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Happy (post) Halloween!

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As previously mentioned, at Halloween Mr Eli is ALWAYS going to be a Mr Skellington (complete with Converse!). Here he is in his second year of skellyton-ness! This year his outfit is actually pyjama’s from Gap KIDS: Glow in the dark skeleton sleep set. It’s sold out at the minute, but always comes back in stock.

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We love this little Skeleton Boy SO MUCH! 

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Flying Mr Skellington!

After Mr Skellington Eli had his bath, Daddy asked if Eli could indeed go to bed in his skeleton outfit pyjamas. Who are we to decline a skeleton of his threads? So Mr Skellington did indeed go to bed suited and booted! He was a little confused at his outfit when he woke up I think…

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Please do share what your little ones dressed as this Halloween!

 

MM.

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Mr Eli’s Quarters | Lion Print by Ingela P Arrhenius.

INGELA P ARRHENIUS - LION PRINT, £20.00. Archie's Boutique.
INGELA P ARRHENIUS – LION PRINT, £20.00; Archie’s Boutique.

We’re still yet to properly decorate and sort out Mr Eli’s stomping ground, otherwise known as his quarters bedroom. But that doesn’t stop me trawling the internet for neat finds like this one!

I just LOVE this 50’s inspired print by Ingela P Arrhenius. Mr Eli is a Leo the Lion himself, so I thought this would be quite fitting for his bedroom. (Not that we’re a family of the zodiac I might add!).

I found this print on Archie’s Boutique and here is what they say about it:

This lovely chap has so much character and personality!

Ingela P Arrhenius’ Lion poster is full of vibrant colours that are guaranteed to brighten up any room, whether it be a child’s or adults.

Stockholm based artist Ingela Arrhenius designs the most wonderful cartoon-like illustrations that are inspired by work from the 50s and 60s.

50 x 70 cm

There are several other prints available online too – such as a Tiger print and Alphabet print. Just so cool.

MM.

 

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Mumsnet: This Is My Child | Mr Eli has Talipes and Benign Paroxysmal Torticollis.

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I have been looking, with interest, at some of the posts that have been published during the This Is My Child awareness campaign via Mumsnet. We live our life day-to-day as normal. Because THIS is our ‘normal’. Eli is our first born and we know no different. But I suppose, our story is different. I’ve not really highlighted Eli’s Talipes or (recently diagnosed) Benign Paroxysmal Torticollis on my blog before. I have mentioned in a few posts about his Talipes. But nothing in depth. So here it goes!

Everything stems back to when I was pregnant. I had a very tough first few weeks, after a bleed we were told that the pregnancy might not be viable at a 5 week early-pregnancy scan and told to return in 3 weeks time; where we saw the most amazing and incredibly tiny flickering – a heartbeat! PHEW!

We so looked forward to that 12 week scan. The sonographer was lovely, but seemed concerned. Eli was jumping ALL OVER, I thought she was just having difficulty measuring up dates because he wouldn’t keep still. She then turned the machines off and said she was sorry to tell us that our bundle of joy had a “nuchal fold measurement on the cusp of high”. The exact measurement was 3.5 mm. This was indeed the cusp before they offer you further investigation. We needed to know. We were informed that a high NT measurement could mean a multitude of conditions, including Down Syndrome. This was heartbreaking. This baby was so wanted – we needed to know what we were facing. We had ‘counselling’ and I had bloods taken. The nurse then called University College Hospital London and told us they had a referral for the the very next day. We were told we could have a more in-depth scan at the Fetal Medicine Unit; where we would also be offered the option of CVS – which would indeed confirm any anomalies, through a horrendously invasive procedure. After the lengthy scan with several specialists, we were advised that we could either go ahead with CVS there and then, or wait… It had been picked up that there was a lack of nasal bone; another marker for Down Syndrome. Our world shattered. HOW WOULD WE COPE?! We went ahead with the CVS there and then. It was like a whirlwind.

The procedure was horrible. Just horrible. I had soreness and tenderness for a few days after. Not to mention the constant worry and stress of the risk of miscarriage. It was a very very hard time for both of us, waiting for the results. 3 weeks passed and we received a letter confirming that everything was spot on with Eli. He didn’t have any of the common anomalies that CVS tests for.  We were over the moon to say the very least. PHEW!

But this was not the end of our hospital visits. To cut the (very!) long story short – we had a total of 9 scans. Because of the NT measurement, Eli’s heart, organs and growth was routinely monitored. He developed fantastically. At the 25 week scan, it was found our baby had a degree of Bilateral Talipes.  But it was “extremely mild”. PHEW! It was corrective. We were happy. In the grand scheme of things.

Fast forward to almost 42 weeks pregnant, I was just a HUGE pregnant ball; unable to move, pretty much. That little boy was so so squashed up inside my petite 5 ft nothing 1″ frame. I was eventually induced. Which, shock horror was just the WORST thing ever. (Incidentally, I would never recommend an induction. Just bloody wait till the baby wants to arrive!). After 30 hours of labour, Eli was pulled out of me in an emergency situation using Ventouse. He was out, safe, at long last. PHEW.

Or so we thought.

We both immediately looked at his feets. Yes, they turned in, but probably weren’t half as badly affected as we were imagining.

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Again, fast forward to 8 weeks old. We’d not been seen by a specialist. Not even had a referral. At Eli’s 8 week check the GP who was head of the surgery, told me that his feet would ‘correct themselves when he learns to walk’. I wasn’t happy with that. We’d been massaging, manipulating and exercising Eli’s feets since birth, but at about 8-10 weeks had hit that brick wall. They weren’t getting any better. With the encouragement from @BexandMic on Twitter, who’s beautiful son Hugo was also born with Talipes, I kicked off at the Health Visitor. I got a referral to see a Physio about his feet. At the very first appointment our lovely Physio, Jenny, pointed out that Eli’s head was tilted to the left. I couldn’t understand what she was referring to, he just couldn’t hold his head up yet… She explained it looked like he had something called Torticollis. Possibly from being so squashed up during pregnancy, possibly from the trauma of being pulled out so quickly. I was given exercises to do with his neck regularly, after a week, his head was straight! I still to this day can’t believe we didn’t notice it. Looking back at photos, his neck is completely to his shoulder on every single one. There was still tightness after a few sessions with the Physio and more manipulation on our part. We eventually saw our consultant, Mr Tuite at Broomfield Hospital on 31st October. Eli was almost 14 weeks old. Worryingly, most children with Talipes begin their treatment shortly after birth.

We were devastated when Mr Tuite said that Eli would in fact require plaster casts to begin the correction process. Mr Eli was pretty mobile at 14 weeks old! He was used to his bedtime routine and his bath. We knew the casts were for the best though. We had to do it. We were told Eli had really mild Talipes, again, so would require 2 weeks worth of casts…

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6 weeks later Eli was still in casts. It was incredibly tough.

Being the age Eli was, we got a lot of stares. You could just tell people must have thought he’d been dropped and had broken legs. When people asked what had happened, they didn’t understand. They made me feel like the story I was telling was a pack of lies. It was just a horrendous feeling. We did however have luck on our side, in the fact that it was Winter when Eli was in casts. It wasn’t hot, he would have been so much more uncomfortable if it was! He spent a lot of time in long socks and snow suits! In hindsight, I wish I’d been more confident with his casts. Embraced them more. Decorated them, even. The casts did not hinder Eli in any way, he was rolling over in them and they were SO heavy and awkward. He kicked his legs up and down and bashed the casts to bits! He was so brave – he didn’t sleep at night, but hey, he doesn’t now either!

The Torticollis would occur when Eli seemed to meet new milestones. It wasn’t constant. It was irregular. His neck tilted for around a week when he started rolling, sitting up and crawling. But also seemed to coincide with teething too. We continued to repeat the exercises and manipulations.

Mid-December 2012 and Eli went into Ponseti Boots and Bars 23 hours a day. He got an hour “free” where we gave him his bath and he had a kick about afterwards. This was a huge relief. We could get back to normality somewhat. We hadn’t even thought about the visual  impact the Boots and Bar contraption would have on other people. After our journey, we had just accepted what we had to go through.

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In the coming weeks, I had an array of comments and conversations about his B & B’s.

“They’re funky boots” “Thanks! They’re to straighten his feet” “ohh… I thought they were just fashion accessories! I’m so sorry. Didn’t realise your son was ill”. “He’s not ill?”

“Does he have broken legs?”

“Does he have broken hips?”

“Is that a contraption to stop him wriggling away from you?”

“Do they make him taller?” “WHAT?!”

 Etc. Etc. Etc.

We had a lot of nasty glances. A lot of nasty sniggers. I’m REALLY not thick-skinned at all. Like I say, I’d completely accepted that this was his treatment. It did not bother me. This was normal to us now – this was part of our every day lives! Until someone pointed his feet out, or made that eye contact, that’s when I’d think. Then it would upset me. But, I needed to get through that for him. It was in his very best interests. He wouldn’t be able to walk without it! Had we just been too blasé about the entire thing?!

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Eli wore his B & B’s for 23 hours a day, for 6 months. Most children wear them for 23 hours a day for just 3 months, then hours are dropped throughout the day until they eventually just wear them at night time. To our surprise, Eli went straight down to just nights at our next review. This was just insanely cool. It was just magical seeing him so free. His feet look PERFECT! We’re so so pleased. We’re also convinced though, that Eli struggles at night time because of his boots and bar. He’s free all day long, then come bedtime he’s confined. He can’t move with ease. It’s uncomfortable and heavy. He will sleep for 2-4 hours at a time. Then I will need to settle him. There has been nights where I have taken his bar or both his boots and bar off, and he’s slept soundly. I’m sacrificing my sleep so he can walk. Easy decision. I do worry it’s not good for him, the broken sleep. But what can I do?!

At 10 months, he started pulling himself up and cruising around his play pen. I can’t tell you how proud we both were. It was just so special; still is! SUPER PROUD PARENTS!

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Not long after Eli started standing up, there was an afternoon where Eli was particularly miserable. Anyone who knows Eli knows he is a jolly boy. Barely cries. He’s only ever grumpy in the night! He was super grizzly. I put it down to teething. Then he projectile vomited. His neck was tilted. He went floppy in my arms, the colour drained from usual his rosy cheeks, his eyes rolled back and he seemed to pass out. I was beside myself. Naturally. I rang my OH who calmed me down. I’ve never been so frightened, it was seriously scary. This had happened previously, but I wasn’t there. Another bout of sickness and drowsiness and I let Eli sleep. We then recalled another time when he projectile vomited (he was never a sicky baby so could recall these occasions clearly). Within in a few hours, his neck was back to its mid-line straight position. Without any manipulation. We worked out that they all coincided with his neck tilting. Could the Torticollis be causing this?

I took Eli to the doctors – who were, USELESS. He googled Torticollis and told me what Wikipedia says… He said he’d seen just one other case of this and to go back to the Physio if I was concerned. Hell yeah I was concerned. We didn’t know if it was underlining with something else. I went to Portugal for 4 days. Eli had another bout of the sickness and drowsiness with the Torticollis. Again, his neck had straightened up itself by the next morning. It was all definitely linked.

I went to the Physio again after my trip. She was lovely, she explained that the condition was Benign Paroxysmal Torticollis. This variation of Torticollis comes in waves, or ‘attacks’. The attacks can last anywhere from minutes, to hours, to days and is accompanied by vomiting, pallorataxia, agitation, infantile migraine, unsteadiness of gait upon learning to walk, general malaise and nystagmus. All sounded about right. The periods in which the child’s head is tilted and other symptoms appear can last anywhere from a few minutes to a few days, with a frequency of anywhere from two per year to two per month. Looking back at the frequency of the attacks, we’ve found they seem to happen at the beginning of the month – every month, so far. It seems to surround teething, more than milestones now.

So now we know.

But what to do about it. Well, we’ve been told my several doctors and the physio (as well as Google) that Benign Paroxysmal Torticollis is something that Eli will grow out of, probably by school age.

His most recent attack was on 6th August, his 1st birthday. His neck didn’t straighten up quickly this time though, it’s taken a good 10 days this time.

The additional care that Eli requires surrounds his Talipes and his Benign Paroxysmal Torticollis. We don’t know when he’ll be out of his boots and bar, could be at his next appointment (28th August), could be when he’s 3 or 4 or 5. We also worry about relapse; there’s also cases where the feet have been over-corrected so they point outwards. We also do not know when he will have another attack of Benign Paroxysmal Torticollis, or the severity. I have to carry dozens of muslins with me, just incase he projectile vomits. I often worry it’s just going to come out of nowhere. I also worry about when he goes to nursery – are there people who are going to be able to look after him if he has an attack? Luckily, at the minute, I can work from home. But he will need to go into nursery sooner rather than later, for him to be able to socialise with children his age, more than anything else.

We currently do not receive any help, support or funding. I do know of people who have been granted Disability Living Allowance for their children with Talipes.

I’d absolutely LOVE to hear from others who have experiences with Talipes or Benign Paroxysmal Torticollis. The latter being quite rare, so not heard or seen anyone else who has had a child with BPT.

Would we have had it any other way? Ideally, I’d love to have Eli without all the discomfort and challenges he’s faced – of course I would. But my goodness me, he’s a brave boy. He’s SUCH a character. And frankly, it’s made me and my OH better people. We’re stronger. We understand.

Worry, worry worry – isn’t that what all parents do?

MM.

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Guest Post for Wriggly Rascals: Ligament pain during pregnancy.

 

When the lovely ladies from Wriggly Rascals approached me about doing this guest post I knew that it was something I could definitely discuss at length… I’d had ligament pain since the very early weeks of my pregnancy…

To read my full blog post, head over to www.wrigglyrascals.com and straight to Ligament Pain During Pregnancy ! Please do tell us all about your experiences with Ligament Pain during Pregnancy. What helped you out the most? How was your birth and recovery? Did you encounter the pain in subsequent pregnancies?

And don’t forget to sign up to the website to join the conversation!

MM.

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If you need any #pregnancy reassurance, ask @wrigglyrascals for help. www.wrigglyrascals.com

@wrigglyrascals is a new community to help #newmums, join in. www.wrigglyrascals.com
About Wriggly Rascals
Wriggly Rascals was set up by Shona Motherwell, a frustrated mum of twins Mhairi and Archie to get mums together to share pregnancy, baby and toddler advice via quick surveys to get the facts about what other mums do. Our mums pass on loads of great tips to mums who have asked for help. If you would like some advice, get in touch at www.wrigglyrascals.com

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Woe is me… I have SPD.

As I’ve documented over my recent Weekly Updates, I’ve been suffering with what I thought was just ligament pain. Albeit, with ‘just’ ligament pain I should have probably kicked up more of a fuss (I hate causing fuss and I hate fuss!). But since Saturday last week I’ve been in absolute agony with my coccyx. To the point of screaming to just roll over in bed. And I like to think I’ve got a high pain threshold! Needless to say, I’ve not slept since Friday night (and that was a rubbish night’s sleep anyway!). On top of this, I’ve had a cold… a proper cold. Every single time I’ve sneezed it’s felt like my undercarriage was going to rip out of me. Horrendous.

I’d reluctantly started taking paracetamol on Sunday as the hot baths and heat compresses had failed to ease the pain; and had the long Jubilee weekend to rest. But forced myseld into work yesterday. I cried on the train journey in, just limbering on the edge of the seat. I got to work and was completely drained. I felt emotional and tired out. I couldn’t sit in my chair at my desk. As I’ve mentioned before, I’m the first pregnancy in my department, EVER. So have found it difficult when having even just standard Midwife appointments – people continuously asking why I’m at the Midwife so much. (As if I need to explain my medical situation anyway! I would NEVER ask a colleague why they’d visited the Doctors, would you?!). So when I’d been suffering with the aforementioned ligament pain, I found that people were more or less confused or found my blatant explanation “distasteful”. Goodness knows why! So of course, when I got to work yesterday in obvious pain, explaining that my coccyx were killing me didn’t go down all too well. I don’t think people understand just how sodding painful it is!

So I thought SOD IT. And got myself to the doctors at 5pm. The Doctor examined me and diagnosed me with SPD (Symphysis Pubis Dysfunction). I’ve been referred to a Physio (not sure how long it will be before I get my appointment mind!) and has given me a cream to rub onto my coccyx and upped my paracetamol intake. He did offer to give me Codeine aswell, but refused this as it can affect the baby. He also gave me a sick note. My first sick note. So close to the end of work, before my Maternity Leave begins on 22nd June… so I’m quite disappointed with myself. I’ve never ever had a sick note. I didn’t even know what to do with the damn thing.

So that’s that. I’ve had my first day off work today and literally slept the entire day through. The paracetamol and sitting on a hot water bottle has helped.

I just need to keep on top of resting and relaxing. This is definitely my body’s way of telling me to SLOW DOWN.

Has anyone else suffered with SPD? What are your coping techniques? Did you get better post-partum?

MM.

 

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Our GroCompany purchases: Swaddles, GroBags and GroEgg.

We first came across the Gro Company when researching cot’s and moses baskets. We completely fell in love with the pretty patterns and prints of their now-famous Gro Bags (baby sleeping bags) and decided that on that alone we would definitely purchase a few for baby boy bump! The Gro Company are the original, and only company to be recommended by the FSiD.

So I signed up to the mailing list and received a lovely catalogue through the door. The designs are so lovely we could have bought them all! We had decided that we wanted to swaddle baby boy bump when he arrives – so went straight to the GroSwaddles section.

We’ve gone for the ‘Woodland Friends’ and a twin-pack of the ‘Wish Upon A Star’ print.

Woodland Friends GroSwaddle £11.50. Click here to purchase exclusively online at JohnLewis.com.

We also opted for the ‘Day/Night’ twin pack and a ‘Little Trikes’ sleeping bag. Absolutely love the Little Trikes print. It looks and feels really vintage – but in a good way!

Click here to purchase GroBag sleeping bags exclusively online at JohnLewis.com

From the catalogue you can receive a massive 25% off when you order over £40 – so we thought ‘Sod it, let’s buy a GroEgg while we’re at it!’. So we did. Looking forward to using it! Had a trial run in the bedroom last night…turns out that bay boy’s bedroom isn’t a bad temperature! The GroEgg will also make for a great nightlight too!

GroEgg Room Themometer, £19.94. Click here to purchase at JohnLewis.com

 

All in all, we’re pretty chuffed with the quality of all the products now that they’ve arrived. We can’t wait to use them!

Have you had your little one’s in any Gro Company products?

MM.

 

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Our Baby Boy’s first bedroom.

We’ ve been super organised during this pregnancy – despite all the scares and the tests and the anxiety. I think the being organised has been therapeutic in a way; and has given us something to keep our minds focussed 🙂

Here are the first picture’s of Baby Boy’s first bedroom – he’s going to be in our bedroom for around the first six months however! I did say I was organised, didn’t I?

We painted the walls first – ‘Willow Tree’ by Dulux. We must have painted the room at around 12 weeks. We needed something to do while awaiting CVS results.

We then went to IKEA at around 18 weeks and bought all the furniture! Check out the little dog-bum hooks!

This is OH putting together the cot. All very exciting!

Then putting the shelves up! He very much enjoyed using his new drill and fancy spirit level 🙂

I’m particularly enjoying my curtains, which I hemmed and put up myself. It’s quite a small room, but feels so cosy and nice. We just need July to hurry up now!

MM.

 

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Today I’m making…

…Curtains! These are for our nursery.

What do you think of the IKEA bunting print that we’ve chosen?

 

MM.

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Lifehouse Country Spa Resort – long weekend away…

 

So, Lifehouse Spa!

We had booked this little break away after having all the scans and tests a few weeks ago. We’d decided that we would need a relax after such a rollercoaster couple of weeks…

Being 19 weeks pregnant, we jut wanted to go somewhere where we could relax and chill out for a few days. Get away from it all. A spa was perfect. I literally spent 3 days alternating between the swimming pool and jacuzzi (Hydrotherapy Pool). Unfortunately, all of the treatments were too expensive for our budget… in fact, they were just overpriced in general.

I’m well aware that this review is just going to sound like a right moan! It was our first trip to a Spa though, so we would have expected a bit more in some areas. Albeit, we had a wonderful time and would return tomorrow! But with hindsight of course ;o

Pro’s

– Drinks were relatively cheap.

– Comfortable bed.

– Contemporary room with lovely bathroom and great views of the gardens. Usual coffee and tea making facilities.

– Lovely staff – all very polite and always had a smile.

– Easy place to relax.

– Food was great, restaurant quality.

– Great swimming pool and hydrotherapy pool. Can’t review the Steam, Sauna or Salt Inhalations rooms as I can’t use them being pregnant… but DP absolutely loved all three. So they kept him quiet! 😀

– Loved the Orchids Bar area too… must recommend the bread and olives. Best olives I’ve ever eaten! Amazing! Just £2.00 too!

– Very very nice gardens… it was absolutely blowing a gale outside and raining but this did not deter us! We borrowed some Hunter wellies from reception and had a great walk right around the gardens.

 

Con’s

– We weren’t given a ‘welcome’ note or shown around the complex. So didn’t know what facilities we could and couldn’t use.

– Because of the above, we didn’t know we had a safe in the room, until we were messing on with a rather ambiguous looking drawer underneath the TV!

– Again, because we weren’t given a ‘welcome’ note, we didn’t know that you could order Room Service.

– Couldn’t lock the door to the room.

– No bath in the room – albeit, the shower was incredible. I still could have done with a soak before bed!

– Treatments are expensive and need to be booked well in advance. Many people were left disappointment upon arrival when all appointments were booked up.

– Pregnant ladies cannot use Sauna, Steam room or Salt Inhalation rooms as they raise the body temperature too much.

– Packages that exclude food are very expensive. A lunchtime meal (main and starter) will be around £45 for a couple with one wine and one soft drink. An evening meal is per the set menu, £35 for 3 courses or £28.50 for 2 courses.

– Menu’s left a lot to be desired for someone who is both pregnant and doesn’t eat fish or mushrooms! I ended up having the same evening meal on both nights of our stay because the menu didn’t change… and the Duck dish was the only one that didn’t contain fish or mushrooms! There was also a £3 additional supplement on this.

– There were no decaff teabags! I also wasn’t given an alternative… would have definitely thought there would be decaffeinated everything with it being a health spa!

– No soft drinks menu! Just Wine and Cocktail lists… which isn’t great when you can’t drink! Imagine if you’re an alcoholic visiting for a detox!

– Restaurant was basic-looking; for such an ambitious menu, it was a shame that the restaurant was more like a canteen in a Sainsbury’s with cheap chairs and tables. The chairs of which offered zero support for a pregnant lady.

– There were no bottles of water for free, or even for sale! So it was a case of having to get up every 5 minutes to go to the water fountain in the corner of the ‘Wet Area’. Which is quite annoying when you’re pregnant and just want to lay down, but of course, you need to keep hydrated.

– Although this spa is relatively new, (about a year old), we did notice lots of signs of wear and tear. I actually stood on a piece of broken glass in the Hydrotherapy Pool! Turns out, upon further inspection, lots of the mosaic tiles were cracked and broken, but glued back together. Again, when looking up from the jacuzzi, the ceiling paint was peeling…

It was such a shame there were these little niggles – we really did enjoy ourselves though! Honestly! And we would go back… just hopefully when they have a different menu! 🙂

 

MM.