PREGNANCY & ME // THE DUE WINDOW

As I sit  bounce on my birth ball and write this post, I am currently 40 weeks and 2 days pregnant.

The “Any news?” and the “How are you feeling today…. ?” and the “Any twinges?” and the “Any sign of movement?” and the “Do you think it’ll be today?” and even the “ARE YOU IN LABOUR?!” messages are coming in thick and fast. In fact, they’ve been coming in thick and fast since around 35 weeks. Granted, the influx of messages this past week isn’t helped by my stint on BBC Radio 1 with Scott Mills & Chris Stark; that was my bad. But also, imagine this, 5 weeks of daily messages that aren’t really helping with my precious Oxytocin* levels.

*Oxytocin is the ‘love hormone’. The hormone we release when we feel good. This exact same hormone is responsible for every single surge we experience during labour. The hormone that drives your labour is Oxytocin – so we want to ensure our body is filled with Oxytocin!

I know the messages are well meaning and I know they’re from a good place, mostly of excitement for us all, which is lovely! Even when its from the random ‘friend’ with whom you’re “friends” with on Facebook, but haven’t spoken to since you left school or the SECURITY GUARD in sodding Waitrose! I’ve been polite and responded with my favourite affirmation, “My baby will come when my baby is ready”. – Which I know has caused some annoyance, but it is a true statement and it’s my go-to affirmation! Let’s be honest though, we really aren’t going to forget to message or indeed announce the arrival of our little babe. Honestly, we won’t…. Unless the messages and calls and comments keep coming, in which case, maybe we won’t tell you anything  😉 (To say that, The First Fourty Days: The Essential Art of Nourishing a New Mother is looking very favourable right now, would not be an understatement 😉 haha)

So, with this all in mind, my phone is either on silent or on Do Not Disturb…or perhaps I’m resting/nesting/napping/busy hanging with Eli. And if I do happen to open a message regarding the imminent arrival of our little one, even if its sent under the clever guise of “How are you doing today? Not as hot, which must be great for you!“, then I’m truthfully sorry, but I just cannot reply to these messages or comments any longer. James will update you instead. I’ve already taken myself away from social media (if you hadn’t noticed). The pressure of going into the later stages of my ‘due window’ and receiving daily communications like the above is driving me to distraction. I was tempted to switch my phone off completely… but I would assume that reaching the answer phone would only stir up additional excitement. So Do Not Disturb and having James monitor my messages it is. This might sound drastic or even dramatic, but in the most polite of terms, I have to put myself first now. I struggle with anxiety, and I’m dealing with all-sorts in me head as it is, so from my own personal perspective, this is just something that I need to do.

Being ‘overdue’ is exactly why we should be given a DUE WINDOW – or a ‘due month’. Every NHS provider here in the UK will allow a woman to reach 42 weeks before any medical assistance. And even then, we can decline intervention of any kind, unless there is a medical necessity of course. Therefore your ‘due window’ ranges from 37 weeks to 42 weeks. As my sister pointed out the other day, women have been giving birth for millions of years without assistance – they’ve also been giving birth without a specific time slot for the baby’s arrival too.

The obsession on due dates is mind-blowing. The pressure on women to give birth by an exact date is ridiculous. Dates can be wrong, really wrong. My cycle following my miscarriage went from being a standard 28 days to anything up to 35 days. I don’t know the exact moment I ovulated and I don’t know the exact moment I conceived this little babe. My body is not a robot, and neither is my baby. So how on earth is the baby meant to know when to arrive?! She doesn’t get an alarm clock in there that goes off at 40 weeks.  In actual fact, here in the UK, only 3-5% of babies are born on their ‘due date’. Thats potentially 97% of women going into the later stages of their own due window. This is quite commonplace. And even though I’ve been doing alllllllll of the old wives tales (Curry, Pineapple – of which has now severely blistered my tongue, x3 cups of Raspberry Leaf Tea a day, 6 dates a day etc), NOTHING will kickstart labour unless the mother is relaxed, calm and at ease. Any slight stress or apprehension, (darling family and friends, I am really sorry, but the messages are included here) WILL stop labour from starting. This most certainly happened with Eli so I have been doing EVERYTHING I can to avoid the trauma of Eli’s labour and birth happening a second time around – with Hypnobirthing playing the integral part here <<<< That will be my next post.

So, until I’m stress-free and relaxed, my baby will not release the hormone, Fibronectin. Yes, this is getting very Science, but as I said, this is not down to me, this is all precise science. Fibronectin is the protein produced by the baby which is released into the amniotic sac. This protein is then picked up by the cervix and given the go ahead to start labour. My baby quite literally knows when and how to be born.

Here is a list of things keeping me busy in the meantime:

  • “My baby will come when my baby is ready” – by literal means, as mentioned above. I trust that my baby and my body will work together when the time is right. My baby is cosy and healthy and safe in there right now. She’s still kicking the crap out of my ribs and undercarriage. So thats the main thing!
  • Napping.
  • Cleaning and tidying, again.
  • Probably re-packing my hospital bags for the 100th time.
  • Waking every hour during the night to empty what appears to be a full bladder that comes from god only knows where.
  • Ordering a take away because its too hot and I’m too tired to cook.
  • Enjoying the final days/weeks of my pregnancy – I feel so lucky to have had these last 9 months with my bump (despite the sickness, the additional appointments, the SPD and despite the hot, hot heat!). If this is the last time I’m pregnant, I really want to treasure it in the final stages.
  • Practicing my Hypnobirthing affirmations and Up/Down breathing.
  • Over-using my birth ball.
Bathing in Clary Sage, eating all the chocolate and drinking all the faux-prosecco!

 

  • Likely to be nagging delegating jobs to James.
  • Most importantly of all, I’m cherishing being able to hang out with our nearly 7 year old boy who’s life is also about to be turned upside down when his little sister finally decides to arrive. The Summer holidays have fallen at just the right time for us – so I’m treating these final days, just us two, as a real luxury.

I know and understand its difficult to be patient when you’re excited for us – we’re desperately trying to be patient too! And also please know, that this post isn’t meant to cause offence, its more just a way to update you all with were we’re at. I apologise profusely if this does offend; this is sincerely not my intention and I really hope you can all understand. We honestly appreciate all of the kind words and messages; I will look back over everything when the babe is here 🙂 James will also be in touch when anything of significance happens. And we promise we won’t forget to let you know when she does to decide to arrive Earthside.

Which you never know, could always be sooner than we think 🙂

C
✖️✖️✖️

 

 

 

Talipes | Struggling to find First Walker shoes.

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As I’ve mentioned, our darling boy is doing well with his walking – despite being born with Bilateral Talipes.

We’ve always just wanted Mr Eli to wear his Converse – just like Daddy (and occasionally Mummy too!). But we noticed that the Con’s just weren’t offering him much support around his ankles; and frankly, his new red Hi-Top’s are absolutely massive a wee bit big.

Eli’s Size 4 Black Converse trainers were too small, his toes are end the toe cap, so he had been wearing his new Red Hi Top Converse – which are a 5. We went to Clarks at the weekend where Eli was measured – his feet came up as a size 3F. The assistant did advise that Clarks sizing does vary against branded shoes, but it did make us think that Eli is really not wearing correct footwear right now. He requires a pair of shoes that will support his feet as he gains confidence in his walking, but also a pair that will encourage him to keep walking. The Converse he has right now seem to deter his walking as they’re ill-fitting, so he’s been mainly in stocking feet. Obviously, he can’t go outside the house like this, so we need to find him so First Walker shoes.

Here the issue begins…

It’s very common for children with Talipes to have odd-sized feet or feet that are on the smaller side. One foot could be a size 4, while the other foot could be a size 6. Meaning many children are bought two pairs of shoes to ensure they have correct fitting shoes for each foot. Clarks DO offer a discount for children affected however – you can read all about the Clark’s Odd Sized Feet Scheme on the STEPS charity website. Luckily, Eli’s feet do match up perfectly – but they are small. We didn’t realise until we started looking at the First Walker shoes in the shop… all of the shoes start at a size 4. The Pre-Walker/Cruiser shoes start at a size 3. But the sole is very thin on these styles and there isn’t the support on the shoe for a child who IS indeed walking.

We were looking online last night. Call me ridiculous if you will, but there are A LOT of boring or frankly unfashionable First Walker shoes out there. I know Eli is not par-taking in a fashion show, but we do take pride in our little man’s appearance, he has his own style. Also, these shoes are not cheap, so we want to make sure we’re all happy with them as he’ll have them on most of the day.

We don’t want velcro – we’re not a velcro family. We’d prefer Eli to be in Desert Boots, Brogue style shoes or at a push, some fashionable trainers. Take a look at the styles we’ve seen so far below…

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First Walker Shoes, Desert Boots in Brown £36.00 – Click here to purchase at Clarks.com

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First Walker Shoes, Desert Boots in Brown £36.00 – Click here to purchase at Clarks.com

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First Walker Shoes, Crazy Crew in Khaki, £36.00 – Click here to purchase at Clarks.com

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Digby, Zip up Brogue Boots, £40.00 – Available from StartRite.com

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Sullivan Brogue Shoes, WAS £49 NOW £18.00 – Available from StartRite.com

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Sullivan Brogue Shoes, WAS £49 NOW £18.00 – Available from StartRite.com

As you will notice, all of the lovely shoes above start at a size 4. So we’re in a wee pickle. If you have purchased from StartRite.com before, do their shoes match the size guide of Clarks? I’m so tempted to just get the size 4F shoes, especially considering the rate of growth; but can’t be sure that they will fit Eli correctly. So would ideally like to go into a shop to be able to have them expertly fitted.

Can you recommend any other stores where you can buy similar styles to the above? That perhaps start at ‘Clarks size 3F’ or the measured equivalent?  (And styles that don’t cost an arm-and-a-leg, to boot).

MM.

#ThisIsMyChild Talipes and Torticollis | MR ELI WALKS!

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I have been waiting to write this blog post for SO SO LONG.

Mr Eli was diagnosed with Bilateral Talipes when he was 25 weeks old, in utero. We were told it would be mild when he was born. Granted, it didn’t look anywhere near as bad as we were expecting when he was born – and there was a lot of flexibility in his feet, which was good news.

8 weeks into doing stretching exercises at home, we hit a brick wall (I was also told at Eli’s 8 week check by the top GP in the practice that his feet would “correct themselves”). I finally got a physio appointment for Eli when he was 10 weeks old. Roll onto 13 weeks and we were seeing our Consultant, who said Eli would be following the Ponseti Method of treatment for Talipes – plaster casts followed by wearing Ponseti Boots & Bar. Eli had plaster casts for 6 weeks, up to the top of his thighs. It was quite frankly, horrendous. He was old enough to understand a bedtime routine with his lovely soothing bath. He was old enough to want to roll over. We were without these things for 6 weeks and of course, without any sleep too! In December 2012 Eli began wearing his Ponseti Boots & Bar, 23 hours a day. For the one hour he had the boots off, he had a ‘run around’ and his lovely bath. He wore the boots & bar full time for 6 months, going down to just wearing them at nighttime (12 hours) after our 6 month appointment. At 10 months old Eli started cruising the furniture (and anything else he could get his hands on!). Since then, Eli has had several good reviews with his Consultant. The last appointment we had in November 2013 was amazing – his feet look just like a ‘normal’ child’s’ feet. Our Consultant was so happy, he almost packed the boots & bar in for good – but we have to be sensible, there’s always a chance of relapse and we didn’t want Eli to stop wearing the boots & bar too soon; after all, most Talipes children wear the boots & bar until they reach 5 years old.

At 16 months, Eli took his first few steps between Mr Memoirs and me – aided by the bribe of a dummy (which he only has for bed).

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At 17 months old he’s walking, completely unaided and with a degree of good balance (he’s currently having a bout of Torticollis at the minute, so he’s sloping off to the one side). When his Torticollis sorts itself out in the next few days we’re very confident that Eli will be dashing everywhere. Of course, the Torticollis does coincide with the fact he has reached yet another milestone. (He also has Chickenpox, to boot! That’s another blog post in itself).

We’ve had this lots before, but I know most people would be saying:

“Keep him crawling as long as you can, you don’t want him running about yet – you’ll be shattered!”

“Hope you’re ready for all that running about!” 

“Oh god, now the fun really starts.” (AS IF it’s a negative thing?!).

“You’ll regret saying you want a walker!”

But my goodness me, we’ve wanted nothing more than to be worn out after running around with our little boy. I don’t think people realise sometimes – and I understand that people do speak without thinking too. This still feels very surreal to us. An absolutely amazing achievement for our darling boy – we’re so proud we could BURST.

Without the treatment that Eli has gone through, he would not be walking – full stop. All the tears, endless sleepless nights, stress and strain was all completely worth it.

There is literally nothing more wonderful in life than seeing your child grow and develop. And our brave little soldier is growing and developing just perfectly.

MAGIC.

MM.

 

Welcome to 2014.

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Ok, so, I’m massively late with the old HAPPY NEW YEAR post… in fact, I’ve been really rather absent from my blog over the past few weeks. Work and life in general has certainly taken over. But alas, better late than never – HAPPY NEW YEAR TO YOU ALL!

Today is Monday, it’s coming up to lunchtime and Eli is fast asleep (still…hmmm). So I thought I best check in and say WELCOME TO 2014. I’m sincerely hoping to keep on top of my blog this year, I did quite well last year – but as I say, my posts did tail off with life becoming mad-hectic!

I’m looking very forward to the year ahead – hoping for lots of adventures and memories made with my family and friends.

2014 so far has not been uneventful – and we’re only on Day 6 of the year.

Mr Eli went into hospital on Thursday 2nd January for a MRI brain scan to further investigate his Torticollis (following the horrid attack he had on 7th November 2013) – for which he had to go under anaesthetic for. Truly just the worst experience; and biggest challenge of our parenting lives to date. Just horrendous, and so so distressing for us. However, he did come through the other side ok and came back to his jolly-self relatively quickly. We’re now awaiting the results, this should take 4 weeks. When we’ve got the all clear (which we’re certain we will), I will then write a dedicated post on the processes we faced on the 2nd January and the outcome of course.

Not wanting to leave this first post of 2014 on a sombre note – Mr Eli took 4 steps between OH and I last night. We pretty much screamed the house down. Eli has been confident on his feet since around 11 months old, cruising around the furniture and between gaps at lightening speed. Eli does however, travel at the speed of actual light on all fours – always has. This has, we feel, come at a detriment to the development of his walking. Talipes aside, Eli is STILL well within the ‘normal’ remit of when children do hit the walking unaided milestone. We think he’s just being a little bit casual with it due to the fact he travels so so quickly when crawling instead. Hopefully over the next few weeks Eli will gain that much needed confidence and quite literally, ‘find his feet’.

Wishing you all well in 2014.

MM.

 

 

 

Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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I have been looking, with interest, at some of the posts that have been published during the This Is My Child awareness campaign via Mumsnet. We live our life day-to-day as normal. Because THIS is our ‘normal’. Eli is our first born and we know no different. But I suppose, our story is different. I’ve not really highlighted Eli’s Talipes or (recently diagnosed) Benign Paroxysmal Torticollis on my blog before. I have mentioned in a few posts about his Talipes. But nothing in depth. So here it goes!

Everything stems back to when I was pregnant. I had a very tough first few weeks, after a bleed we were told that the pregnancy might not be viable at a 5 week early-pregnancy scan and told to return in 3 weeks time; where we saw the most amazing and incredibly tiny flickering – a heartbeat! PHEW!

We so looked forward to that 12 week scan. The sonographer was lovely, but seemed concerned. Eli was jumping ALL OVER, I thought she was just having difficulty measuring up dates because he wouldn’t keep still. She then turned the machines off and said she was sorry to tell us that our bundle of joy had a “nuchal fold measurement on the cusp of high”. The exact measurement was 3.5 mm. This was indeed the cusp before they offer you further investigation. We needed to know. We were informed that a high NT measurement could mean a multitude of conditions, including Down Syndrome. This was heartbreaking. This baby was so wanted – we needed to know what we were facing. We had ‘counselling’ and I had bloods taken. The nurse then called University College Hospital London and told us they had a referral for the the very next day. We were told we could have a more in-depth scan at the Fetal Medicine Unit; where we would also be offered the option of CVS – which would indeed confirm any anomalies, through a horrendously invasive procedure. After the lengthy scan with several specialists, we were advised that we could either go ahead with CVS there and then, or wait… It had been picked up that there was a lack of nasal bone; another marker for Down Syndrome. Our world shattered. HOW WOULD WE COPE?! We went ahead with the CVS there and then. It was like a whirlwind.

The procedure was horrible. Just horrible. I had soreness and tenderness for a few days after. Not to mention the constant worry and stress of the risk of miscarriage. It was a very very hard time for both of us, waiting for the results. 3 weeks passed and we received a letter confirming that everything was spot on with Eli. He didn’t have any of the common anomalies that CVS tests for.  We were over the moon to say the very least. PHEW!

But this was not the end of our hospital visits. To cut the (very!) long story short – we had a total of 9 scans. Because of the NT measurement, Eli’s heart, organs and growth was routinely monitored. He developed fantastically. At the 25 week scan, it was found our baby had a degree of Bilateral Talipes.  But it was “extremely mild”. PHEW! It was corrective. We were happy. In the grand scheme of things.

Fast forward to almost 42 weeks pregnant, I was just a HUGE pregnant ball; unable to move, pretty much. That little boy was so so squashed up inside my petite 5 ft nothing 1″ frame. I was eventually induced. Which, shock horror was just the WORST thing ever. (Incidentally, I would never recommend an induction. Just bloody wait till the baby wants to arrive!). After 30 hours of labour, Eli was pulled out of me in an emergency situation using Ventouse. He was out, safe, at long last. PHEW.

Or so we thought.

We both immediately looked at his feets. Yes, they turned in, but probably weren’t half as badly affected as we were imagining.

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Again, fast forward to 8 weeks old. We’d not been seen by a specialist. Not even had a referral. At Eli’s 8 week check the GP who was head of the surgery, told me that his feet would ‘correct themselves when he learns to walk’. I wasn’t happy with that. We’d been massaging, manipulating and exercising Eli’s feets since birth, but at about 8-10 weeks had hit that brick wall. They weren’t getting any better. With the encouragement from @BexandMic on Twitter, who’s beautiful son Hugo was also born with Talipes, I kicked off at the Health Visitor. I got a referral to see a Physio about his feet. At the very first appointment our lovely Physio, Jenny, pointed out that Eli’s head was tilted to the left. I couldn’t understand what she was referring to, he just couldn’t hold his head up yet… She explained it looked like he had something called Torticollis. Possibly from being so squashed up during pregnancy, possibly from the trauma of being pulled out so quickly. I was given exercises to do with his neck regularly, after a week, his head was straight! I still to this day can’t believe we didn’t notice it. Looking back at photos, his neck is completely to his shoulder on every single one. There was still tightness after a few sessions with the Physio and more manipulation on our part. We eventually saw our consultant, Mr Tuite at Broomfield Hospital on 31st October. Eli was almost 14 weeks old. Worryingly, most children with Talipes begin their treatment shortly after birth.

We were devastated when Mr Tuite said that Eli would in fact require plaster casts to begin the correction process. Mr Eli was pretty mobile at 14 weeks old! He was used to his bedtime routine and his bath. We knew the casts were for the best though. We had to do it. We were told Eli had really mild Talipes, again, so would require 2 weeks worth of casts…

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6 weeks later Eli was still in casts. It was incredibly tough.

Being the age Eli was, we got a lot of stares. You could just tell people must have thought he’d been dropped and had broken legs. When people asked what had happened, they didn’t understand. They made me feel like the story I was telling was a pack of lies. It was just a horrendous feeling. We did however have luck on our side, in the fact that it was Winter when Eli was in casts. It wasn’t hot, he would have been so much more uncomfortable if it was! He spent a lot of time in long socks and snow suits! In hindsight, I wish I’d been more confident with his casts. Embraced them more. Decorated them, even. The casts did not hinder Eli in any way, he was rolling over in them and they were SO heavy and awkward. He kicked his legs up and down and bashed the casts to bits! He was so brave – he didn’t sleep at night, but hey, he doesn’t now either!

The Torticollis would occur when Eli seemed to meet new milestones. It wasn’t constant. It was irregular. His neck tilted for around a week when he started rolling, sitting up and crawling. But also seemed to coincide with teething too. We continued to repeat the exercises and manipulations.

Mid-December 2012 and Eli went into Ponseti Boots and Bars 23 hours a day. He got an hour “free” where we gave him his bath and he had a kick about afterwards. This was a huge relief. We could get back to normality somewhat. We hadn’t even thought about the visual  impact the Boots and Bar contraption would have on other people. After our journey, we had just accepted what we had to go through.

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In the coming weeks, I had an array of comments and conversations about his B & B’s.

“They’re funky boots” “Thanks! They’re to straighten his feet” “ohh… I thought they were just fashion accessories! I’m so sorry. Didn’t realise your son was ill”. “He’s not ill?”

“Does he have broken legs?”

“Does he have broken hips?”

“Is that a contraption to stop him wriggling away from you?”

“Do they make him taller?” “WHAT?!”

 Etc. Etc. Etc.

We had a lot of nasty glances. A lot of nasty sniggers. I’m REALLY not thick-skinned at all. Like I say, I’d completely accepted that this was his treatment. It did not bother me. This was normal to us now – this was part of our every day lives! Until someone pointed his feet out, or made that eye contact, that’s when I’d think. Then it would upset me. But, I needed to get through that for him. It was in his very best interests. He wouldn’t be able to walk without it! Had we just been too blasé about the entire thing?!

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Eli wore his B & B’s for 23 hours a day, for 6 months. Most children wear them for 23 hours a day for just 3 months, then hours are dropped throughout the day until they eventually just wear them at night time. To our surprise, Eli went straight down to just nights at our next review. This was just insanely cool. It was just magical seeing him so free. His feet look PERFECT! We’re so so pleased. We’re also convinced though, that Eli struggles at night time because of his boots and bar. He’s free all day long, then come bedtime he’s confined. He can’t move with ease. It’s uncomfortable and heavy. He will sleep for 2-4 hours at a time. Then I will need to settle him. There has been nights where I have taken his bar or both his boots and bar off, and he’s slept soundly. I’m sacrificing my sleep so he can walk. Easy decision. I do worry it’s not good for him, the broken sleep. But what can I do?!

At 10 months, he started pulling himself up and cruising around his play pen. I can’t tell you how proud we both were. It was just so special; still is! SUPER PROUD PARENTS!

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Not long after Eli started standing up, there was an afternoon where Eli was particularly miserable. Anyone who knows Eli knows he is a jolly boy. Barely cries. He’s only ever grumpy in the night! He was super grizzly. I put it down to teething. Then he projectile vomited. His neck was tilted. He went floppy in my arms, the colour drained from usual his rosy cheeks, his eyes rolled back and he seemed to pass out. I was beside myself. Naturally. I rang my OH who calmed me down. I’ve never been so frightened, it was seriously scary. This had happened previously, but I wasn’t there. Another bout of sickness and drowsiness and I let Eli sleep. We then recalled another time when he projectile vomited (he was never a sicky baby so could recall these occasions clearly). Within in a few hours, his neck was back to its mid-line straight position. Without any manipulation. We worked out that they all coincided with his neck tilting. Could the Torticollis be causing this?

I took Eli to the doctors – who were, USELESS. He googled Torticollis and told me what Wikipedia says… He said he’d seen just one other case of this and to go back to the Physio if I was concerned. Hell yeah I was concerned. We didn’t know if it was underlining with something else. I went to Portugal for 4 days. Eli had another bout of the sickness and drowsiness with the Torticollis. Again, his neck had straightened up itself by the next morning. It was all definitely linked.

I went to the Physio again after my trip. She was lovely, she explained that the condition was Benign Paroxysmal Torticollis. This variation of Torticollis comes in waves, or ‘attacks’. The attacks can last anywhere from minutes, to hours, to days and is accompanied by vomiting, pallorataxia, agitation, infantile migraine, unsteadiness of gait upon learning to walk, general malaise and nystagmus. All sounded about right. The periods in which the child’s head is tilted and other symptoms appear can last anywhere from a few minutes to a few days, with a frequency of anywhere from two per year to two per month. Looking back at the frequency of the attacks, we’ve found they seem to happen at the beginning of the month – every month, so far. It seems to surround teething, more than milestones now.

So now we know.

But what to do about it. Well, we’ve been told my several doctors and the physio (as well as Google) that Benign Paroxysmal Torticollis is something that Eli will grow out of, probably by school age.

His most recent attack was on 6th August, his 1st birthday. His neck didn’t straighten up quickly this time though, it’s taken a good 10 days this time.

The additional care that Eli requires surrounds his Talipes and his Benign Paroxysmal Torticollis. We don’t know when he’ll be out of his boots and bar, could be at his next appointment (28th August), could be when he’s 3 or 4 or 5. We also worry about relapse; there’s also cases where the feet have been over-corrected so they point outwards. We also do not know when he will have another attack of Benign Paroxysmal Torticollis, or the severity. I have to carry dozens of muslins with me, just incase he projectile vomits. I often worry it’s just going to come out of nowhere. I also worry about when he goes to nursery – are there people who are going to be able to look after him if he has an attack? Luckily, at the minute, I can work from home. But he will need to go into nursery sooner rather than later, for him to be able to socialise with children his age, more than anything else.

We currently do not receive any help, support or funding. I do know of people who have been granted Disability Living Allowance for their children with Talipes.

I’d absolutely LOVE to hear from others who have experiences with Talipes or Benign Paroxysmal Torticollis. The latter being quite rare, so not heard or seen anyone else who has had a child with BPT.

Would we have had it any other way? Ideally, I’d love to have Eli without all the discomfort and challenges he’s faced – of course I would. But my goodness me, he’s a brave boy. He’s SUCH a character. And frankly, it’s made me and my OH better people. We’re stronger. We understand.

Worry, worry worry – isn’t that what all parents do?

MM.

Weekly Update: 41 Weeks Pregnant // We’re overdue!

Well, I definitely DID NOT think I would be writing a weekly pregnancy update at 41 weeks and 1 day pregnant, that is for sure!

But it’s been quite a week so here is my update, thus far.

I had the first of my two ‘Sweeps’ on Wednesday. During my appointment at Broomfield, I met with my lovely Midwife, Caroline and Consultant. Both parties were concerned about the size of Boy – obviously, he’d measured up large for dates since Week 28. But on Wednesday I measured at 44cm (44 weeks pregnant). SO! They both agreed that I should not go past Sunday without having Boy as he’s looking too large now. So another Sweep was also organised for Friday (yesterday), incase the first one didn’t work. I was also tested for MRSA and given the usual checks, all of which were fine.

The first sweep did not work, despite me having really painful period pains and contractions for 10 hours! So feeling a little despondent, back to the hospital we went again yesterday. A second sweep was performed and the Midwife really gave it a good go – she even tickled Boy’s head – which was a bit strange! When we got home I was convinced the sweep had worked! So we had yet ANOTHER curry and bounced on my ball as we watched more Olympic’s 🙂

But no, the second sweep doesn’t appear to have worked either! BOO 🙁

I also just wanted to point out that a sweep really doesn’t hurt. Yes, it was uncomfortable – but it’s going to be. I can honestly not believe that people have said this procedure is painful on forums and other blogs.

So, it looks like we’ll be going back to the hospital tomorrow to have the induction kick-started. I have to call in advance to ensure we have a bed and will be given a Propess Pessary when ready. We’ll be staying in the hospital for at least 6 hours and will be sent home if nothing happens. Then we have to go back within 24 hours for assessment and if nothing else happens, we’ll be having my waters broken and placed on a drip. Which I’m REALLY hoping won’t happen as I desperately wanted a water birth. Water has helped so so much during my pregnancy – I’ve literally not been out the bath! It’s been so helpful for my SPD pains.

So keep your fingers and toes crossed that Boy decides he wants to come naturally tonight, so we don’t have all the hassle tomorrow!

MM.

Weekly Update: 40 Weeks Pregnant // Today is our DUE DATE.

Last Saturday we went to a wedding! This is us at 39+1 weeks.

Baby size at 40 weeks: 50 cm long.

Baby weight at 40 weeks:  7.6 + lbs

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Well, here we are. The day I didn’t think we’d actually get to! Today is our DUE DATE. Actually cannot believe that Boy hasn’t arrived before now!

I’d convinced ourselves that I’ve been in “slow labour” since Monday of this week. I’ve either been going to bed with VERY regular and quite intense contractions… or waking up at 3:30am with the pains. The pains start off as period style cramps (front and back) and nausea, then I get the tightening across my tummy. I’ve also had the most excruciating stabbing pains in my undercarriage at the same time. It’s been the most frustrating thing EVER. Every night we’ve gone to bed thinking “THIS IS IT!!!”. Last night felt like Christmas Eve and we went to bed incredibly excited! But Christmas hasn’t arrived so far today 🙁

BOOO!

Now I’m going to have a little rant – please excuse me! 🙂

I went for my final Midwife check up yesterday and have to say I wasn’t (and still aren’t!) happy with how it went. Firstly, there was a student midwife left in charge. No other help at all! I’d normally have my assigned midwife, and then a student if she had one that week. So I was really very shocked. Now, I do not mind students or trainee’s to do the usual checks – I’m all for it! How else will people learn, without practical case studies!? But yesterday was my last appointment, I had lots of questions and frankly the midwife just wasn’t experienced enough!

Firstly, she did my blood pressure and it came out as 110/80. Which is about usual for me, as per my notes (which, she did look through after checking each and . She said my blood pressure was HIGH? But this blood pressure is ‘optimal’ if anything! I ignored it.

Then it came to measuring me. Now I’ve measured big the entire time. Last Thursday I measured 42cm (by two different people!). Now I know this is not an exact science and normally don’t read anything into the fundal measurements – especially since we had our growth scan a fortnight ago! But she measured me at *just* 38 weeks. So obviously, I was dubious. I asked her to re-measure me as I can’t have lost 4cm in the space of a week – I’m usually growing 3cm a week! She re-measured me and said “Oh yes, about 40cm”. Whatever.

THEN she went to check Boy’s heart rate. But nothing was registering on the doppler. She started to panic, pulling the probe across my tummy. I showed her where to locate his heart beat. But it still wasn’t registering on the monitor… She blamed the machine and said it must be broken. But it wasn’t broken, SHE HADN’T PUT GEL ON THE PROBE! Struth.

THEN! I asked if she was going to examine me. Especially considering the contractions and pains I’ve been experiencing. She said she wasn’t allowed due to “policy”. I was completely under the illusion that you were given an internal at 40 weeks, to check your cervix/dilation?! Apparently not at my hospital! Or was it the case that she wasn’t supervised?! So frustrated!! And it’s doing nothing for my Oxytocin levels!

So I’m not very happy. At all.

My next appointment will be for my sweep at Broomfield Hospital on Wednesday 1st August. But hey, Boy is DEFINITELY coming this weekend, so we won’t be attending that appointment 😉

 

So what is happening to baby boy this week?

Fig 1: http://www.babycentre.co.uk/pregnancy/fetaldevelopment/40weeks/

After months of anticipation, your due date has been and gone, and… you’re still pregnant. It’s frustrating, but lots of women find themselves in this situation. Your baby continues to shed the greasy, white substance (vernix caseosa) which has been protecting his skin. If he shows no sign of making an appearance after another week, he may have slightly dry skin when he arrives.

Your baby has mastered all the skills he’ll need after he’s born. He can instinctively search for his thumb and suck it, just as he will search for your breast for a feed soon after birth.

 

MM.

 

Weekly Update: 39 Weeks Pregnant.

Here we are at 38 + 1 weeks pregnant at the Day Assessment Unit in Broomfield Hospital.

Baby size at 39 weeks: 50 cm long.

Baby weight at 39 weeks:  7.2 + lbs

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Me and the internet have been having a somewhat long distance relationship the last fortnight! I’ve been absolutely EXHAUSTED. I’ve been getting up around 4-5 times a night for a wee (HOW?!) and been snoozing throughout the day. Aside from when I’ve been having hospital appointments and meeting the girls from my NCT group!

So, I’m just a week away from my due date. I REALLY thought Boy would have arrived by now. Considering how big he is! But clearly, he’s just far too cosy in there.

Last week I went to the doctors about my rash (Pruritic Urticarial Papules and Plaques of Pregnancy) who was beyond blasé about the whole thing. By Saturday of last week, I’d scratched myself so badly I was drawing blood. I was also struggling with my SPD, so we took a trip up to the Day Assessment Unit at Broomfield to seek their advice. I was taken to an assessment room and hooked up to a monitor for 45 mins. I had lots and lots of tests done. But the doctors were not concerned about my rash – it’s quite common and will disappear after Boy arrives. What they were concerned about was the fact I’m still measuring big! I was measuring just over 41 weeks. So went for a growth scan on Wednesday of this week while we awaited results for late onset Gestational Diabetes. Boy is measuring correctly for 39 weeks… apart from his tummy! He’s a little bit on the chunky side 😀 To us, he sounds absolutely SCRUMMY! The scan, at so far into my pregnancy, was incredible! You could see his spiky hair at the back of his head! But because he was so big and squashed, you really couldn’t see as much as on earlier scans. SO, it’s back to the waiting game!

Boy is still head down (good boy) and is 2/5th palpable – which means only 2/5th’s of his head can now be felt above my pelvis. So that’s good.

We REALLY hope he arrives soon – we’re beyond impatient! 🙁

 

So what is happening to baby boy this week?

Fig 1: http://www.babycentre.co.uk/pregnancy/fetaldevelopment/39weeks/

It’s all about watching and waiting now, as your baby could arrive any day. Your baby could be up to 50cm long, and weigh about 3kg.

The hair on your baby’s head may now be thick, and his fingernails extend beyond his fingertips. They may look long when he’s born. Your baby’s skull bones are not yet fused, which allows them to overlap as he passes through the birth canal during labour. This is the reason your baby’s head may look cone-shaped after birth.

 

MM.

Weekly Update: 37 Weeks Pregnant // Full Term!

Here we are at 36 + 3 weeks pregnant! Not long now!

Baby size at 37 weeks: 49 cm long.

Baby weight at 37 weeks:  6.1+ lbs

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This week we are FULL TERM! Absolutely ecstatic 😀

So this weekly update comes to you late, again. I had to give the interw3bz the old ‘heave ho’ this last week as I was ACTUALLY resting up! I’m finally listening to what my body wants… Well, I gave in more like.

This week I have somehow managed to develop PUPPP (pruritic uticarial pupules and placques of pregnancy or also known as, polymorphic eruption of pregnancy). With me being small and petite before my pregnancy, my tummy has had a good old stretch into my third trimester, where I started getting stretch marks to my hips, upper thighs and some under my belly button. But that was it…. I had my pregnancy massage last week and noted that some of the stretch marks under my belly button were sore and itchy. Since then, they became REALLY itchy. To point where I have zero self-control and have itched them to the point of bleeding. The stretch marks formed bumpy rashes that have since developed into ‘hive’ like spots. The rashes have spread to my upper and lower (inside) arms, behind my knees and my chest. It’s the most uncomfortable thing ever. PUPPP mixed with SPD has been horrendous. Through false labour into the equation and you have my week pretty much wrapped up!

So what could be causing the PUPPP? Well, PUPPP is more common in mothers with large fundal measurements and/or those who are carrying large babies, twins, and triplets. Certain studies reveal that this condition is more frequent in women carrying boys, although no formal research has been conducted. Statistics cite that 70% percent of PUPPP sufferers deliver boys.

Well, as I have documented throughout my updates, baby boy bump has always measured large (around 5 weeks bigger than the average measurements). In fact, at my last midwife appointment he was described as “larger than average”. So this all adds up. I’ve only been able to lather myself in E45 cream and continued to take Piriton which I was prescribed for my Hayfever. I’ve also tried E45 oil in luke-warm baths (hot water can irritate the rash and make you even more itchy!). It doesn’t seem to be getting any better to be quite truthful, but allegedly it’s another one of those pregnancy ailments that just magically disappear when you finally pop! So fingers crossed!

So as you can probably tell, I am not a happy bunny all-in-all.

So what is happening to baby boy this week?

Fig 1: http://www.babycentre.co.uk/pregnancy/fetaldevelopment/37weeks/

Your baby is now considered to be “full term”. That means they are capable of feeding and breathing outside the womb without any medical assistance. Your baby is starting to look nice and plump, and will continue putting weight on steadily until they’re born. The new fat stores are keeping their body temperature about 0.3-0.5°C above yours. They’ll need to be wrapped up warmly after they’re born though, otherwise their bare wet skin will lose heat rapidly. Your baby is also showing all the reflexes they will have as a newborn, curling their fingers and toes tightly around objects (grasp reflex) and turning their head and opening their mouth when something touches their cheek (rooting reflex). They’ll need this last reflex to find your nipple once they’re born.
Your baby’s head is now cradled in your pelvic cavity – surrounded and protected by your pelvic bones. This position clears some much-needed space for his growing legs and buttocks. Many babies now have a full head of hair, with locks up to 3.5cm long. And then, of course, some babies don’t have any hair at all. Speaking of hair, most of the downy coat of lanugo that covered your baby from 26 weeks has disappeared, and so has most of the vernix caseosa, the protective whitish substance that also covered him.

 

MM.

Weekly Update: 36 Weeks Pregnant

Fig 1: http://www.babycentre.co.uk/pregnancy/fetaldevelopment/36weeks/

Baby size at 36 weeks: 47 cm long.
Baby weight at 36weeks:  5.9+ lbs

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So this has been my first week away from work… it’s been strange. It feels like I’m just on holiday at the minute and have to go back next week! Very surreal.

I’ve had a busy week this week, despite trying to relax. On Monday I went to see a Physio regarding my SPD. There’s literally nothing we can do. I just have to suck it up basically. But the Physio did say that because of the way my coccyx has moved, it’s actually in a better position for labour – along with the fact that all of my ligaments have softened early. It should all make for a more comfortable birth (FINGERS CROSSED!!).

On Tuesday I had a Mummy-To-Be massage! It was incredible! I will be writing a separate post on this.

Wednesday we had a tumble dryer delivered! Considering the weather, we can’t really use the whirlygig (as much as I’d love to!) and we just won’t have the space to hang the laundry to dry around the house soon – so it made sense! Especially as I’ll be washing A LOT more soon!

Yesterday I had my standard Midwife appointment. Baby boy is still measuring up big – 38 and half weeks! The Midwife also pointed out that Baby Boy feels “larger than average”. OH DEAR. She also said that she thinks he may weigh something in the region of 9 and half lbs at full term. OUCH. I’m only 5 ft 1, so it’s absolutely no wonder I’ve been in agony with my pelvis! He’s a heavy boy! Baby Boy has also slid further into my pelvis and is sitting “low”. Aside from that, everything is absolutely normal.

I then met up with some of the lovely ladies from my NCT group and we went along to a session called ‘Bumps and Babes’ in Brentwood. The four of us were the only bumps there… but there were lots of babes! It was so so nice to catch up with the girls from my group, outside of the group and without partners! But it was also great to observe new mum’s and their beautiful babies for the afternoon. It was a great insight into how babies behave and react in the early early months… and made us all feel a lot more positive about taking our brand new baba’s out. Added bonus was coffee and cake! Yummy. Will hopefully be able to go next week too.

Feeling-wise, I’m still suffering with my SPD. It’s really painful after walking… and when I get up first thing. I’ve had another increase in Braxton Hicks and been getting stabbing pains in my undercarriage – apparently all normal.

 

So what is happening to baby boy this week?

Any time now, your baby might start to move down lower in the pelvis, getting ready to be born. This is called ‘lightening’. Your little one weighs around 6lb this week and is about 47cm long.

MM.