two per month. Looking back at the frequency of the attacks, we’ve found they seem to happen at the beginning of the month – every month, so far. It seems to surround teething, more than milestones now.

So now we know.

But what to do about it. Well, we’ve been told my several doctors and the physio (as well as Google) that Benign Paroxysmal Torticollis is something that Eli will grow out of, probably by school age.

His most recent attack was on 6th August, his 1st birthday. His neck didn’t straighten up quickly this time though, it’s taken a good 10 days this time.

The additional care that Eli requires surrounds his Talipes and his Benign Paroxysmal Torticollis. We don’t know when he’ll be out of his boots and bar, could be at his next appointment (28th August), could be when he’s 3 or 4 or 5. We also worry about relapse; there’s also cases where the feet have been over-corrected so they point outwards. We also do not know when he will have another attack of Benign Paroxysmal Torticollis, or the severity. I have to carry dozens of muslins with me, just incase he projectile vomits. I often worry it’s just going to come out of nowhere. I also worry about when he goes to nursery – are there people who are going to be able to look after him if he has an attack? Luckily, at the minute, I can work from home. But he will need to go into nursery sooner rather than later, for him to be able to socialise with children his age, more than anything else.

We currently do not receive any help, support or funding. I do know of people who have been granted Disability Living Allowance for their children with Talipes.

I’d absolutely LOVE to hear from others who have experiences with Talipes or Benign Paroxysmal Torticollis. The latter being quite rare, so not heard or seen anyone else who has had a child with BPT.

Would we have had it any other way? Ideally, I’d love to have Eli without all the discomfort and challenges he’s faced – of course I would. But my goodness me, he’s a brave boy. He’s SUCH a character. And frankly, it’s made me and my OH better people. We’re stronger. We understand.

Worry, worry worry – isn’t that what all parents do?

MM.

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What Eli Wore: Happy 9 month birthday!

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What Eli Wore today >>>

Top: Dinosaur Tee, Next, £6. Click here to purchase online.

Bottoms: Navy Shorts (pack of 2), Next, £11. Click here to purchase online.

Head: Hat (pack of 2 hats), Next, £GIFT.

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Today Mr Eli is 9 months old! He has officially now been out as long as he was in! Incredible. What a 9 months it has been. Completely full of up’s and down’s – and I wouldn’t change it for the world. Mr Eli is just an amazing human being – such a character. Our beautiful darling boy xxx

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To celebrate it being sunny, a bank holiday AND Eli’s 9 month birthday, we headed to Southend for the day. Got to make the most of that sunshine! Eli (with a little encouragement from us….) is a huge dinosaur fan. I’d been looking for some ‘cool’ dinosaur items of clothing for a while. But not really seen anything aside from realistic dinosaur graphics (which just look plain scary!) or overly-cartoonish style dinosaur graphics. But when I saw this tee from Next I practically POUNCED on it! It’s a great looking tee – cool dino print on front and back with a little chest pocket. Lovely stuff. Also have to mention these shorts! Because Eli will probably be wearing them a lot over the summer! They’re a 2-pack from Next, £11. Come in Navy and a Cargo-Brown colourway. They’re extremely hardwaring, wash great, wicked quality and made using a heavy cotton so they can be dressed up (with a shirt) or dressed down, like today.

Next have some really good clothing this season for your little man. I tend to go for mini-Daddy style clothing, rather than cute kids clothing. So if you’re after the same kind of thing, give Next a whirl. So so good. Great prices too!

MM.

 

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Oh hello, it’s been a while…

Merry Christmas and Happy New Year!

I know, I know. It’s been a canny while. Life has been pretty hectic to say the very least.

SO MUCH has happened since I last properly updated.

– Mr Eli has been in and out of plaster casts for his Talipes treatment. He’s currently in full time B & B (Boots and Bars). I’ll do a proper update on this too.

– We’ve had our first Christmas together, which was AMAZING.

– New Year came and went without a hitch.

– Started feeding Eli proper, actual, proper food! Which he LOVES.

– We’ve been here, there and everywhere visiting friends and family.

– I finally overcome some very difficult decisions and feel a ton has been lifted from my shoulders… albeit, it has been replaced with a wee bit of stress. But I’ll reveal all later! It’s all a bit hush hush right now.

– I’ve FINALLY started driving lessons! It’s only taken me 10 years.

Think that’s all for now. Will catch up again VERY soon!

MM.