Edie_Rainbow_Baby

Mr Eli has Talipes…What happened next?

Just hours after Eli was born, 6th August 2012.

It’s just dawned on me that I have failed to write about Eli’s Talipes! I did blog about it when I was pregnant as it was found when I was having additional scans at UCLH, you can see the original post here: Hospital Update: Baby Boy bump has (mild) Bilateral Talipes. And I mentioned it in the 4 week update I did, here: An Eli Update: 4 Weeks Young. But I haven’t updated my blog with the developments since…

So from the top, it was found during an additional scan at UCLH that ‘baby boy bump’ had mild Bilateral Talipes. As the weeks progressed and I got bigger,  it meant that ‘baby boy bump’ got more and more squashed up inside me. This was the cause for Eli’s Talipes; it’s “positional” due to him literally being too big for me!

As you can see, from the first picture above (taken just a few hours after Eli was born), the Talipes looks really mild. But it turns out Eli was quite lethargic after my traumatic labour and birth. It wasn’t until he was home that we noticed how much he pulled his feet inwards (picture below).

This photo looks distorted, must have been a strange angle! Eli is 4 days old.

We were seen by a Paediatrician just before we left Broomfield Hospital and we were told that Eli would need his hips X-rayed and of course, Physio. I was told to expect both appointments within a few weeks.

After 3 weeks, I spoke to my Health Visitor who advised to wait one more week and then chase. I chased and chased and chased. I was pushed from pillar to post between departments. I couldn’t believe how badly organised everything was. (Hence why I haven’t actually written about this until now!). It was an absolute shambles. I finally received an appointment for Eli to have his hips scanned when he was 7 weeks old. During the scan I was told his hips were absolutely fine! (PHEW!) And again, that his feet were an isolated case due to him being so crammed in (Sorry boy).

I was STILL yet to receive an appointment for his Physio at this point. But as we have common sense, from birth, we had been massaging Eli’s feet ourselves with exercises we found on the internetz.

8 weeks old, after his first set of immunisations.

-You can see Eli’s left foot is much straight, but his right is still pulling inwards.

We saw a marked improvement with this – until about 9 weeks, when it just seemed to not get any better. It felt like we’d hit a brick wall. I finally had my appointment with the Physio when Eli turned 10 weeks. I’d like to point out at this is appalling. It took 10 weeks to finally see someone and the Physiotherapist, although absolutely lovely, gave me the exact same exercises to do. She said that it’s the muscles and tendons on the insides of both feet that are tight; causing Eli to pull his feet inwards. She suggested that Eli might need plaster casts, and in her opinion, it would only be for a week. I already had another appointment organised with a leading Talipes Consultant at Broomfield for when Eli was 12 weeks old. Again, this is terrible – we should have had Eli seen by a Consultant WAY BEFORE he got to 3 months old. I’m extremely unhappy about how long it’s taken and the awful communication, or lack thereof, between departments.

10 weeks old feets 🙂 

Last week we finally saw the Consultant at Broomfield. He looked at Eli’s legs, hips, spine, neck and feet. Which we didn’t expect, but was really reassuring. He agreed that Eli has Positional Talipes and has advised a course of plaster cast treatments. The casts will go from his foot and up his thigh – to avoid him kicking the pot off! When the Consultant left I spoke with the Senior Nurse (who organised our first appointment for THIS week). The Nurse advised that Eli will wear the casts for up to a fortnight at a time and will then need to wear special boots inbetween plaster cast treatment, the Consultant did not mention this, so I’ll see on Wednesday of this week what the definite course of treatment will actually entail. This sounds like Eli would be undergoing the Ponseti Method, but like I say, we’ll find out this week.

I am SO SO pleased that our beautiful baby boy is finally getting his little feets sorted out. Better late than never I suppose.

I’d like to hear from you. Has your little one undergone treatment for Talipes? What was your experience? Can you offer any advice or tips?

MM.

Edie_Rainbow_Baby

Woe is me… I have SPD.

As I’ve documented over my recent Weekly Updates, I’ve been suffering with what I thought was just ligament pain. Albeit, with ‘just’ ligament pain I should have probably kicked up more of a fuss (I hate causing fuss and I hate fuss!). But since Saturday last week I’ve been in absolute agony with my coccyx. To the point of screaming to just roll over in bed. And I like to think I’ve got a high pain threshold! Needless to say, I’ve not slept since Friday night (and that was a rubbish night’s sleep anyway!). On top of this, I’ve had a cold… a proper cold. Every single time I’ve sneezed it’s felt like my undercarriage was going to rip out of me. Horrendous.

I’d reluctantly started taking paracetamol on Sunday as the hot baths and heat compresses had failed to ease the pain; and had the long Jubilee weekend to rest. But forced myseld into work yesterday. I cried on the train journey in, just limbering on the edge of the seat. I got to work and was completely drained. I felt emotional and tired out. I couldn’t sit in my chair at my desk. As I’ve mentioned before, I’m the first pregnancy in my department, EVER. So have found it difficult when having even just standard Midwife appointments – people continuously asking why I’m at the Midwife so much. (As if I need to explain my medical situation anyway! I would NEVER ask a colleague why they’d visited the Doctors, would you?!). So when I’d been suffering with the aforementioned ligament pain, I found that people were more or less confused or found my blatant explanation “distasteful”. Goodness knows why! So of course, when I got to work yesterday in obvious pain, explaining that my coccyx were killing me didn’t go down all too well. I don’t think people understand just how sodding painful it is!

So I thought SOD IT. And got myself to the doctors at 5pm. The Doctor examined me and diagnosed me with SPD (Symphysis Pubis Dysfunction). I’ve been referred to a Physio (not sure how long it will be before I get my appointment mind!) and has given me a cream to rub onto my coccyx and upped my paracetamol intake. He did offer to give me Codeine aswell, but refused this as it can affect the baby. He also gave me a sick note. My first sick note. So close to the end of work, before my Maternity Leave begins on 22nd June… so I’m quite disappointed with myself. I’ve never ever had a sick note. I didn’t even know what to do with the damn thing.

So that’s that. I’ve had my first day off work today and literally slept the entire day through. The paracetamol and sitting on a hot water bottle has helped.

I just need to keep on top of resting and relaxing. This is definitely my body’s way of telling me to SLOW DOWN.

Has anyone else suffered with SPD? What are your coping techniques? Did you get better post-partum?

MM.

 

Edie_Rainbow_Baby

Hospital Update: Meeting the Consultant and measuring 34 weeks at 28 weeks.

My favourite image of our Baby Boy so far! Taken at 20 weeks, UCLH. 20th March 2012.

Yesterday morning we drove up to Broomfield Hospital for another appointment with our Consultant; to discuss the findings from our last scan –The Bilateral Talipes. But our actual consultant was stuck on the M25 (of course), so we saw someone else and had to go through the whole rigmarole of explaining everything that’s happened in this rollercoaster of a pregnancy!

Fast forward half an hour and I’m on the couch being measured up with a tape measure again. At my Midwife appointment, less than a week ago, my bump was measuring up at 30cm, so 30 weeks – Weekly Update: 28 weeks. So had expected it to be about the same.The two Doctors measured me again… I was measuring 34cm, so one would assume, 34 weeks! UH OH.

I was referred for an emergency scan to check out baby boy’s measurements properly, along with an index of my amniotic fluid. Had to sit around the hospital for 3 hours until the scan. MASSIVE YAWN.

Had the scan and everything was FINE. He’s measuring up at 29 weeks (of which I am 29 weeks tomorrow). He weighs about 2 and a half pounds. He couldn’t be more spot on measurements wise, he’s spot on all the ‘average measurement’ lines on the scan graph. Which is great!

Also, my amniotic fluid is showing up at 6cm at the deepest point, which again, is absolutely normal! So everything is great. I just have a lot of my own water retention and bloating..possibly because I drink far too much water. What can I say? I’m a thirsty girl!

Additionally, the Sonographer also said that we no longer need to go back to have a scan at 32 weeks. She’s more than happy with the progress of everything and doesn’t see why we should have to go back to the hospital to review baby boy’s Talipes. Which is also fine by us! We’re over the moon! But at the same time, I’m also a little bit sad that we won’t be seeing our baby boy for a little while… in fact, the next time we see him will be when he’s ARRIVED! Which to be honest, is also a little bit scary! It’s all very very very REAL now. EXCITED.

So the moral of this story is, don’t believe the measurements! It was never going to be an exact science, measuring your bump – who thought it would be?!

MM.

Edie_Rainbow_Baby

Hospital Update: Baby Boy bump has (mild) Bilateral Talipes.

Wednesday 18th April: Re-scan at UCLH, Fetal Medicine Unit.

This morning we visited the Fetal Medicine Unity in UCLH (University College London Hospital) for the re-scan of baby boy bump’s feet – to confirm or exclude Talipes (Club Foot). Since my worrying Midwife appointment the other week, I’ve thought about nothing other than the results we might find at the scan today. Not about his feet though, I was thinking about everything else that it could be linked to. Yesterday the panic set in again and I started googling all sorts, which we all know, is probably the worst thing you can do – ever! Based on the, err, google search findings, I’d really worried myself about how his spine might be developing, as Talipes can be the result of other genetic disorders. This all combined with the Midwife appointment made me really really quite anxious in that waiting from this morning.

Appointment was for 9am, we arrived early, as always, at 8:30am. We went into see the FMU and Speciality Doctor who has performed our most recent scans at UCLH, at about 9:15am. Our Speciality Doctor is beyond thorough, so started off with checking the progress of the brain and heart. Then he went on to check other internal organs for size and function, making the necessary measurements and notes as he went along. (See below for measurements from this scan!) He muttered that “everything is developing beautifully”. Then he turned to the back, looking at the spine and ribcage. He pondered over the spine and I clenched onto OH’s hand. The Doctor didn’t say anything so I asked “Is his spine ok?”. He smiled and said “Of course, he’s beautifully in proportion and developing as he should be. It’s a good thing!”. PHEW. I was happy at that point 🙂

As baby boy bump has proven at every single scan, he’s a wriggler. He moves non-stop. Which is amazing! But not great when the Doctor is trying to desperately get a good view of his feet! It was at this point that he got the 4D scanning images up again – which is just incredible. It’s so amazing to see your baby’s face like that – unbelievable to be honest! But he was really wanting to get a good view of his feet… so it was a quick look at his cute-as-a-button face and then back to business.

The Doctor scanned his feet for about 15 minutes using both the 4D and 2D imaging. He then turned to us and said that he was “convinced there is a degree of Bilateral Talipes. But is extremely mild”. He then went on to discuss corrective methods and said he’d like the Consultant to take a look. The Consultant arrived and said that the Talipes was so mild that “I probably would have missed it to be honest!”.

So with all this in mind, we’re over the moon. Couldn’t be happier. We always knew this baby boy of ours would be a character, and he’s certainly that!

We”ve now been discharged from UCLH and referred back to the care of Broomfield. We will have another scan (YES!) at 32 weeks to see the progression of the Talipes. This will be our 8th scan, although these scans have not been under happy circumstances (mostly), we’re extremely grateful that we’ve been lucky enough to see our baby boy growing at every single stage. As long as the Talipes has progressed as it should (or hopefully, not at all) then we’ll remain within the care of Broomfield. We will not be treated any differently for the birth, so there is no reason for me not to have the Water Birth I’m planning! Once baba is born, we’ll obviously review the extent of the Talipes and take it from there.

Measurements at 25 weeks and 5 days.

Biparietal Diameter (BPD): 67.9 mm

Head Circumference (HC): 243.9 mm

Abdominal Circumference (AC): 213.3 mm

Nuchal Fold Thickness (NT): 5.6 mm

Nasal Bone: 7.4 mm

Femur Length: 45.5 mm

Estimated Fetal Weight (BPD, HC, AC, FL) :842 g / 1 lb 14oz

4D scan of baby boy’s face. He has my nose and chin and OH’s eyes. He’s playing hide and seek here though unfortunately! 

MM.

Edie_Rainbow_Baby

Re-Scan: Echocardiogram and Anomaly Scan at 21+4 Weeks.

Tuesday 20th March: 4D scan! Fetal Heart Echo (Echocardiogram) and 20 Week Anomaly Scan at UCLH.

This Tuesday we went back to the Fetal Medicine Unit for a repeat Echocardiogram, doubled up with our 20 week Anomaly Scan. We are absolutely chuffed to say that every appears normal and all of baby boys organs are working correctly. So we will have no further review organ-wise, which is great news! The specialist was also (more than!) kind enough to surprise us with a few sneaky peaks at a 4D scan of our baby boy! It was absolutely incredible.

The extensive scan did however highlight that in some views there was a suspicion of Talipes (club foot). But in other views both feet appeared normal. The specialist also noted that the range of movements in all joints is normal. So this basically means that we have to go back to the FMU in about 4 weeks time to have a repeat scan to confirm or exclude the suspicion.

If it is found that one of his feet are a little on the wonky side, there are tons of things that can be done – without the need of surgery. So we’re happy.

Just also curious to find out if you had a baby with a suspected club foot and your experiences? What happened after the birth?

Here are some measurements and findings from the Anomaly scan that you might find useful. We were told these measurements were pretty much spot on for gestation, 21+4 weeks.

Biparietal Diameter (BPD): 52.4 mm

Head Circumference (HC): 189.1 mm

Abdominal Circumference (AC): 168.0 mm

Nuchal Fold Thickness (NT): 5.3 mm

Nasal Bone: 7.3 mm

Femur Length: 34.1 mm

Estimated Fetal Weight (BPD, HC, AC, FL): 416g / 15oz

MM.

 

Edie_Rainbow_Baby

CVS: The Fetal Echo (Echocardiogram) at 16 weeks.

Tuesday 14th February: Fetal Heart Echo (Echocardiogram), at UCLH.

Today we went back to the Fetal Medicine Unit in University College London Hospital (UCLH) for a specialist Heart scan. The scan was performed like any other normal ultra-sound scan, but was dedicated to looking closely at the heart; the way the blood flowed, the rate and a close look at the chambers of the heart. The sonographer will use colours on the monitor to look at the blood flow etc – so don’t be alarmed if you see lots of red and blue splats all over the screen! (This looks a bit like a heat map).

Look how much bigger he is! (Image above). All his organs are now well formed and his bones were all clearly visible. He was, again, moving all over! Such a lively little boy we have!

We’re very happy to say that everything looks on course here! The blood is flowing the correct way and he has a smashing heart rate. But we have to go back on 20th March just to have another look, when he’ll be much bigger; he’s still pretty tiny at the minute. But overall, no cause for concern! 😀

MM.

 

 

Edie_Rainbow_Baby

CVS: The Full Results.

Thursday 2nd February: The full results came back.

I had anxiously waited all week for that ‘BLOCKED’ number to call me again. It got to 4pm every day and I felt physically sick. I was shaky, dizzy and unable to concentrate at work. I was going to give it until Friday 3rd February at lunchtime, and then I was going to call UCLH to chase up the results. I couldn’t bear another weekend not knowing.

We got home from another tiring day at work, I felt withdrawn and exhausted and drained at the fact I hadn’t had that phone call, again.

There was a few pieces of post on the doormat… including one postmarked ‘London’, the address was handwritten. I just KNEW these were the results. I felt that pang of sickness and dizziness again.

We sat down together on the sofa as I struggled to open the envelope. I quickly glanced over the letter just looking for the words ‘normal’ and ‘positive’ and ‘clear’. The letter was a generic, photocopied letter.

But we saw the words we desperately wanted.

“We are writing to inform you that the results from your CVS demonstrate that your baby has a normal chromosome pattern“.

We were overjoyed! The letter was post-marked as 30th January, so the results took less than the two weeks to actually come back. Shame the hospital couldn’t call me to tell me directly – it would have saved a whole lot of agony. But still, we got the results we hoped for!

The letter also stated that we could call the FMU department to find out the sex of our baby. We we desperate to find out! So I called first thing the next day and they called back to tell me that we were having a LITTLE BABY BOY!! Absolutely ecstatic. We weren’t hoping for a boy or a girl specifically, but were beyond surprised to find out we’re having a boy! My partner is the last male on his families side, so we’ll be carrying his family name on – which is a wonderful bonus! We’re still in shock – but it’s so lovely to be able to bond with him properly now. Our little boy 🙂 Most people don’t get to find out the sex of their baby until the 20 week scan and even then, the scan isn’t 100% accurate! So we felt a little bit smug knowing that we’re having a boy, and that it 100% definitely is a boy! 😀

The next stage was an Echocardiogram (detailed Fetal heart scan) at 16 weeks – scheduled for Tuesday 14th February. Aptly, on Valentines Day.

MM.